Fibromyalgia Mystery Finally Solved!

Researchers Find Main Source of Pain in Blood Vessels

Fibromyalgia Mystery Finally Solved! Researchers Find Main Source of Pain in Blood Vessels

Researchers have found the main source of pain in Fibromyalgia patients, and contrary to what many believe, it does not stem from the brain. The findings mark the end of a decades-old mystery about the disease, which many doctors believed was conjured in patients’ imaginations. The mystery of Fibromyalgia has left millions of sufferers searching for hope in pain medications. Up until recently, many physicians thought that the disease was “imaginary” or psychological, but scientists have now revealed that the main source of pain stems from a most unlikely place- excess blood vessels in the hand.

The discovery may lead to new treatments and perhaps even a total cure in the future, bringing relief to as many as 5 million Americans thought to have the disease. To solve the Fibromyalgia mystery, researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain. They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunts.

Up until this point scientists had thought that these fibers were only responsible for regulating blood flow, and did not play any role in pain sensation, but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.

The breakthrough also could solve the lingering question of why many sufferers have extremely painful hands as well as other “tender points” throughout the body, and why cold weather seems to aggravate the symptoms. In addition to feeling widespread deep tissue pain, many Fibromyalgia patients also suffer from debilitating fatigue.

Neuroscientist Dr. Frank L. Rice explained: “We previously thought that these nerve endings were only involved in regulating blood flow at a subconscious level, yet here we had evidences that the blood vessel endings could also contribute to our conscious sense of touch… and also pain,” Rice said. “This mismanaged blood flow could be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”

Current treatments for the disease have not brought complete relief to the millions of sufferers. Therapies include narcotic pain medicines; anti-seizure drugs, anti-depressants and even simple advice such as “get more sleep and exercise regularly.” Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure. Other expressed frustration about how much they had suffered already:

“When are they ever going to figure out that things are never “all in your head?” said one commenter. “Whenever something doesn’t fit in their tiny little understanding, they belittle the patient and tell them they are crazy. People have suffered through this since they were invented. Prescribing SSRIs for everything is not the answer any more than a lobotomy or hysterectomy was.”

The announcement has the potential to unlock better future treatments and undoubtedly has patients all over the world rejoicing that the mystery of Fibromyalgia has finally been solved.

RELATED: Fibromyalgia: Proof of Physical Origins Vs. Two Danish Psychiatrists

By: Rebecca Savastio

Source: Redorbit

Source: Womenshealth.gov

Source: Yahoo News

3,023 Responses to "Fibromyalgia Mystery Finally Solved!"

  1. Jade Dunkley   August 6, 2016 at 4:01 pm

    What about our memory and speech problems i was told that was part of it too feel like im loosing my brain the way i can’t reamember of speek and try to understand people

    Reply
  2. Heather Marie Simpson   August 2, 2016 at 8:30 am

    I have a question to anyone who happens to read this: I have had Fibromyalgia for the past 16 years (I’m 45 years old now), and I’ve noticed over the past two to three years, my hands, from the knuckles down, will go completely white and then numb. Both my hands do this. It only lasts about 5 minutes, and then goes back to normal again. At first, it was only happening about once a week. But now, it’s happening at least once a day. Just last week, I saw the same thing happening in my toes. My question is; is this a symptom of fibro? Should I be more concerned? I told my GP about this approximately two years ago, and he didn’t seem very concerned at the time. My father had a 90% blockage in the main artery in one of his legs, and needed emergency surgery to save his life. I often think about this and wonder if what I have is just a symptom of the fibro, or if I should be more concerned and adamantly ask my GP to have my circulation checked?

    Thanks in advance for any info/answers to my question.

    Reply
    • Karen Anne   August 3, 2016 at 3:38 pm

      Hi Heather it sounds like raynaurds disease often the hands don’t hurt when they are hun but can be excruciatingly painful when the blood tried to reach the ex remedies. I would be demanding that you go do some tests or refer you over to a rheumatologist I pray to go though that you don’t get a rude horrid one like me in Liverpool.

      Gentle hugs
      Karen

      Reply
      • Heather Marie Simpson   August 4, 2016 at 5:44 am

        Hello Karen Anne,
        Thank you for your reply, your info and your advice! I looked up that disease and it seems I’m showing every symptom. I actually see the Rheumatologist at the end of September (initially to help with my fibro), so I’ll definitely bring this to his attention, and hopefully get some answers regarding both.
        Once again, thank you very much for taking the time to answer me, Karen Anne. Gentle hugs right back to you!

        Reply
        • Karen Anne   August 4, 2016 at 6:48 am

          Hi Heather. No problems I am glad to have helped. I am also glad that you have found a rheumatologist who will entertain a patient with fibromyalgia. I have recently had a terrible experience with a consultant in Liverpool. Who treated me like trash. I might add that I paid 170 pound for the pleasure of his insults. He said for me to get back to work or I will loose my job, end up on benefits and that will be the end of me. He then followed me up in NHS were he appeared a little better but then sent a separate letter to my doctor saying I was a hypochondriac and would benefit from seeing a clinical psychologist. I was distraught. Had a meeting with my GP who defended him but I am awaiting on a formal response to my complaint. Like I said to my GP just because you cannot measure it doesn’t mean that it doesn’t exist. I am still Seething but hey ho. X

          Reply
          • Heather Marie Simpson   August 4, 2016 at 7:04 am

            That is terrible you’re being treated that way! I’m so sorry you are, Karen! I get so angry reading and hearing the same from so many people! Makes me wish we could transfer our pain on to these ‘Specialists’ and ‘Doctors’ to then make them realise just how much pain we’re actually in! I’m live in Canada, and when I initially went to a Rheumatologist about my pain 16 years ago, I was made to feel so low. He humiliated me, telling me to lose weight and it will go away. Well, I lost all the excess weight and am worse now than ever before! Makes me so mad that these are the kinds of people ‘treating’ us! I truly hope you can get some answers and the much needed and deserved help, Karen! X

          • Karen Anne   August 4, 2016 at 7:15 am

            Thanks Heather. I hope you get sorted real soon. X oh and I’m so jealous that you live in Canada. Never been but always wanted to be a nurse in Canada. Ha. Maybe in another lifetime ha xx

          • Heather Marie Simpson   August 4, 2016 at 7:25 am

            Really, Karen Anne?! Wow! It has been my lifelong dream to visit all of the UK! That is what my daughter and I would love to do together! Go visit all the places where our ancestors originated from! We have good friends who live in Wales and I just wish so badly that it wasn’t so costly to get over there! 🙁 Like you said, perhaps in another life *sigh* lol. Either that, or maybe if teleportation is invented before I die! lol xx

          • Karen Anne   August 4, 2016 at 7:54 am

            Haha yeh do trading places for a month ha x

          • Heather Marie Simpson   August 4, 2016 at 9:28 am

            Sounds good to me lol.
            Enjoy the rest of your evening, Karen 🙂 x

  3. Heather Marie Simpson   August 2, 2016 at 7:51 am

    FINALLY, some light has been shed on our incredibly debilitating and painful disease. To the many doctors and specialists out there: NO, it’s not “just in our heads”! This disease is very real, and I am hopeful… soooo hopeful that a cure is in sight for us all.

    Reply
    • Valerie Scofield   August 2, 2016 at 9:09 am

      Heather – sorry to rain on your parade, but this post is over three years old. So far, nothing further has been posted by the original person on this subject as to how to tackle it. Doctors are still handing out Anti-depressants like sweeties, which may help to an extent with the pain but are addictive, and if you read the papers, the medication can cause the same problems as what you already have, maybe more so. I have been on Anti-depressants for around ten years already, and use a Benzodiazepine twice a week. The latter helped me stand and walk for a couple of years, but the more you take these medications, the more you need. I also took Pur blocker to slow my bodily system down, but that didn’t help either. The Benzo’s are even more addictive than the Anti- depressants. Some Doctors will say that the Anti-depressants are not addictive, but believe me, they must slowly be tailed off over months. Even if you get better, you won’t know because the side effects of leaving them off, if you do it too quickly are worse than what you have. At the moment, swimming, walking, certain pain killers and Trepiline is the only Arsenal we have. If another post from the original person comes up on this site, I will have more faith!

      Reply
      • Heather Marie Simpson   August 4, 2016 at 6:47 am

        Hello Valerie,
        I actually wasn’t aware that the article was that old! Thank you for pointing that out to me. How frustrating to learn this!
        I completely understand where you’re coming from with regards to the Doctors handing out the Antidepressants and various other addictive meds like candies. I too have been given, and am still on a myriad of different drugs to try to ‘help’, but the side effects tend to be worse at times than the actual Fibro! I was put on Cymbalta at one point and that drug reacted so horribly in my system! I took it for three days and had to stop because I honestly felt like I was dying, the side effects were so bad! I’m currently taking (strictly for the Fibromyalgia): Oxycodone, Percocet, Celebrex, Amitriptyline, and Trazodone. The last two meds are to try to help me sleep, as the pain from the fibro was keeping me from that. All those meds help somewhat… better than if I didn’t have anything, but I wish I didn’t suffer so much from the side effects from those meds. And, as you stated, the increasing addiction as a result.
        Anyway, thank you for taking the time to reply back to me with your info/insight, Valerie.

        Reply
        • Valerie Scofield   August 4, 2016 at 10:45 am

          Hi again Heather. Thanks for your nice reply! I am just taking Aspen trazodone and Amitriptyline, and both things are known to improve sleep. With the latter, just taking a half, and mostly, unless my mind is very revved up, it gives me eight hours or more sleep. Don’t know what the other things you are taking do, will have to look them up. Cymbalta is supposed to be the main thing which helps with Fibro, but I also couldn’t take it. I have had Fibro for 16 years, and now at 68 yrd old use a wheelchair round the Malls and shops. I can’t walk much or stand for long, but am moving soon to the country where, it being flat (unlike where I live presently,) I will be able to walk more. That is very important, and swimming is marvelous, but I now feel scared of the water of any depth, as my core muscles are not strong any more. That is why exercise is important. Wishing you luck and mostly pain free days. The better your sleep, the better you feel. Wish the Doctors knew more!
          I also belong to My Fibro Team, which is a supportive website. If you go on there, I will add you to my team…x

          Reply
        • Tina   September 14, 2016 at 6:27 am

          Oh! my word,why are all of you on some of the crappiest meds on earth. None of those helped me,I took those 28 years ago and I almost died from taking all that crap. Get off it and go on muscle relaxers and Naproxen. They saved my life,I was bedridden before I started them. I couldn’t do anything for myself and I had to crawl on the floor,just to get from room,to room. Going to the doctor was a nightmare,my husband had to help me to the car and once I got in the car,I had to lay down. It might sound like,I was a big baby if not for the fact,that I was told I must have a high Torrance for pain. Due to the fact,that I had a busted appendix,ovary wrapped around a kidney and my uterus stuck in place,by adhesion’s. And my only complaint was,that I had a back ache and some pelvic pain and had a fowl vaginal smell,even after bathing. I had just lost,from 300lbs down to 145lbs,when I got sick. I have Fibro,osteoarthritis and scoliosis. I take the muscle relaxers 10mgs 3X a day and Naproxen 550mg 2x a day. Most of the time,that is all I need,depending on what I do and how,I do it. I’ve been taking them,for 25 years and my doc says,heart,kidney’s,etc.are all fine. I do have high blood pressure and they are claiming the Naproxen,causes high blood pressure. But I had it before,I started the Naproxen and it’s actually gotten better,not worse. They don’t,take away all my pain and I still have,spasms,cramps,headaches,IBS,bladder problems,numbness,etc, etc. However,all those things usually are milder,than if I wasn’t taking anything. The Naproxen,takes down swelling,which is where half your pain comes from. Muscle relaxers,help those spasms,cramps,to not be so severe and you’ll be able to sleep. Veins causing Fibro what a hoot,if that was the case,you’d have fibro as soon as you were born,you’d have pain from birth. But I do want to point out,that it is I believe hereditary. Why,because I have a daughter with it,diagnosed at 14 actually before me,although I had it since she was 5. My husbands Mother (deceased)and two sisters,have it. I have another daughter different father,she doesn’t have that,but has high blood pressure and osteoarthritis. Plus,I have two Nieces with Fibro and several 1st cousins,2nd and one 3rd cousin,with it. So check with everybody in your family, and see if anyone else has it,besides you.

          Reply
  4. D.L. Steyl   July 30, 2016 at 12:14 am

    Good day, I have a dear family member with the same symptoms. Is there a blog or online group that would support patients and or less than understanding family members?

    Reply
    • Jan   July 30, 2016 at 12:33 am

      DLSteyl if you go to wwwfibromyagiatreatment.com this treatment works to alleviate symptoms if you stick to it. Wish your friend well.

      Reply
    • Elizabeth   July 30, 2016 at 11:55 pm

      Hi DL Steyn, there is a Fibro community online that’s called MyFibroTeam. Your family member can try it, of they’d like 🙂

      Reply
  5. Judith   July 29, 2016 at 12:02 pm

    I hope they can find a cure but I don’t think they ever will sorry. I also am fed up of being in so much pain I have f/m and r/a and don’t think I could cope much longer I want a life nor this .

    Reply
  6. Jeanne Ann   July 28, 2016 at 9:52 am

    I’ve had this since I was 12 (now 68) it would come and go but there didn’t seem to be any reason what brought it on… I was very active as a kid thru my late 50’s then it hit me hard. No breaks. No let up. But I looked like every other woman out there…. perfectly fine. I finally found a doctor who actually believed it was an illness… just not one many clues. I too was sent to a Rheumatologist that basically said it was all in my head and to make an appointment for a follow-up in a year… my theory was if she was know-it-all who didn’t know what she was talking about a year would not have made her any smarter! I am so excited about this possible breakthrough. Have been praying for a cure/treatment other than pain meds for so many years. Gentle hugs to all who have this….

    Reply
  7. Karen Anne   July 27, 2016 at 4:15 pm

    Just been reading all these comments. I too suffer with terrible hand pain, worse in my right. Awful but I keep swimming. I have now registered for the swimathon 2017 in aid of Marie curie. Will pace myself aNd take it all in my stride

    Reply
  8. Karen Anne   July 27, 2016 at 4:10 pm

    I am so happy to read this. I have just endured the worst ever. A callous rheumatologist wrote to my GP and basically called me a hypochondriac. Was totally devastated

    Reply
  9. sharon veneziani   July 26, 2016 at 11:17 am

    I always dream of one day will find the cure.hope they will because i am tired of all my pain.

    Reply
  10. Gail   July 25, 2016 at 3:21 am

    Does anyone get reallyirritating feeling in their arms (as opposed to pain)that makes you want to rip your arms off. I find it worse than the pain in other parts of my body

    Reply
    • Karen McIntyre-Hannula   July 25, 2016 at 4:10 pm

      Yes I have Restless Leg Syndrome and at its worse I feel it in my arms as well…I take a muscle relaxer plus pain patch it helps settle feelings and movement in legs to settle

      Reply
  11. Becci   July 22, 2016 at 3:36 am

    White blood cells have nothing to do with fibro but everything to do with polymyalgia.
    Please ask to be tested x

    Reply
  12. Gladys   June 24, 2016 at 3:59 pm

    I am In so mush pain. I was going to quiropractir they really know mush about it than regular doctors. now I Am going back again 🙁

    Reply
  13. Kira Bitten Fabricius   June 18, 2016 at 11:15 pm

    For nerve pain release I Can recommend the specialist treatment with LDN, where Naltrexon of 4,5mg (in my case) helps taking these pains. Lyrica is calming the overactivated muscles, that make me strength again for shorter walks. Still look forward to hear more about the Update on the blood research though. Any Update since 2013?

    Reply
  14. Eileen Conran   June 15, 2016 at 3:30 pm

    Makes some sense to me. Shortly after being diagnosed with fibromyalgia, I began having unrelenting pain in both of my hands,right more than left. I was then examined and tested for Rheumatoid Arthritis which I was diagnosed with. So far those two things have been treated in me as separate disease processes. I have recently stopped the prescription (Plaquenil) for the R.A. as I don’t find it slows or changes my pain. It also has side affects ie: irreversible vision changes.

    Reply
  15. Mr. A   June 1, 2016 at 9:33 pm

    Basal ganglia part of the brain is where the solution to fibromyalgia originates. The proprietary gland can lend easement if properly diagnosed and integrated

    Reply
  16. evie   May 28, 2016 at 9:37 am

    I am tired of people calling me crazy and it’s all in my head. Now that other members of the family have it , it seems like it is not crazy any more. Pain is bad and I won’t take narcotics. Hope the help comes fast……

    Reply
  17. MidAtlanticWoman (@MidAtlantcWoman)   May 6, 2016 at 4:03 pm

    My hands absolutely change relative to the level of pain I am experiencing in other parts of my body. My right hand is more indicative than my left. It’s great for the affirmation, but it doesn’t change anything. You get used to hanging, if you hang often enough.

    Reply
  18. O.Alves da Silva   April 12, 2016 at 8:56 am

    The origine of the most cases of Fybromialgia is a disturbance of the slow proprioceptive system. This system controls the tonus muscle and the vascular tonus as well. So , the solution is to manage the proprioceptive system. This is possible by postural reprogramming technics and active prisms.It is what we are doing with sucess from 30 years ago in about 40 thousand patients
    O.Alves da Silva M.D.

    Reply
  19. Elizabeth Lund   April 8, 2016 at 5:12 am

    I have Fibromyalgia and my eldest son was diagnosed with Type 1V Ehlers Danlos. This is one of the worst types to have,involving cardio vascular problems, amongst many other things. The consultant who eventually diagnosed my son’s condition was pretty sure that he had inherited it from my side of the family. I didn’t have Fibromyalgia then but have had it diagnosed 3 years ago.

    Reply
  20. Kathy Wieder   April 6, 2016 at 12:08 pm

    This all makes sense to me I have been suffering every since I had a traumatic fall and job loss at the same time. It has been five years and only gets worse. Going thru an episode right now and don not know what brings it on. Pills do not work only make you crazy and no one every believe me just looks at me like I am crazy including doctors.
    I am 69 years old and for years have had the hands of a ninety year ol (think skin and huge puffy ropes of veins.My hands are in horrific pain all the time, also itch pain.

    Reply
  21. darlene   April 6, 2016 at 5:46 am

    I have herd that magnesium plays a part in helping relieve pain. more magnesium less pain?

    Reply
  22. sandy   March 31, 2016 at 5:00 pm

    I’ve said this for years after doing my own research…I was so happy they had a name for what was going on with me I didn’t question it…went on meds that made me crazy then after few yrs of it not working started my own research…I couldn’t understand when I took b12 shots why the nerve pain would go away for a week then I needed another one…Here in Canada you can do your own shots and purchase without prescription…long story I told doctor to check me for pylori…it was positive and I got treated….however the pain was still there…so long story short my body was attacking not only bad cells but the good ones and toxins were now being released into my blood stream because my body didn’t know the difference anymore…the b 12 helps with oxygen in your blood that’s why that helps only problem is checking for toxins is expensive and not covered on health system so if I can get this confirmed then I can get help to rid toxins….I do all the home remedies but need to do more research on doctor to help me

    Reply
  23. Shirley   March 30, 2016 at 8:05 pm

    I think this is a bunch of garbage. I had fibromyalgia many years ago when it didn’t even have a name. Although at first many doctors thought it was all in my mind they never suggested it was caused by my brain. When a doctor finally took me seriously he had me take PT which helped a lot. I did not take a lot of different medicines, just something for the pain and would relax for a period of time when it was the worst. Over a number of years the problem gradually went away completely. It had NOTHING to do with some traumatic event.

    Reply
  24. gail russell   March 28, 2016 at 4:02 pm

    i need to find out if this is real and not harmful! i have tried several things, take alot of meds. if i miss a dose, the pain is over the top. help me decide?!

    Reply
  25. James   March 28, 2016 at 10:19 am

    Finally solved?? This article is almost two years old. I guess in the big scheme of things a cure will be out soon. Maybe 20 years or so.

    Reply
  26. Sue   March 27, 2016 at 2:28 am

    Where could I get the book called The Mindbody Prescription?

    Reply
  27. Natalie Ethier   March 21, 2016 at 5:10 pm

    everything is in relation to your central nervous system, which is in relation to you circulatory system. Think about it for a minute / Pick up an anatomy book. This is new research!! We all go through Tragedy, it is a guaranteed part of life. It could be predisposed and your are blaming it on traumatic events. ,When stress takes hold the body becomes out of balance and our predispositions play in. God knows it happened to me this way.

    Reply
  28. Ian   March 17, 2016 at 4:16 pm

    Hey Dave… Yes, my fibromyalgia started after being involved in a serious violent attack 21 years ago. I certainly believe that trauma is most likely the cause as many sufferers seem to have gone through something nasty prior to symptoms occurring. I once read a book called The Mindbody Prescription by Dr Sarno that was able to shed some light onto one happens to the mind and body following incidents like this. He goes on to explain why psychological trauma causes widespread body pain. Maybe give it a read and see if any of it makes sense to you too.

    Reply
  29. Barbara   March 17, 2016 at 2:16 pm

    There seems to be a connection to EDS…Ehler-Danlos Syndrome…wihich is hereditary connective tissue disease….it causes hyper mobility, digestive problems, vein issues..exhaustive fatigue…balance issues…and all the symptoms that FM has….so this can be added to the causes of FM…EDS is often misdiagnosed as FM….plus EDS has 6 varieties of manifestations…could be why we are all so different…

    Reply
  30. Dave P   March 17, 2016 at 12:26 pm

    How many people with Fibromyalgia have actually been through some kind of major trauma, a car crash, a major operation, an nasty accident, any of which would have an impact on the physiological effect on the bodies own natural working process. There seems to be a very common link here, have any studies been carried out world wide or in any singular countries to look at this? if not why not?
    I would suggest that due to the trauma suffered that the chemical effect and the bodies own survival mechanism create a chemical reaction to alter the physiological effect of the body, resulting in Fibromyalgia………………….
    what do you thin

    Reply
  31. Thompsons Playa Real Costa Adeje Tenerife   March 17, 2016 at 12:18 pm

    How many people with Fibromyalgia have actually been through some kind of major trauma, a car crash, a major operation, an nasty accident, any of which would have an impact on the physiological effect on the bodies own natural working process. There seems to be a very common link here, have any studies been carried out world wide or in any singular countries to look at this? if not why not?
    I would suggest that due to the trauma suffered that the chemical effect and the bodies own survival mechanism create a chemical reaction to alter the physiological effect of the body, resulting in Fibromyalgia………………….
    what do you think

    Reply
  32. Robin   March 15, 2016 at 1:00 pm

    As all fibro sufferers know , dealing with it is an exhaustive living hell. I have been living with this for 10 yrs..and it changed my life in the worse way. I was diagnosed by several specialists after my car accident . And have prayed for a cure ever since. I really really hope this is real, and an actual cure is very near. Cuz I want my life back!! I have lost so much dealing with fibro. It’s heartbreaking , I once was a prominent athlete who could do anything . ..now it’s a struggle to conquer the most simplest tasks.
    I hope and pray for all fibro sufferers that fibromalgia will be a thing of the past. WE ALL WANT OUR LIVES BACK !!!

    Reply
    • Elizabeth McLeod   March 15, 2016 at 1:25 pm

      Like you Robin I have been suffering for many years and the older I get the more severe my symptoms are. I pray that a cure is found quickly as I would like to enjoy what years I have. I am so limited in what I can do and the pain physio has been suggesting a wheel chair as my balance is poor. I can only imagine what you feel like to have this happen when you are young and had been athletic. Good luck to you and gentle hugs. X

      Reply
    • Sherri   March 26, 2016 at 10:04 am

      Amen!!

      Reply
  33. janet   March 14, 2016 at 7:50 pm

    Hurry up. I’ve been an young- old woman for too long.

    Reply
  34. Tara standrick   March 14, 2016 at 8:30 am

    I have been “living” with fibro since I was 10 I cannot even remember what it is like to be pain free I have been given many different drugs that did nothing aside from suffering from the side effects as well as my pain. I have been told everything from I’m a hypochondriac to “she’s just a drug seeker. I was even told I was too fat to lose weight from a doctor and I took that to heart lost 110 lbs and was still in a tremendous amount of pain. I went through about 22 years of this until I was diagnosed at 32 and I was overjoyed to finally know it was not all in my head to now just having doctors blame everything I go to them for as being my fibromyalgia. Really hope this discovery can finally bring the suffering to an end excited at the thought of being pain free as I said I cannot even remember what that feels like!! Bring on the cure!!!!

    Reply
  35. Rosemarie Tahara   March 11, 2016 at 4:53 pm

    I also have Fibromyalgia and “anything” that would help ease the (in my case) whole body pain would be excellent … Fibro is something you learn to “live with” but it would be wonderful to wake up pain free 🙂

    Reply
  36. Donna Jordison   March 9, 2016 at 6:35 pm

    Good to see results of more research — keeps hope alive — I am 74 years old and ‘hope’ to see a CURE in my lifetime.

    Reply
  37. Christine N Paiva   March 8, 2016 at 9:59 pm

    What is the cure???? I wish if they can cure me. I think I was born with FM. It really became worse after I had an accident, trauma and finally an operation.

    Reply
  38. Louise   March 8, 2016 at 12:41 am

    Ah. Another cause / cure story! Seen so many that I am quite cynical nowadays.

    Reply
    • Helen   March 21, 2016 at 11:48 am

      My thoughts exactly. I have suffered with FM for over 40-years. There have been many studies but no good treatments or cures yet. I will not hold my breath on a cure or treatment as a result of this study either.

      Reply
  39. valerie   March 7, 2016 at 1:00 pm

    I don’t know what to believe anymore. I don’t think they really know what does cause fibromyalgia. And CFS…People who have pain all the time are, of course, going to be fatigued. Dealing with pain all the time makes you very tired. I definitly think there needs to be more research. I have fibro. and Renaulds…my hands are always cold and painful. Definitly need more research.

    Reply
  40. Anjo   March 3, 2016 at 11:11 am

    I just commented to my husband on how Doctors thought Firbo stemmed from traumatic injuries. This “hand vessel” therory would confirm my personal suspisions, as I suffered 3rd degree burns on my hand in ’05, and been falling apart with chronic pain since.

    Reply
  41. Han randall   March 2, 2016 at 1:00 pm

    Hi, what gelatine do you use please? TIA

    Reply
  42. Heidi Oleson   March 2, 2016 at 9:31 am

    I have the disease and have found relief through Gelatin. I put it in my coffee or Tea every morning and it has reduced the number of flare ups. It contains protein, collegan and over 25 amino acids. I also noted that sugar triggers the attacks along with stress. Keep moving and never give up are my go to cures. the pain brings me to my knees. The doctors treat with pain relievers and drugs which I refuse to take. My disease made itself known after a nasty accident, west nile virus and shoulder surgery.

    Reply
  43. Lauren B   February 29, 2016 at 2:54 am

    MsJinnifer, if you’d actually read anything in the medical journal article you’d see there were 47 subjects

    Reply
    • msjinnifer   February 29, 2016 at 2:58 am

      The report here said: ” researchers zeroed in on the skin from the hand of one patient who had a lack of the sensory nerve fibers, causing a reduced reaction to pain…” . I did afterwards read the actual study. Has there been any follow up since 2013? Any updates? I’m actually interested — not trolling!

      Reply
  44. msjinnifer   February 29, 2016 at 1:55 am

    One patient? Hmmm. This research is from 2013. Any develpments since then? Replication?

    Reply
  45. Lauren B   February 29, 2016 at 1:39 am

    Dianne it’s not bogus information, it’s published in a medical journal. I put the details in my other comment

    Reply
  46. Lauren B   February 29, 2016 at 1:31 am

    To the people who say they won’t believe it until it’s published in a medical journal, it already has been. It’s in Pain med, 2013 June 14(6) page 895-915
    You can find it on PubMed

    Reply
  47. Dr John L Whiting   February 28, 2016 at 11:38 pm

    To Wendy Peavy

    Reference: http://painmedicine.oxfordjournals.org/content/painmedicine/14/6/895.full.pdf

    There is no treatment yet, but venous blood gases are consistent with the above findings. Professor Rice’s findings are what I would have expected.

    Sincerely,

    Dr John L Whiting

    Reply
  48. giftbearer   February 28, 2016 at 11:22 pm

    I thought this was published by Neuroscientist Dr. Frank L. Rice. It should say what journal it appears in though.

    Reply
  49. Wendy Peavy   February 28, 2016 at 11:55 am

    When this is published in a major medical journal and agreed upon by specialists in the field of Fibromyalgia treatment and research, I’ll believe it. In other words, I don’t trust your “solution.”

    Reply
  50. Tom   February 28, 2016 at 6:21 am

    Reduce your body burden of synthetic toxic chemicals and see how you feel.

    Reply
  51. Mick   February 27, 2016 at 6:39 pm

    You usually a bunch of mard arses

    Reply
  52. Chris H.   February 27, 2016 at 2:36 pm

    Thank you for posting. I just read this for the first time today and felt cautious.

    Reply
  53. Dee   February 27, 2016 at 5:13 am

    Oh wow. ..exactly! !! Some people say well if you have FM you can’t work. I know there are people out there that say they can’t work! I GO TO WORK and work in PAIN every day…i can’t wait to go to bed ..i love my bed. People don’t know how much pain a person is in because i don’t complain. I may say i hurt occasionally to some family members but i keep it bottled up inside. I suffer in silence! ! They look at you and think oh she looks ok there’s nothing wrong with her…

    Reply
  54. Dianne   February 26, 2016 at 4:31 pm

    Such BS and a terrible way to spread bogus information about a condition that can be researched on real, scientifically sound, peer reviewed journals. This site is 100% pure bad Information. Readers Beware!

    Reply
  55. Polly Phillips   February 26, 2016 at 4:25 pm

    I’ve read around this subject as I was diagnosed in 2012. Neuroplasticity, Sarno etc. My conclusion? Many so called experts are making a ton of money from our mystique. No one knows what causes it .. end of. I have now insisted that my medical records show that I do not suffer from fibromyalgia. I’ve walked away from the inevitability that this diagnosis imposes on your life, how people perceive you but more importantly how you perceive yourself, I’ve stopped anti depressants after 19 years. I am no longer scared of the bogey man. I’ve had fantastic support from my local (free) anxiety /depression service and pain psychologist. My medication used to occupy a large drawer and now can fit in a pocket. Believe me, the hand and foot pain started in my thirties and things went from bad to extremely bad . Yes I still silently scream in agony OCCASIONALLY but it no longer defines the incredible woman I am at 65. I’ve learned to meditate for 15 – 20 mins a day. I sing, giggle and enjoy every second. Please don’t think of me as boastful. If this helps someone kick that bi…..h to the kerb, then hallelujah! ! Live well and wisely.

    Reply
  56. Chantelle   February 26, 2016 at 8:13 am

    What they talk about in this article and others as well. Is completely different than how my Dr explains FM. They figure it was my car accident is the trigger. And it not an imaginary disease. Its a part of the brain that tells my body it hurts.
    If we get stressed out over exert it makes it worse. Winter is worse why because we tense up as soon as we get out in the cold. And my doc says that my blood innfammmation is high (due to either having Lupus or MS which I will be tested for one day. Out healthcare sucks in Alberta) so if my inflammation is high they why don I hurt so much. And yes I know Lupus and MS and FM all have cross symptoms. However I have other sytoms outside the FM ones that indicate something else is going on.
    I am also well hydrated. I am instructed to drink a Gatorade a day. So that on yet my salts because I drink a ton of water. So much that I dehydaeate myself. I need the salt. And still chonic pain and fatigue. So theree goes you dehydration theory Chris.
    I hope that one day a treatment is found. Currently I’m in 11 different medications. Some are regular and some are as needed. It finding the best combination and finding the right ones you can handle as well.

    Reply
    • Paula J Countryman   February 26, 2016 at 9:40 am

      I agree Chantelle. I was also in a car accident and received a whiplash injury as well as other trauma in the younger years of my life, including emotional and physical abuse as a child, rape at 18, Hong Kong flu etc. I think we use too much of our adrenaline and it causes our substance P to increase.

      Reply
  57. Linda   February 26, 2016 at 8:10 am

    Well I don’t believe any more anything I read ! It will remain a mystery disease …no one can understand the pain a fibromyalgia Sufferer endures …even a spouse doesn’t understand because so many of us continue to work through the pain you do what you have to. Thirty plus years of suffering no one could guess until at sixty one Ican not push myself through the pain any longer I give in and stay in bed longer and I sit down longer periods of time.

    Reply
  58. Steve   February 26, 2016 at 3:01 am

    Chris regarding the water cure, I would like to contact you please how may I do that as I am very interested in what you say

    Reply
  59. Ian Moran   February 26, 2016 at 2:01 am

    Danny, I read your comment and it was interesting. I have also started thinking about the mindbody connection between fibromyalgia pain and the mind. Have you read anything by Dr Sarno? He talks about Tension Myositis Syndrome (TMS) which is a mindbody condition that he believes includes fibromyalgia as he has had a very good success rate at treating the condition.

    Reply
  60. Shaun   February 25, 2016 at 2:29 pm

    This is old (2013) research, and is nothing new. Articles like this just exacerbate functional somatic syndromes.

    Reply
  61. Volia-Louise   February 25, 2016 at 10:09 am

    When I read the first tiny article I immediately thought here is something! I have been researching Fibromyalgia. It took me years of research to make sure what my problems were. It was a suffering itself and nothing really helped.
    This makes sense to me totally!! My hands are the signs that it’s coming. The veigns in my hands totaly change.
    The spreading makes total sense too.
    Keep in mind how nerves can change pathways
    I do have those in my right hand and foot. If I don’t do something about it quickly chaos! Instinct drawn me to gel that goes to a freezing temperature. But add heat (beenbags) immediately. Covered and silence. I have serious nerve damage partly because of wrong treatment.
    If I can get to these scientists. I will be getting my life back and my family for first time in almost 30 years.
    I pray to get in contact with the with specialists.
    Please?!

    Reply
  62. Su5ie   February 25, 2016 at 6:51 am

    As fibromyalgia is a syndrome and has many aspects I don’t think it stems from the hands. How can TMJ, Insomnia, IBS etc all be linked to this, it doesn’t make sense. I have fibromyalgia which has been diagnosed by top specialist in the UK who has done the pain tests and apart from some but not all of the “tender points” I have a high pain threshold in other areas of the body. “Now that the cause has been pin-pointed” really? from one study? Seems a bit awry….

    Reply
  63. Tracy   February 25, 2016 at 2:11 am

    this article has been stolen and shown on fake website dailymedicalresearch.com

    Reply
  64. EmS   February 21, 2016 at 2:13 pm

    Look at the date of the article..2013..if it’s factual then something would have been done to really help the people suffering from this

    Reply
  65. chris   February 21, 2016 at 10:44 am

    ITs goddamn chronic dehydration… not enough water and salts in the body. wouldnt kill anyone to give up coffee, pop, tea, sugar drinks and alcohol..diuretics-dehydrate you. junk dead and dry foods dont help either. Take salts and water not just water that will make it worse! SAlts help you retain water, they alkalyze you (not table salt thats poison) Skin thats dehydrated becomes a hell of a lot more sensitive. Muscles become sore, joints become stiff and arthritic with acid buildup… bloodflow is impacted by dehydration. lactic acid removal is impacted by dehydration. histamine to regulate drought in the body causes you pain. dehydration causes depression and anxiety. Im no doctor.. dont believe me. but read up and try it.. all you have to lose is the cost of sea salt. 1/8tsp per liter eaten or mixed. watercure2.org is a good place but laid out badly. I had chronic acute atrophic gastritis. pills out the wazoo.. just needed water and salt. thats how messed up our sickcare system is! PILLLLLLS

    Reply
  66. Larry Grosfield   February 21, 2016 at 8:19 am

    All comments from 2016….have you not noticed the story is from 2.5 years ago? That pretty much proves that this claim is bogus, since no treatments have arisen.

    Reply
  67. Grandma Roses   February 18, 2016 at 7:20 am

    If the source is the hand, how does the pain radiate to the hips, the knees, etc?

    Reply
  68. Lynne Kary-Rana   February 16, 2016 at 9:35 am

    Where are the official tests? Who has made these claims. WHO are the researchers? There recently was another article- with different study “results” I wish the paper was backed up a bit more citing specific studies.

    Reply
  69. tina   February 15, 2016 at 8:20 pm

    I will believe it when I have seen it I am in so much pain that some days I cannot walk at all and have to use my wheelchair to get from a to b

    Reply
  70. Danny   February 12, 2016 at 12:32 pm

    Very intersecting article – as a psychotherapist in the UK I see a close intertwined relationship between the body and the mind something that Eastern Medicine has long recognised. A link I didn’t see recognised by those in the medical proffesion 15 years ago when I developed a illness with similar syptoms ME. There was then and hopefully less commonly now: a belief between oposing therories that illness such as ME / Fybromyalga were totally psychological or completely physical in origin. I like to think that some doctors as well as body psychotherapists and counsellors recognise that some of these ailments often reside somewhere in between the body and the mind two parts of us that are inseperatly intertwined .. It’s never a question of someone imagining physical symptoms, the body is creating them but the brain is also registering and interpreting messages from the body – but having been on the receiving end of such views I understand some peoples frustration.. I do also believe which fascinatingly ties in with many comments here that there is also a link between trauma (both physical and mental) and Fibromyalga / ME something hope to investigate more some day..

    Reply
  71. carol Beadle   February 11, 2016 at 7:37 am

    I was diagnosed with fibro 11 years ago. I was tanking all kinds of meds, all listed in these comments. I believe with everything in me that its inherated. I watched my Dad and my Aunt,[ his sister} suffer for years. I always wondered what the problem was. My dad lived all his life on the couch suffering from mystery pain. No one could help either one of them.

    Reply
  72. Kimble DeMoss   February 2, 2016 at 4:05 am

    I have suffered with fibromyalgia now for Six years following Two Hip Replacements . I was in a lot of Pain for a year and a half before they found out my problem,bc I was also diagnosed with DDD in my Back and was on Crutches a year before they finally replaced my Hips. But after Surgeries my Pain continued and I’m still dealing with my pain. I had to give up my Buisness that I had & loved doing , My life has never been the same . I now stay home all the time, fighting the pain…

    Reply
  73. Joy   January 31, 2016 at 1:41 am

    I too believe my fibromyalgia was triggered by surgery, I had 3 surgery a in 2 yrs., was fine before , now I can’t even work.

    Reply
  74. Jan barker   January 27, 2016 at 3:41 pm

    Sufferers please go to wwwfibromyalgiatreatment.com and read this book What your Dr may not tell you about Fibromyalgia. The “Protocol” worked for me n I suffered for 25yrs. Now 5yrs way less pain no drugs, it’s a strict protocol but way worth it. Please try for your own sake. Jan Barker.

    Reply
  75. Cheryl Rose   January 22, 2016 at 12:26 pm

    I am so pleased to know that the mystery has finally been solved. I was diagnosed with HORSESHOE kidneys in 1987, Fybromyalgia in 2005 and Acoustic Neuroma in 2013. The pain that I endure with the three is overwhelming. I am a person who fights back and I have a strong pain threshold. I am eternally grateful God for His hand that rests upon .me , and the fact that Fybromyalgia is finally understood.

    Reply
  76. scallop2016   January 18, 2016 at 12:32 am

    I’m so glad research has come so far I’m a suffer from 2002 and it’s old that some of my drotors think I’m nuts but I’m one of the ones that have an extreme time with the cold

    Reply
  77. Sharon   January 16, 2016 at 2:07 am

    My sister has fibromyalgia & I am sure this was brought on by trauma to her body after surgery in her neck for bulging discs.
    Mood can make my sister feel worse but isn’t thT the same for any illness. If you are in hospital & your family or friends visit it makes you feel better. No mystery. I will keep you all in my prayers. Be kind to yourselves

    Reply
  78. Mary   January 13, 2016 at 11:47 pm

    I have suffered with fibromyalgia for three decades now. I get relief from the chronic pain from ingesting medical marijuana I a coconut oil basement which I maker myself from ground up, or bud form. I have far less fibromyalgia pain, and less frequent Raynauds attacks now that I stopped using cymbalta, lorazepam, lyrica, ativan, ssri’s, and all the other pain causing terrible bad medications forced on me. IT NEVER WAS A SYNDROME. SEEK HELP WITH CHINESE HERBAL REMEDIES. I FEEL BETTER. NOT CURED, BETTER.

    Reply
  79. Jeff   January 13, 2016 at 6:28 am

    I’ll believe it when I see it! Til then, I’ll be painfully waiting! I am a Male patient that developed it from a major shoulder surgery. Prior to the surgery I was perfectly normal!!

    Reply
  80. Susan Bender   January 7, 2016 at 5:31 pm

    Don’t get too excited fellow fibromyalgia sufferers. This article has NOT covered the “Mystery” of Fibromyalgia. It has NOT as quoted in the article, “Now that the cause of Fibromyalgia has been pinpointed, patients are looking forward to an eventual cure”. It has discussed the “Mystery” of one of the thousands of symptoms – pain. This is no good news – not worth putting out there. Very disappointed with what I read. So what, they diagnosed (sort of) a “mystery” of a symptom. Whoopy ding! They did not even say what the treatment could be, I want to know the SOURCE OF FRIBROMYALGIA, NOT A SYMPTOM. I have been suffering from fibromyalgia since I was 7 years old (not diagnosed until 35 yrs of age) and diagnosed as severe, general (entire body) fibromyalgia. Yes, it will be great to have the pain of these painful symptoms relieved but this is NOT discovering the “mystery” of the cause NOR source of fibromyalgia. After all these almost 52 YEARS of suffering, I still believe it is severe trauma to the body that caused chemical and hormonal imbalances to the body that never returned to being balanced. This is what should be researched, not the symptoms. I am also reading headings “Discovered “Mystery” of Fibromyalgia….”, “Discovered.,,,,,. Fibromyalgia…….” when in reality the article is only about finding a source of A SYMPTOM, not the CAUSE of the condition itself!.

    Reply
  81. Shelba Meyer   January 6, 2016 at 6:29 am

    Kim, I would like the name of one doctor who believes this. I will make an appointment immediately.

    Reply
  82. Kim Possible   January 5, 2016 at 6:04 am

    It is very common knowledge amongst the immunologists and others in the field of vaccines that fibromyalgia is the direct result of vaccinations and no other cause.
    There are no reported cases in the non-vaccinated.

    Reply
  83. Calvin   December 28, 2015 at 12:43 pm

    Riddled with it 8 years now, I’ve been found fit fore work I’ve never been so I’ll. Worked all me life as a window conservatory installer, can’t change me job at fifty tried even went on computer course they don’t wana no sick of bein called a liar, with all the meds Im taking only my son keeps me going

    Reply
  84. dhurata   December 26, 2015 at 1:04 pm

    Kesley please tell us the name of viral treatments!

    Reply
  85. miem Beeslaar   December 19, 2015 at 8:06 pm

    I have FM syndrome for 15 years already. If you had a syndrome it means you have all the symptom’s of FM at once. I was in a lot of pain the first 4 years and could not sleep at all. My muscles was so weak that it was difficult to do my everyday routine. The Dr dont know how to treat my symptoms because I also have porforia and was allergic to most of the medicine that was available for treating FM.

    Reply
  86. Kelsey   December 15, 2015 at 3:57 pm

    I used to have Fibromyalgia (emphasis on “USED TO”) . . . after 5 years of pain and crippling fatigue I finally discovered a book by Dr. Daniel Dantini called “The New Fibromyalgia Remedy” . . . he is a doctor who had Fibromyalgia as well and cured himself . . . he claims that different people have different causes for the Fibromyalgia, which is one reason why scientists today have not been able to find a solution that works for everyone.

    As it turns out, my Fibromyalgia was being caused by a combination of 2 viruses that my immune system had lost it’s resistance to (following a severe crisis in my life).

    After taking a 3 month viral treatment all my FM symptoms were gone and I have been pain free for almost 3 years now!

    Reply
  87. Roz Sanders   November 14, 2015 at 3:21 am

    My FMS appeared suddenly, noticed when I left hospital after 1980 car accident. It wasn’t given the “fibromyalgia” tag until 1993. There is a host of variable symptoms and it is systemic, affecting my whole body and mind. This article is so misleading, it is one person;s opinion and nothing more. I also suffered physical and mental abuse from both parents and two ex-husbands. Now I am being abused by a medical community which refuses to acknowledge the complexity of my condition by withholding effective treatment, based on personal prejudices and the behaviors of other people. When a heart attack finally ends my suffering I will be the only one who knows how much all this stress caused it.

    Reply
    • Jeff K   December 8, 2015 at 6:21 am

      @ Roz Sanders, I hear you loud and clear. I also suffer with “fibromyalgia” and feel my quality of life is non-existing. I was a active person, very socially active and a fun person to be around. Now I feel like a zombie with no reason to live. This condition has made me become miserable and with drawn. The people at work only get to see the exhausted side of me and probably think I am someone who enjoys being down, but it is a side that I would prefer anyone see. Being sick is awful and some days I have to think that this world would be a better place without me. After almost 7 years being diagnosed with FM my doctor feels I should go and see Pain Management Doctor (7 years!!). The first appointment I can get is in March 2016. So where is the attention to helping us, the sufferers of this depilating pain.

      Reply
  88. Christine N Paiva   November 12, 2015 at 12:32 am

    I have FM I was diagnosed in 1992 but I think I was born with it. I am on PMS Amitriptyline for my sleep disturbence I hope they find a cure and from there after be able to life pain free.

    Reply
  89. DM   October 28, 2015 at 12:37 pm

    Lyme disease is systemic. There is no cure.

    Perhaps your Lyme wasn’t really Lyme.

    Proclaiming this ‘miracle cure’ deminishes the seriousness of these illnesses.

    As for the disfigurement in the other person’s hands, that would be rheumatoid arthritis. If you had a negative blood test, have it checked again. Many people test negative in the early stages. And, the two illnesses often go hand-in-hand.

    I’ve had multiple traumas, from multiple serious car accidents – to – years of abuse from a violent first husband – to – playing hard as a child with four older brothers and their friends, all who didn’t want their little sister anywhete near them – to – working hard for many years – to – sonewhat severe joint and spine problems – to – various injuries through the years.

    I heard “It’s all in your head” bull from doctors for decades before finally finding a specialist who understood. I actually cried everytime I went in for an office visit for a long time merely because of the relief and validation.

    I am hopeful this discovery will lead to long lasting treatments and possibly a cure. That would change sufferers’ lives forever!

    Reply
  90. Wendy Rowe   October 26, 2015 at 3:42 am

    My daughter had the trauma of having 19 inches of her large bowel removed because of a 2lb cyst, caused her surgeon said by one of the worst cases of Diverticulitis in such a young woman [she was 36]. 2 months later the first symptoms of FM started with in her hands. Now 12 years later she has gained 3 stone is a type 2 diabetic and sometimes cant get out of bed. She is one of the strongest women I know having bought her 2 children up alone for the last 26 yrs but even she cries sometimes. I am firmly convinced that this illness is bought on in some cases by trauma.

    Reply
  91. Alice   October 21, 2015 at 8:32 pm

    Do you think this could have been a more accurate account of the pain and disfiguring of my hands and fingers.

    Reply
  92. Ann Krisik   October 21, 2015 at 8:03 am

    First of all I have had Lyme disease and a co-infection, twice, since 2004, and now am dealing with what appears to be FM. I have found that when the weather changes I am at my worst as far as fatigue and total body aches. Thank heavens at age 78 I am able to take my pain medication & just go to bed. Did my years of dealing with Lyme disease have anything to do with what I am now experiencing? Good question.

    Reply
    • lynn   October 26, 2015 at 12:00 pm

      I cured my Lyme disease with the “salt/vitamin C” treatment…go to Lymephotos.com it’s all there. I did approximately 16 grams of salt, 4 grams each time after eating 4 times a day (sodium cloride tablets, 1 gram/tablet, which are pure salt, from Consolated Midland Corporation or CMC as it’s called)and 16 grams of Vitamin C powder (mixed w/orange juice). Vitamin C powder at Trader Joe’s here in California is only about $10 a pound, cheap! Followed that protocol for approximately 4 months, til diagnosed w/ colon cancer, totally unrelated to the Lyme. Stopped the protocol and now 7 years later, still no Lyme symptoms, and I was really bad, lots of symptoms. As for the FM which I was diagnosed with, my dear wife finallly convinced me to give up gluten…and WOW FM symptoms gone in about 2-3 months! Off all drugs!

      Reply
  93. jan Millington   October 20, 2015 at 2:16 pm

    Ive been diagnosed with Fibromyalgia and im so confused. I feel im going mad as i seem to have one thing after another going wrong. Add that to the fatigue and its getting me down. Does anyone know if itching all over is one of the symptoms of fibromyalgia or am i going nutty!!! Xx

    Reply
  94. melanie   October 9, 2015 at 12:37 pm

    THE ONE PILL THAT STOPPED THE BURNING SKIN,FROM NERVE ENDINGS , WAS LYRICA …… IT WASTO EXPENSIVE TO KEEP TAKING… MANY SIDE EFFECTS.

    Reply
  95. Grace   October 6, 2015 at 5:51 pm

    Penny, I am so glad you are finding such relief. Just a little heads-up, I have had fm all my life and I’m in my late fifties. I have found its a cyclical thing. Successful treatment has greatly lessened the cycles but they are still there.
    May yours be so small you don’t even notice them.

    Reply
  96. Wiolet Vallance   October 3, 2015 at 1:02 pm

    I am on my third year – I now know the signs and how to control it but I still have to take my Lopraxer drugs each night… Cold weather and tiredness makes it so much worse.

    Reply
  97. Penny Ibbotson If you email me write "Attention Penny".   October 2, 2015 at 6:51 pm

    I believe that I am at the end of my Fibromyalgia & Chronic Fatigue after 2 years. I found that Mickel Therapy lessened my pain to the point where i could go off meds from G.P. Changed my diet, done yoga & walking only to my comfort. Found balance in my days which is taught in Mickel Therapy. I had almost given in to the fact that this will be my life, BUT, when I heard about this Therapy I had to try, and I’m so grateful & thankful that I did. I wish you all the very best, find a Mickel Therapist, you can do it by Skype, God Bless you & Good luck.. 🙂

    Reply
  98. Alexis   September 26, 2015 at 1:57 am

    Two years on and most doctors still think it’s in the head. Why is this information not getting down to the gps? And why is treatment still not changing?

    Reply
  99. benard corine   September 22, 2015 at 1:09 pm

    pourquoi la firomyalgie est reconnue dans certains départements en France par la mdph et ne l’ai pas reconnue dans d’autres departementx n’es t il pas la une forme de descrimination,

    Reply
  100. Vickie Gillespie   September 20, 2015 at 2:40 pm

    The medical world is not interested in finding a cure for any disease. If you cure it then you can’t charge for procedures, pills, and office visits. Studying the problem is well and good but if nothing comes of it, what’s the point? Even with all the new information, many doctors treat us as chronic complainers who only want pain and sleeping pills. I’ve be accused of being a drug addict and I’ve never taken opioids or even asked for a pain pill.

    Reply
  101. Tina   September 20, 2015 at 12:24 pm

    Does it ean an actual cure or just tell us what we already know bout fm

    Reply
  102. lorraine   September 20, 2015 at 11:47 am

    so whats the cure then?????????????????????

    Reply
  103. Dee sch   September 3, 2015 at 7:45 pm

    These findings may be true but still believe FM is Central Nervous System disorder.

    Reply
  104. Ray Banks   September 3, 2015 at 10:29 am

    Why isn’t this research sourced? No way to check any of the claims made in this article match facts discovered at a lab, hospital, or university. It’s really just more crap I read on the internet. It may have been made up off the top of the author’s head.

    Reply
  105. Tero   September 1, 2015 at 4:33 pm

    It’s been 2 years since this article was published and the fibromyalgia mystery has NOT been “solved.” Its causes and pathology are still not fully understood, nor has it been proven that the pain isn’t psychological in many cases.

    This article presents theories as facts. Theories are not facts.

    Reply
  106. Rose Dawson   August 31, 2015 at 4:29 am

    As a suffer for 26 plus years, as took years to be diagnosed am so pleased to read this, Hopefully the researches will now find treatment soon, and imagine if a cure is found we could all lead a normal life again

    Reply
  107. Amanda   August 29, 2015 at 4:04 am

    I also suffer from this disease and do get pains in my hands to so would really love them to find a solution

    Reply
  108. Gayle   August 27, 2015 at 11:32 am

    I agree with Linda. Cure it & then I will believe. This ‘breakthrough post’ is from 2013 and it is now 2015 and we are STILL suffering with this horrid condition/disease. MY hands are about the only thing that does NOT HURT. hmmm

    Reply
  109. Brenda Gilbert   August 25, 2015 at 8:10 am

    It’s not just in the hands, My lower back, hips, knees and sometimes shooting pain in my eyes. Other words I hurt all over it feels like the inside of my bones hurt.

    Reply
    • Lovingthenaturalme   August 30, 2015 at 12:56 pm

      It seems a lot of people think they are saying the pain is in the hands. The CAUSE of the pain is traced to the nerves in the hands but the pain is widespread.

      Reply
  110. Linda   August 23, 2015 at 3:46 pm

    I’ll believe they found a cure when they CURE IT!! Just in the hands?? Why does EVERYTHING HURT then????

    Reply
  111. Brenda Armstrong   August 19, 2015 at 10:47 am

    lad there is Hope! I was diagnosed with Fibromyalgia and Psoriatic Arthritis in 2008 by my Rheumatogist. She has faithfully worked on these conditions. The Psoriatic Arthritis was a simple enough to control. The Fibromyalgia has been quite a bit more difficult. But these findings may help put a answer out there for those of us that still suffer from this.

    Reply
  112. tragicosmic   August 19, 2015 at 7:18 am

    I took a course called the Lightning Process. It helped me to stop waiting for a cure and judging myself for feeling the pain (which wan’t real in most people’s eyes). I can see why a lot of people would have a problem with the LP because, as these findings show, FM is a physical and very real condition but it helped me get on with life. FM doesn’t always stay down though and likes to return and remind me how ferocious it can be.

    Reply
  113. Barbara Stevens   August 12, 2015 at 3:52 am

    These findings sound like more symptoms of this condition rather than the cause. I would be looking at gut health. Inflammation; leaky gut will upset the fine balance of the body. It disturbs the nervous system, endocrine system and immune system and is a catalyst for many diseases.

    Reply
  114. Lesley Hart   August 11, 2015 at 6:32 am

    I am so tired of the ‘no eye contact’ from medical experts when I say I have Fybromyalgia. I am so grateful for the support I have received from my GP and rheumatologist. For years (since 1996) I suffered the disbelieving stare, but now I have support. Relief is yet to be achieved! The pain is excruciating and can drive you crazy!

    Reply
  115. tracey meaghan   August 9, 2015 at 5:39 am

    Wow I knew it wasn’t all in my head I suffer since I had a dental abcess which nearly killed me !! I’ve never felt pain like this fibromyalgia in my life until then I’m glad this reserch has found an answer !!

    Reply
  116. debbie harrop   August 7, 2015 at 1:28 am

    Never had an epidural but i have fybromyalgia and polymyalgia trust me when both of those start to play together the pain can be unbearable

    Reply
  117. ttink   August 6, 2015 at 8:45 am

    And what about those that have never had an epidural that are diagnosed with fibromyalgia? I really don’t think that it has anything to do with it… Every person is different and some of us are prone to diseases over others.

    Reply
  118. Heila Kuhn   August 4, 2015 at 11:41 pm

    Wonder if someone has ever tested the link between fibromyalgia and epidural injections?

    Reply
  119. Waterford73   August 4, 2015 at 9:15 am

    Karen Powers my sentiments exactly!

    Reply
  120. Karen Powers   August 4, 2015 at 6:25 am

    For 18 of the last 20 years I have suffered from FM. I have tried every intervention available to Western medicine as well as several years of Chinese acupuncture, Japanese acupressure, naturopaths, homeopaths, an FM specialist I saw every 3 months in LA. Very little relief. My pain manager won’t even use the word — fibromyalgia. He prefers to talk about myo-fascial problems which do not include the sleep disorder or the cognition issues. Forgive me if I don’t just jump on the bandwagon here. The trip on the bandwagon has been very long and without much relief.

    Reply
  121. Brenda Mcgarvey   August 4, 2015 at 4:45 am

    What medication do they suggest now that may help me ?
    I

    Reply
  122. Maeve   August 3, 2015 at 2:48 pm

    Every illness stems from the brain. Fact

    Reply
  123. jennifer browne   August 3, 2015 at 10:41 am

    God if they can get this sorted lets all hope so.

    Reply
  124. Susan   August 1, 2015 at 11:26 pm

    Praise the !ord

    Reply
  125. jan   July 17, 2015 at 12:22 pm

    Nicola , there are many just like you . Push hard to see specialists. Try find a new doctor that will listen . Dont give up, take heart .

    Reply
  126. Mark   July 17, 2015 at 10:41 am

    @Connie, so you’d rather live off of the government instead of them finding a cure?? Just wow.

    Reply
  127. connie   July 15, 2015 at 7:46 am

    This is great news. I hope they recognize this as a serious medical conditions and let us qualify for SSI.

    Reply
  128. Nicola   July 15, 2015 at 2:36 am

    My doctor told me it’s in my head. Not been back to the doctors for 3 years I live with the pain daily and have no one to help or talk to. Find a test and a reason soon please. Or just get the doctors to belive us.

    Reply
  129. Em   July 14, 2015 at 10:44 am

    People all over the world encountered an TICK? behave yourself I have been tested for Lyme Disease guess what I DON’T have it what I DO have is Fibromyalgia. I have been working with it on clients for many years and now I get to have it…Lucky eh? Wonder if I contract it? that will be the next nonsense.

    Whilst I accept the symptoms of Lyme and a multitude of other “diseases” can be applied to the symptoms see *google* for everything! It is extremely condescending and disrespectful not only to the sufferer but to the doctor and other professional to be told after a lengthy elimanation process that they are wrong! or its Lyme! or its Arthritis or its all in their heads.

    I have my own idea of how I got it. I will now work towards managing it no thanks to people like you.

    Reply
  130. Emma Cousens   July 12, 2015 at 10:03 pm

    This is from 2013 and they still don’t get it! If the “mystery” is “solved” then why the €¥*# is it still one of the most mysterious ailments affecting millions all over the world? We need current upto date research, we need Doctors who are willing to help those who suffer the constant pain, the exhaustion even after hours of sleep, the loss of self esteem from the inability to function like others and on and on and on…… We don’t need drug companies trying to sell their “approved for all Fibromyalgia suffers” with their side effects that make those of Fibromyalgia even worse, or suicidal, yes, suicidal. I know because one of those expensive ” miracle ” made me suicidal! We need to be treated like the real people, intelligent people that we are, not chronic complainers, slackers, addicts or ” nut cases”.

    Reply
  131. sunae   July 12, 2015 at 2:13 am

    By high time that they getting the problem to help us with relieve wimter time is the worse time pain never stop getting worse

    Reply
  132. Carla Teegarden   July 11, 2015 at 10:48 pm

    Since we.don’t really know what fibro is or what causes.it this explanation is as.good as any.of them, and more plausible than you ‘are crazy’.
    My questions are why does this become an issue for those of us who are in the 30-40 age range? Granted there are people who are younger who suffer. But most of us report this pain when we are middle aged. Did we suddenly gain more of these blood vessels? Or did we have them all the time but something happened? If we had these extra blood vessels all along, then why did they flare up during middle age?

    Reply
  133. juergensly   July 9, 2015 at 2:10 am

    There is no such thing as a disease called FIBROMYALGIA, all are symptomes of the LYME infection.

    Reply
    • GCHC   July 9, 2015 at 10:19 am

      I’m sure those with fibromyalgia that live in places on the planet where being struck by lightning is statistically more likely than encountering a tick will disagree with you (let alone one with a specific bacterial infection). People that haven’t left that city in their lives, vectors of secondary infection in those enviroments are up to lottery odds. “Symptoms the same as” right, and symptoms for Lyme disease are similar to early onset MS… does that mean Lyme disease or MS doesn’t exist? Similarity isn’t a exclusionary or inclusionary criteria.

      Meanwhile all sorts of diseases have to be identified by symptoms and observation. Lyme disease however, has a primary infection stage. Asymptomatic initial infection is particularly rare in bacterial infection, otherwise we wouldn’t be around after the black plague, TB etc as we’d have all these hidden retransmission sources. There would be thinga like parallel infection from blood to blood transmission via donor/transfusion that raise red flags. Sure testing for Lyme disease isn’t great… but how many people test negative AND mistook primary symptoms or don’t remember having them AND hadn’t presented with a rash (as I don’t think you’d f look forget that ONE time you had the flu and a rash) AND had tick exposure that they missed AND don’t have post infection antibodies AND still have symptoms that they never noticed variation during antibiotic therapy for an unrelated infection? It’s all contingent on a “Facebook” understanding of medical science. The fact you can’t see fibromyalgia on a slide is why many syndromes are hard to treat. Meanwhile Lyme has been isolated, treated in verified lab environments… yet somehow people have it and yet don’t, circumventing ALL of those diagnostic protocols. Lyme exists, but so do people that will except a wrong answer to feel like they can understand and act against the unknown as well as those who have something to sell as cases = $$$

      Reply
  134. June RAGANSWOOD   July 4, 2015 at 3:12 pm

    All comments are good. Is Hidrocortizone the same as hydrocortisone ? See comment Louise. I have had this condition since I was approx 10 years old and I am 73,. I was first diagnosed with polio..wore braces a short time until my Father made dr, remove them..he said to let me do what I could own my own. They changed my diagnosis to Pollymyalgis..then etc etc…sometime in the 70’s they called it FIBROMYALGIA.I HAVE TRIED ALMOST EVERY SUGGESTION UNTIL BOUT 1980.. No drugs now except aspirin…like none, I exercise, walk, stretch, cry, cuss, pray, friends, sex.& laughter…they all help. 4 or 5 times a year I will take a pain medicine ..if that foes not help..I go to hospital for MEDS and help…

    Reply
  135. Wormwoodbush   July 1, 2015 at 6:02 pm

    Louise, there is not and never has been one type of treatment that works for every case of fibromyalgia or chronic fatigue syndrome. Many including myself have tried and many still use magnesium, but still don’t get good sleep. I’m very pleased that what you described has worked for you, but please be careful when telling others and making it sound like you have a cure. If it worked for everyone, scientists, researchers, pain specialists and Rheumatologists would know about it and would be recommending it for all FM and CFS sufferers. Good luck with your progress.

    Reply
  136. lacb   June 30, 2015 at 10:04 pm

    Fibromyalgia is a symptom of lyme disease in many cases. Check for Lyme.

    Reply
  137. Louise   June 30, 2015 at 5:46 am

    The lack of magnesium in our body do not let us go into REM sleep. If you take magnesium chloride you will fix this on the first night! Take it at dinner time. I did and it is amazing! In one week only I was sleeping without any drugs for 5 hours directly.
    I’m doing auto hemotherapy in myself and didn’t have brain fog for more than a year now. All the pain disappeared in less than a month. It has none contraindication. Here people do this to increase the immunology and it is excellent.

    Chronic fatigue is due the adrenal exhaustion. Ask your doctor for hidrocortisone (not cortisone!)

    So…. Auto hemotherapy took all the pain in my body in less than a month. But the fatigue and lack of energy was still there. I did some research and discovered some doctors already know it is adrenal exhaustion due many problems we face in life (divorce, loses, jobs, bankrupts, stress, etc… ) ALL solved with hidrocortisone.

    Go to a GOOD modern doctor. Here we call then ortomolecular and into bio-medicine.

    After doing that, you will find lots of energy to go to the gym or walking. Your life will be back!

    Learn everything about auto hemotherapy on internet. No one will tell you about these cheap things…. you know. It did miracles for me. NONE pain… well can say I am free of pain in 95% what is wonderful! I can use my high heels again…. A woman will know what I mean. 🙂 No pain on my feet anymore.

    Reply
  138. Louise   June 30, 2015 at 5:31 am

    Well…. here everybody knows that FM is a lack of Magnesium Chloride in our body and it has a lot to do with Adrenal Exhaustion, too. So, hidrocortisone solves all the fatigue and magnesium takes all the pain, helps sleep, etc…. One just need to do some research….

    Reply
  139. Carol Howley   June 29, 2015 at 11:36 am

    Is this worldwide or just America where this breakthrough has been accepted

    Reply
  140. Geraldine Brnadt   June 29, 2015 at 10:38 am

    I find it difficult to believe this because every 6 months it is claimed that fibro is caused by this or that. I have the pain, brain fog, chronic sleep problems, lack of energy, etc. and as far as I know I don’t have extra of nerve anywhere in my body.

    Reply
  141. Tammie McClure   June 28, 2015 at 6:52 pm

    I have Fibromyalgia and also have a blood disorder, my blood clots way too easily. I’m on constant blood thinners. I wonder if there is any correlation there since my veins often hurt anyway from the high number of clots I’ve endured and the bouts of cellulitis I’ve had in my legs. I hope that a cure can one day be had. I’ve been in constant pain since I was 28 years old and am 42 now.

    Reply
  142. Maureen   June 27, 2015 at 9:32 am

    Fibromyalgia is also linked to UARS – Upper Airways Resistance Syndrome which is airflow limitation during sleep . This is diagnosed during s Sleep Study that measures Obstructive Sleep Apnea and RERAS.

    Reply
  143. caroline   June 26, 2015 at 3:48 pm

    So will this explanation help clear brain fog

    Reply
    • Rosa franziska kalmar   June 29, 2015 at 1:28 am

      Thanks for the message

      Reply
  144. Esther nicholl   June 25, 2015 at 3:11 am

    I’ll believe it when I see it need to do something to many suffering
    with this including myself I’m just after two very bad days and nights need cure

    Reply
  145. David Phillips   June 24, 2015 at 2:15 am

    there may be a simple ‘cure’ which we have used often over the past 16 years as Light & colour Therapists. We use a Bioptron and when first treating a patient for Carpal tunnel (on the forearm and base of thumb) she reported later that her fibromyalgia had also lessened.
    So a simple 4 minute light treatment can get the cell memory to repair itself, as it does with almost any health complaint.

    There will be those who may scoff but be aware the author has also successfully treated a premature baby born without formed lungs, an elephant with arthritis, a rhino in difficult birth, numerous stroke victims as well as Olympic Gold medalists.

    The only thing that keeps everything alive on this planet is light and in 1903 a Danish doctor won the nobel Medicine prize for light therapy – a pity it took 82 years for the Bioptron Linear Polarised Light to be invented.

    Reply
    • James   June 25, 2015 at 2:31 am

      That is the most ridiculous thing I have heard this week.

      Reply
  146. wanda   June 23, 2015 at 9:40 am

    I’ll believe it when I see it !

    Reply
  147. Kristy   June 22, 2015 at 1:33 pm

    I can not help but notice that this article was dated 2013 and we r just now seeing it…. I have been suffering from the pain for a long time… Endless tests and blood work because there is no explanations as to why the severe pain is felt in areas that an organ is located… My pain is also compiled with endometriosis… Takes days sometimes weeks for a flare up to subside… But I refuse to take daily meds to get thru the pain… The last thing I need is a bad liver and or worse side effects from meds…I just hope that they can find a cure… I hate that my kids can not enjoy time with me as much as they should… Sometime the pain from just a tiny hug from my loving children is just to much to bare… Here’s to hoping!!!

    Reply
  148. Fátima Pestana   June 22, 2015 at 11:48 am

    I have always had severe pain in my hands, and did not know the reason of that pain.
    It seems hopeful but, quite honestly, I am suspicious because I have suffered and am still suffering so much with the pain of fibromyalgia and for so many years, and physicians have tried so many “treatments”, without any result except when I take really strong medicaments, that eventually we stop believing that future will be better than today.
    This disease destroys our self-esteem, we no longer can make plans because we don’t know how we will feel the next day.
    It is really a depressant disease and very hard to live with.
    Just hope these investigators find the cure for the millions of persons suffering with Fibromyalgia.

    Reply
  149. Patricia Marris   June 22, 2015 at 8:48 am

    I have suverd for along time. It is all I have to do to get through the day

    Reply
  150. pinkbluefuzzycandy   June 21, 2015 at 5:56 pm

    I agree with the sufferer in the above message. I too, have the pain, sheets sometimes rub against my feet and the pain is excruciating. I get very little sleep, one foot I swear is broken. I have Neuropathy and it is extremely painful, I do my own acupuncture and it helps some, plus the jets in the pool loosen it up some, but the pain is always there. I don’t bother asking for anything as it ends up with me feeling like a criminal if I should have a drug that eases some of the pain. I could get addicted to it they tell me. I wonder what the doctors would do if they were in this pain. In the morning it is like breaking my feet in half to be able to walk to the bathroom. All this, after have a 5 yr. bout of Morgellons, that still nips at me all the time. Scars, and pain, and life goes on, I wonder what pain killers are for if I cannot have them?

    Reply
  151. MJ   June 21, 2015 at 4:52 pm

    The first thing that alerts me to an impending flareup is shooting pains and swelling in my hands, as if I have excess fluid in them. This is extremely interesting and I’m going to ask my rheumatologist about it the next time I see him. Thanks for this article.

    Reply
  152. Sharon Rogers   June 20, 2015 at 5:38 pm

    I have suffered from this disease for over 20 years, and am tired from morning till night and beyond. If my arms are uncovered and cold air blows on them, I suffer from intense pain and the only relief is to wear a sweater when I go into any place that is extremely cool. My feet,hips, and knees as well as my hands ache and have spasms which keep me awake or wake me up when I finally do get to sleep. I have many sleepless nights as well. Years ago, my feet were so bad when I woke up in the morning, that my husband would have to help me to the bathroom and many times help me get dressed. After I got on my feet and got dressed, I managed to get to work and get through the day. A cure would be very acceptable to me. Please let me know when that time comes.

    Reply
  153. Fioon   June 20, 2015 at 3:56 pm

    Although I am still in pain constantly, I have had improvements in fatigue, and a reduction in my muscle weekness. I have done this by cutting out pharmaceuticals, which weren’t working anyway, and changing my diet, to mainly raw food, with a mixture of herbs and spices. My daily veggie smoothie is a god send. The only thing I found to relieve the pain isn’t easily available, and thanks to the government of the 1920’s was made illegal! So I’ve learned to just tolerate it, and live with the pain!

    Reply
  154. Anna   June 20, 2015 at 10:47 am

    Nope cut out gluten like i di and completely cleared my macular degeneration which was supposed to be incurable !!!! going blind totally was supposed to be my future ??? i cut out flute and now my eyes are perfect and my gum disease has miraculously disappeared too ?? x

    Reply
  155. Clancey   June 20, 2015 at 10:32 am

    I realy need some positive information here. too many years of pain and fatigue. I will do or take almost anything to relieve this misery.
    If this is real relief some one please start a site with information and contacts to push research and support.

    Reply
  156. peter moore   June 20, 2015 at 5:59 am

    I expect a full healthy diet will remedy it mostly.Modern day avoidance of fat is a stupid idea.I did it previously.Fat is needed to cover nerves for insulation.Peter. BA&S degree

    Reply
  157. Ann Kretschmer   June 19, 2015 at 2:54 pm

    This article is two years old. Show me updated proof.

    Reply
  158. Nancy   June 19, 2015 at 7:20 am

    Key: nerve fibers have excessive AV shunts. Any connection to curehht.org

    Reply
  159. christine   June 19, 2015 at 1:09 am

    its great they think they have some kind of cure i hope it helps all of us not just a few

    Reply
  160. Lynn Varndell   June 18, 2015 at 4:37 pm

    Just help, these people are not reconised in society

    Reply
  161. Lynn Varndell   June 18, 2015 at 4:36 pm

    This explains a lot to me in what my daughter is going through, she is 17 now but she started going through these problems when she was 11 12 an no docs would say she was dealing with this, hence now she is dealing with full on anxiety, depression and feelings of doubt, when she was 16 we went to birmingham hosp and straight away they told her she was dealing with fibromyalgia, so from then on we had something we knew we were dealing with, we are still battling this problem and we and everyone with this problem needs your support please help us x

    Reply
  162. Donna McFadden   June 18, 2015 at 10:47 am

    Is it just women or are men also affected.

    Reply
    • Les   June 18, 2015 at 9:09 pm

      Men are also affected…but as far as I understand the majority is women.

      Reply
  163. Mariann   June 18, 2015 at 5:21 am

    Thank you so much for the article, this explains all my problems that just resently happened. Still with all the pain meds I’m on I still get about 4 hours of sleep a night.

    Reply
    • Lester   June 18, 2015 at 7:18 am

      Marianne. Have you taken any antibiotics recently?

      Reply
  164. kim hastie   June 18, 2015 at 3:24 am

    I am grateful for some hope … thanks for the article

    Reply
  165. tricia   June 17, 2015 at 6:08 pm

    I do not believe this article. I have had this condition since my teens (I am now in my 70s. I have had every diagnosis and treatment. I am as ill now as I ever was. The only thing that has helped at all has been cymbalta and arthotec. I eat health, do water aerobics three times a week but am never without serious pain.

    Reply
  166. Victoria Reeve   June 17, 2015 at 4:02 pm

    Another red flag: should not someone drawing inferences about a condition be aware of the very basics of the condition?! Like, for instance, the FACT that Fibromyalgia is NOT an inflammatory condition?

    Reply
  167. Victoria Reeve   June 17, 2015 at 3:49 pm

    Sloppy, sloppy science… or sloppy, sloppy reporting (take your pick). There is absolutely no scientific basis upon which they can infer causality. They have not discovered THE CAUSE, they have discovered a physiological anomaly amongst SOME Fibro patients that MIGHT be a factor in SOME Fibro symtomology.

    Reply
  168. jacob korthuis   June 17, 2015 at 5:54 am

    Another demonstration of quick, but wrong, conclusions scientists make. I have no doubt that the findings are correct. However, these findings are the end result of a process, not the cause of the problem.

    It is still our subconscious brain that is in control of our entire physiology. So yes, it is all in the brain. If you want to know how the brain really controls our health, you might want to take a look at the amazing informative and easy to read blogs at: http://pmamninded.com.

    Reply
  169. Kim   June 17, 2015 at 5:39 am

    I have suffered the most severe pain every single day for just over 4 years, to the point you don’t want to live anymore. I’m just turning 30 and have less mobility than someone going on 130!
    A cure would be the most amazing thing ever. Let’s hope it’s soon I already feel like I have missed out on so much of my life

    Reply
  170. sandra jones   June 17, 2015 at 1:24 am

    had this illness over 50 years would be lovely to find a cure oh to be pain free just one day would be heaven i too have ostoathritis of the spine hips now knees i am 73 years of age so what more can i expect . i get bad aura migrains too now a bad tendonitisn in my right hand having operation august

    Reply
    • Kim   June 17, 2015 at 5:41 am

      Good luck for the op x

      Reply
  171. Annette   June 16, 2015 at 9:54 pm

    All i want is to be free of pain and meds just for 1 day

    Reply
    • Dinna   June 16, 2015 at 11:44 pm

      I agree Annette, most people don’t understand how just one or two days would make such a difference in how we act, think & behave. They, obviously, have never experienced real pain! 🙁

      Reply
  172. Trish   June 16, 2015 at 9:39 pm

    This is insane. Fibromyalgia is an autoimmune disorder resulting from viral infection. It is not and never will be anything other than that. The simple facts are that REAL people have a REAL disorder and need REAL research based on what we know and have come to understand about our own bodies. This will lead to REAL treatments that are not experimental and will give us a REAL LIFE not the shadow of the ones we lived before.

    Reply
    • Becci   July 22, 2016 at 3:28 am

      I have never had a viral infection!
      Nor a traumatic event nor a serious (or minor) accident so how do I have Fibro?
      I literally woke up one day and couldn’t move my arms. Fast forward 8 years and I’m in severe pain constantly, I manage maybe (if I’m lucky) 2 hours sleep a night and I spend every morning when I wake in tears because it feels like my neck broke in my sleep.

      Reply
  173. fay gordon.   June 16, 2015 at 11:33 am

    I have suffered for 28 yrs and am told i am also suffering from osteo arthrites.i am fed up with taking percoset and morphine for last 12 years. I am 71 and my mind is like a 30 yr old.but wish my body could stop sufering.

    Reply
    • Michelle   June 16, 2015 at 7:46 pm

      Hi Fay, if you could send me a private message to my email I have something I could share with you that may help you.

      Reply
  174. Joe Serpico   June 16, 2015 at 7:39 am

    I see a lot of different doctors for the many problems I have & I’m just so fed up with doctors rolling their eyes when I tell them I have Fibro. I think you should send a memo to every doctor in America so people stop getting belittled.

    Reply
  175. Joanne Brown Hughes   June 16, 2015 at 1:22 am

    Just a question can low platelets in the blood cause this as I suffer with pain most of the time especially more in the winter and I’m currently seeing a heamotologist about my low blood platelets

    Reply
  176. Fran   June 15, 2015 at 8:58 am

    Our daughter was diagnosed when she was 14. I was an overprotective mother with a child who was a hypochondriac according to most. Hope real relief comes soon for the sufferers of this painful, draining condition.

    Reply
  177. Cindy   June 15, 2015 at 12:04 am

    My oldest brother was dxed with fibro back in the 70s by Mayo Clinic. The only thing they did for him was give him a prescription of NSAIDs and told him to exercise.
    I am not so sure I totally believe this article. I think there is more to this since it affects our muscles and tendons not just our skin.

    Reply
    • paulfurniss   June 15, 2015 at 7:17 am

      That is true Cindy but anything that may give it a real name or a reason for being is more than just a good start. yes I suffer every day and every night?

      Reply
  178. Laura D'Ambrosio   June 14, 2015 at 3:35 pm

    Thus story came out two years ago. Should have thought there would be more of an answer by now
    :'(

    Reply
  179. Paula / "Babe"   June 14, 2015 at 1:49 pm

    I was diagnosed with Fibromyalgia, in 1988. I was 46. I believe I had it in 1968, when I carried my 4th child.
    In 1988, I had to tell the Army Dr’s what it was…they never heard of it! lol
    I understand that many people cannot even function @ all. I feel so sad for them. I am fortunate, that I have a very high Pain Tolerance. I guess having 7 children is proof enough of that! lol
    I will pray for all of us, that something good will come of these findings! Sometimes it takes a few years for Whoever To Act On Medical Findings! ;-(
    Good Luck To All! Hugs,,.”Babe” 😉 And Special Thanks To My Good Friend Carol for sending this to me! 😉

    Reply
  180. Michelle   June 14, 2015 at 10:52 am

    Article 2 years old and still nothing for a cure EXCEPT some form of pain killer that may make our suffering better or the same, but ultimately will cause something else to wrong with us, it would be nice if this is all it is, but I’m not buying it until they develop something that works for all of us which in my opinion will never happen. There are other individual contributing factors and a lot of times the doctors are like it’s arthritis or fibromyalgia or something else that’s similar in nature, although something totally different may have been the cause leading to these diagnoses. I’m 45, have suffered most of my life since childhood, have given up on all medications and shot treatments for pain, and simply feel like it’s something that we have to deal with in our own ways (good or bad). Support is not our friend and we’ll be lucky to have someone in our life that will love us anyway. Prayers to all of us, God bless!!

    Reply
  181. Sarah Reed   June 14, 2015 at 9:27 am

    I have been suffering for 6 yrs now. It took 4 yrs for anyone to listen to me!! I swell up head to toe. I feel like my neck and spine are killing me. Red knuckles, burning, numb, tingly or painful hands. Pain in my shoulders, knees, ankles and toes. It used to come and go. Then eventually it stayed for good. I live it every day.I’m 35 and feel like I’m 95. I used to be an avid outdoors person with lots of energy! I had been the bread winner in my family for years. I’ve lost just about everything. My great job, my spouse, my sense of freedom and accomplishment. But I haven’t given up or lost the fight. This news brought me to tears. I hope and pray that this will help us get our lives back!!!

    Reply
  182. kari   June 14, 2015 at 12:46 am

    I do believe this ever since I was about 10 I’ve had red blotchy palms and I explain my pain as my blood is burning and I can feel my blood pumping and I have lots of tender tender points that hurt all the time I’m looking forward to trying their new cure

    Reply
  183. Mickie. Edwards   June 13, 2015 at 10:17 pm

    I have had Fibromyalgia since 1990!! Long before it became overdiagnosed. Only YOU (and God) KNOW IF YOU TRULY HAVE IT. 25 LONG, HARD, PAIN-FILLED YEARS it didn’t take me very long before I KNEW!! I read this but I DO NOT TRUST IT!!

    Reply
  184. Kent L. Campbell   June 13, 2015 at 12:04 pm

    My wife has Fibromyalgia and she is the one that is the bread winner. I feel for her every day as she hurts and I know she hurts from how she acts and responds. Worse is the impact on her being able to work. Loosing days has placed our family into a hole that we just can not seem to get out of. It is why I am now looking for help to help relieve the stress for her. This link (gofund.me/wpyp63k) is to that. I look forward to a cure like any one…but until then we all have to do what we have to to get by and help those we love.

    Reply
  185. Bridget   June 13, 2015 at 10:05 am

    I am so excited! There is hope to be free of pain now! I don’t even remember what that feels like

    Reply
  186. nancy go   June 13, 2015 at 5:44 am

    The heat is my worst enemy so that would be out.. but ice packs cold weather is great

    Reply
  187. David Lomax, NRP (Paramedic)   June 12, 2015 at 7:42 pm

    Best therapy I’ve seen actually work has been the high-dose Guaifenesin researched by Dr. St.Amand out in California. Theory is that people with fibromyalgia do not process phosphates out of their body normally, it builds up and makes the lumps in the tissues. Guaifenesin (OTC Mucinex) has the side effect of making the body excrete phosphates. Susan has been on it for almost 25 years, is almost completely cleared the lumps and painful joints. She has to be careful what she eats, any herbal food with salicylates will block the action of the guai. St. Amand has a website http://www.guaidoc.com It works, and it’s cheap.

    Reply
  188. johnieunoJohnny   June 12, 2015 at 8:04 am

    I too was put on Prozac 15 yrs ago, all it did was give me suicide thoughts. I stopped taking it and the suicide thoughts went away. I only took it for a short period of time, no lasting effects. I moved to Arizona because I could no longer tolerate N.Y.’s cold weather which triggers flare ups. I fare must better living in a hot environment. Having said that, I still get tough days, although I get more days of waking up not sick or mild flare ups. Moving here was the best decision I made to help myself.

    Reply
  189. Hannab   June 12, 2015 at 6:55 am

    When the pain became unnearable I saw a specialist who put me on prozac. I didnt realise as it was a slow decline but the prozac made me angry, frustrated and gave me severe anxiety. I lost it at work and was suspended, I was taken off the medication and started feeling more myself. However the destructiom it has left in its path is unrecoverable from. Being put on prozac destroyed me, I hurt the people I care about, I lost my reputation. My boss did everything he could to ruin me, because he couldn’t understand that I was working my arse off every day, in agony, putting in extra hours and doing my best but all he saw was someone who lost it and had time off. This illness has ruined my life and I am currently desperate for help. I can’t take living any more.

    Reply
    • Nicky   June 12, 2015 at 7:56 am

      I stand beside u in a life of chronic pain. Fibro, tmj, MS, daily headache, cerebral aneurysms. It’s ridiculous. I hav stopped being social. Even going to doc appoitmnts cause added pain. I do have prescribed pain meds but my life has grown to be small . Hang in there!

      Reply
    • karen   June 13, 2015 at 7:27 am

      DEAR HANNA UR COMMENTS MADE ME SO SAD. SAME THING HAPPENED TO ME. ALL THIS TIME DRs HAVE PUT ME ON STUFF I WAS TOTALLY ALLERGIC TO. LOOK UP ON GOGGLE “MAYO CLINIC” AND WRITE THEM A LETTER. NOT AN EMAIL IT WILL GET IGNORED! TELL THEM YOU NEED HELP. EXPLAIN IN DETAIL IT HELPS TO WRITE AND WHO KNOWS THERE ARE ANWERS WE JUST HAVE NOT FOUND THEM YET. HANG IN THERE. XXOOKK

      Reply
  190. karen   June 11, 2015 at 8:31 am

    I’ve told my doc my symptoms for years with no relief. The only thing I’ve found is a hot rice pack. I wrap my hands around it when the pain gets bad.

    Reply
  191. swirlingtheuniverse   June 10, 2015 at 11:04 am

    Food.

    Reply
  192. SHEILA   June 10, 2015 at 3:38 am

    I laid on bed with pain in my throat and no voice . I have been finally told after seeing various oligts that it’s my brain telling my throat it wants to work like this. So does mean that it’s ive too many blood vessels that’s causing me these problems

    Reply
  193. Paul Mc Corry   June 9, 2015 at 4:46 pm

    I hope its true and we can get relief from our pain..

    Reply
    • jan   June 10, 2015 at 3:32 pm

      Paul read wwwfibromyalgiatreatment.com help is there. Jan.

      Reply
  194. Annette   June 8, 2015 at 8:12 pm

    My question is:
    What caused our dna to make an extraordinary large amount of these fibrous veins??? Something affected us to cause our bodies to grow more than the norm.

    Reply
    • vebomb   June 9, 2015 at 12:16 pm

      Maybe it’s cellphone and laptop computer radiation causing a nerve growth response.

      Reply
      • Me-ow   June 9, 2015 at 2:56 pm

        I know people with Fibromyalgia who have never even touched a computer let alone a cell phone or a laptop. That doesn’t effect your DNA anywy, for crying out loud.

        Reply
      • karen   June 10, 2015 at 9:45 pm

        FIBRO FLIPPING MY ALGIA WAS AROUND WAAAAY B4 CELL PHONES AND COMPUTERS TRUST ME! SINCE THE BEGINNING OF TIME IT’S JUST THAT NO ONE REALEEEEEEEEEEEE HAS DONE RESEARCH. JUST SHOVE PILLS IN YOUR MOUTH SO U SHUT UP!

        Reply
  195. marie   June 8, 2015 at 3:30 pm

    I get pins and needles in my hands,they are week at the wrists.i don’t sleep.find it hard to cope most days.the pain is arrendous.

    Reply
  196. Christine   June 8, 2015 at 11:57 am

    I am so tired all the time, and my hands do have tender spots…but at least it is not my imaginery friend…

    Reply
  197. Anita   June 7, 2015 at 8:11 am

    I Get the exercise thing but I never sleep well unless I’m drugged.

    Reply
  198. Jackie   June 7, 2015 at 7:14 am

    I doubt this very much. I agree with Rebecca, although not the way it was presented. I, too, am tired of the excuses and the constant pain. Getting upset makes it worse for me. Most certainly has to due with the brain. I was put on anti-depressants before being diagnosed with fibromyalgia. I just want some answers.

    Reply
    • jan   June 10, 2015 at 3:43 pm

      Jackie go to wwwfibromyalgiatreatment.com. the protocol is working for me
      n others hope it worked for U 2. Jan.

      Reply
  199. Random Fibro   June 6, 2015 at 5:08 pm

    Hm, I dunno. This would tie into Chinese Medicine as a possible cure, but how do you reckon the correlation of this + Raynaud’s Syndrome plays out? My hands and feet are cold and numbish 90% of the time, leaving me to think that I have less blood vessels in my hands/feet. Just sayin’.

    Reply
  200. rebecca   June 6, 2015 at 9:48 am

    that’s bogus it has nothing too do with blood vessel in youre hands who came up with that crap, as a sufferer I know dang well it isn’t that! come up with a better excuse… it does have something too do with having viruss like Epstein barr, I do know that! it also has too have something too do with the cns so it is brain related duh!

    Reply
    • fellow sufferer   June 6, 2015 at 1:44 pm

      What a rude way to communicate your thoughts in a public forum. I didn’t understand a single point you were trying to make because of your insolent presentation. Obviously you are feeling poorly and I am sorry about that. But maybe you could try to have a tiny bit of respect for scientists who are trying to unlock the mysteries behind this disorder for the benefit of us all.

      Reply
      • karen   June 6, 2015 at 7:00 pm

        NY ADVISE CHILL! JUST SAYIN. DOCTORS MAKE PEOPLE FEEL LIKE THAT. ONCE AGAIN THEY CAN MAKE A DRIVERLESS CAR BUT CAN’T FIGURE OUT FIBRO OR R/A VENTING IS GOOD. U NO WHY CUZ HE/SHE HURTS. MOVING ON 🙂

        Reply
  201. trishvr   June 4, 2015 at 10:45 am

    Recent research shows a virus is more likely thought to be the villan responsible for fibromyalgia, probably of the herpes family.

    Reply
    • Angela   June 5, 2015 at 6:04 am

      That’s interesting. And sounds possible. Can you state your source m

      Reply
      • karen   June 5, 2015 at 7:24 am

        IF U R ASKING ABOUT THRYROID AND R/A YOU JUST HAVE TO GOOGLE IT. OTHERWISE I DON’T KNOW WHAT U R ASKING FOR BUUT I CAN FIND OUT. JUST MAKES ME MAD WHEN THIS PAGE SAYS “FINELY SOLVED” IT HAS SAID THAT FOR A FEW YEARS NOW. IT IS NOT SOLVED!; 🙂

        Reply
    • Amy   June 5, 2015 at 8:24 am

      just last week I went to see a new doctor and he they did the same thing, but it could potentially be a virus. currently just waiting on my medical file to be sent to him so he can review previous lab work and request new ones if needed. but the possibility is there.

      Reply
    • Lesley   June 11, 2015 at 2:53 am

      Hi trishvr. Please can you point me to the research showing the herpes virus may be responsible. I have fibromyalgia and currently have shingles.

      Reply
  202. Carla   June 3, 2015 at 12:16 am

    Wish they would find a reason why people get rheumatoid arthritis 🙁

    Reply
    • karen   June 3, 2015 at 11:56 pm

      DEAR CARLA: I HAVE DONE SO MUCH RESEARCH ON R/A IF U GOOGLE THYROID DISEASE AND RHEUMATOID ARTHRITIS YOU WILL BE MAD BUT ENLIGHTENED. THEY CAN BUILD A DRIVERLESS CAR BUT THEY CAN’T FIND A SOLUTION TO R/A 🙁 SO SAD. R/A IS AN AUTOIMMUNE DISEASE AND DOCTORS THAT SAY YOU HAVE R/A AND THEN DON’T CHECK YOUR THYROID ARE IDIOTS! THE DRUGS OUT NOW CAUSE BLINDNESS AND CANCER IN A LOT MORE PEOPLE THEN YOU KNOW. I HAVE HAD IT 21 YEARS. IF THEY HAD CHECKED MY THYROID I WOULD NOT BE IN SO MUCH PAIN. FIND A DOCTOR THAT ISN’T BEFUDDLED BY QUESTIONING. WE MUST BE OUR OWN ADVOCATES! HERE IS HOW YOU TYPE IN GOOGLE “THYROID DISEASE AND RHEUMATOID ARTHRITIS, THE CONNECTION” GOOD LUCK AND I WISH I HAD AN ANSWER. XXOOKAREN

      Reply
      • Matthew Adams   June 5, 2015 at 3:04 pm

        Good info. (P.S. All caps…hard to read)

        Reply
  203. Gary   June 1, 2015 at 11:28 pm

    The reason statin drugs are still ‘out there’ is because it is one of the biggest selling drugs for companies like Pfizer bringing in profits in the millions.
    In Australia, when questioned (reported on) by our ABC’s ‘Catalyst’ program over a year ago – there was a “put down” by our Heart Foundation who also succeeded in having it ‘pulled’ from the on-line catch-up programs. Interestingly, i found that one of
    the Heart Foundations biggest sponsors is Pfizer — go figure!

    Reply
  204. Jan   May 30, 2015 at 2:34 pm

    I have been taking Simvastatin for years and my legs are weak and are restless at night. I intend to talk to my internist about discontinuing it.

    Reply
  205. Joy   May 30, 2015 at 7:32 am

    Why don’t the researchers just continue with Dr. Paul St. Amands discoveries and research. Check out his book, “What your doctor may not tell you about Fibromyalgia”. He’s already done the research, for over 50 years in fact, and he’s helped himself and thousands of others. He works out of Marina Del Rey, California.

    Reply
    • jan   June 10, 2015 at 3:49 pm

      Joy couldn’t agree more, keep spreading the word. Jan.

      Reply
  206. Ben Snyder   May 30, 2015 at 7:27 am

    Both, my wife and I, had long periods of intense pain in our legs when I happened to read an article in our local newspaper cautioning people who were on various forms of Statin drugs widely used to control cholesterol. The article contained a warning of potential damage to muscles with sustained use of a Statin drug and that; further it urged the FDA to “…require that an FDA-approved medication guide be distributed to patients filling statin prescriptions, advising them to immediately stop using the drug if they experience muscle pain, tenderness, weakness or tiredness. Finally, drug companies should be required to send ‘Dear Doctor’ letters to all U.S. physicians about the risk of muscle damage due to statins.” To finish my story, after stopping the use of our latest Statin drug (Simvastatin), within 2 weeks our pains began to reduce in intensity and within a year our legs were pain free. My point being that perhaps the pain that people report having may not be the result of fibromyalgia but, if they are users of Statin drugs, it could be the drugs that’s the cause.

    Reply
    • Norma   May 30, 2015 at 2:55 pm

      Hi I believe 100% about the danger os statins I can NOT tolerate any form any shape of thia poison suppose medixine to help you onw way amd and killed you in amother way so I don’t know why it is still out there It caused me pain pain and more pain in my bones also my liver function went high.
      LOOK THE WHOLE PICTURE BEFORE YOU GET LABEL BY A PERSON THAT IS CALLED A DOCTOR AND TOOK MAY BE 5 MINUTES TO GIVE YOU A DIGNOST they don’t care. I started studying every detail of things that I do and things I don’t do and believe me it make a difference.
      Best wishes to all!!

      Reply
    • rocksmartRoxy   June 4, 2015 at 7:26 pm

      I have been saying this same thing for quite some time after having gone through near excrutiating muscle pain throughout my body caused by statins.

      Reply
      • karen   June 5, 2015 at 7:30 am

        HI ROXY :SOMETIMES HIGH FAT IN THE BODY IS JUST THAT-GENEIC AND STATINS OR NOT IF LETS SAY UR DAD HAD HIGH CHOLESTEROL- U MAY TOO. ESPECIALLY IN WOMEN NOT SUCH A GOOD DRUG. READ ABOUT IT EVEN DOCTORS DON’T KNOW ENOUGH THEY JUST GIVE U A PILL & SAY SEE YA NEXT TIME! WORKS FOR SOME-NOT FOR MOST. I THINK WHEN EVERYONE ON THIS SITE COMMENT ON SOMETHING THEY SHOULD REFER TO AT LEAST YOUR COMMENT 🙂 OR SOMETHING IN THE Q & A SO US OLD FOLKS CAN REMEMBER – LOL 🙂

        Reply
  207. James Lightfoot   May 30, 2015 at 5:08 am

    It seems like a stretch, but I’m open to anything that could stop the pain. 20 years of unending agony takes a toll on body, mind and spirit.

    Reply
  208. Dan Stefan   May 30, 2015 at 2:28 am

    I never before came across so much nonsense!

    Reply
  209. Brenda   May 29, 2015 at 4:34 am

    Not sure if I have fibro or not. All I know is that my arms and legs hurt so bad I can’t walk or even dress myself. My white blood cells are extremely high during a flair up and I am treated like a drug addict even though I don’t even have pain meds. My heart goes out to anyone that is suffering with this!

    Reply
  210. charkee   May 28, 2015 at 7:15 pm

    Since the beginning of scientific inquiry there has not been found one single cure for one single non-infectious or dietary disease. They can treat the symptoms or burn or cut on you, but there never is a true cure. The reason is quite clear, science is in total denial that our attitudes and emotions effect on our health.

    Being an acupuncturist the “head acupoints” through out the body show tenderness and swelling, just exactly as the diagram above shows. But also all the fibro patients I have worked with have a common attitude of being stubborn and refuse to listen to reason. They tend to be hyper-sensitive to the slightest slight, even if none are intended. They also tend to be professional victims blaming others for whatever is wrong in their lives.

    And no acupuncture does not cure it either, but it does temporarily relieve the pain. For all of you fibro sufferers that want to send me hate mail, I rest my case. You need a personality makeover to heal, there is no other way, unless you want to take the risk and have nerves cut.

    Reply
    • Stephanie   May 29, 2015 at 1:33 am

      Wow, that’s incredible that you can categorize all fibro patients that way. I have an incredibly positive outlook on life and yet somehow that hasn’t affected my pain level. I choose to take the very minimal amount of narcotics as possible and only on days when flare ups are so bad I can’t even stand up. But I still manage to laugh and play games with my family.
      Something you may want to consider when treating these patients is that they have been trying to deal with widespread whole body pain probably for years before they were ever even diagnosed. And then they were told the debilitating news that there is no cure and the prognosis is to learn to live with the pain. It is disheartening and can break down someone with even a positive attitude and outlook on life. It takes time for people to learn to live with this. I used to e able to hug and snuggle my sweet little boy as much and he could stand and when he would run and jump on me we would laugh about how he tackled me. Now he has learned that he has to ask me how hard a hug he can give me. Because if he is too rough on me the pain will last for hours. How sad that my sweet 6 year old can’t show me how he feels because it hurts me when he hugs me too tight?!! There are huge adjustments that have to be made to life and that can be hard and depressing and some people cope in different ways than others or you.
      Might I suggest that you learn a bit more about the struggles others deal with before you judge and spew your negative thoughtless energy around. It has been my expieriences that when people go places for treatment they are at a higher stress level, and nearly always only talk about their ailments because the treating Dr or physician or acupuncturist asks them…”how are you feeling today?” You won’t see people at their best because they aren’t there to see you because they aren’t fine, otherwise they would have no reason to come to your office in the first place.

      Reply
    • Carolyn   June 1, 2015 at 11:36 am

      Suck it, charkee…hoping GOD delivers a double dose to you.

      Reply
    • jan   June 1, 2015 at 3:10 pm

      chalkee, I’m sorry but you are so wrong about this topic! Better to butt out.
      Read wwwfibromyalgiatreatment.com SUFFERERS go to this site it works. Jan.

      Reply
  211. Linda Hitsman   May 28, 2015 at 6:46 pm

    Yes, Terry. My hands are affected worse than the rest of me. I think this makes all the sense in the world.

    Reply
  212. terry   May 28, 2015 at 2:15 pm

    annie, did you even read the article? “hand story doesn’t even match up”??? That is just plain ignorance. I could give you plenty of examples of how and why that makes no sense, but I’ll just quote one line from the article instead; “…but now they’ve discovered that there is a direct link between these nerves and the widespread body pain that Fibromyalgia sufferers feel.”
    You may regard this article as false hope, but please spare and not dash those that would prefer to have hope!!!!!!

    Reply
  213. Shane Kennedy   May 28, 2015 at 7:04 am

    @annie: Many of our sensory nerves are incorrectly mapped by the brain. Add to this,sciatica, which often tells our brain that there is pain in the buttock, knee, heel or foot, when the sensation is actually caused by spinal damage. Most of the few places which are correctly mapped, is in our skin, and pain in our muscles is very likely to be a symptom rather than the disease. A build up of lactic acid is very plausable, though also just a symptom of the disease.

    Reply
    • charkee   May 28, 2015 at 7:21 pm

      Sciatica is not “caused” by spinal damage. It is a person’s attitude that causes it. I cure it all the time with my patients, No needles, drugs or therapies. I just talk to them and find out what their unfulfilled goals are. Once found the relief is instant. Fibro is more difficult because the patients also have an “attitude” of stubborn refusal to listen, they play the professional victim game and are offended at the slightest provocation even if none is intended. Fibro patients require a personality makeover before they can be healed.

      Reply
      • Susan   May 29, 2015 at 1:34 am

        You have no idea what you are taking about. I woke up one morning like I had the most incredible flu virus, body aches, migraine etc. etc…… & it never went away. It was no “attitude” which brought on this pain.

        Reply
        • Susan   May 29, 2015 at 1:36 am

          **talking about.

          Reply
  214. Pam Persons   May 27, 2015 at 9:13 pm

    I had it for over 40 yrs. When I went in to have my partial knee surgery the surgeon had to clip the main nerve that is the main problem with Fybro. The Main Nerve runs through your back and crosses over your knee. Since my surgeon clipped that Nerve I do not have any Symptoms of Fybro. Thanks Dr.

    Reply
    • Susan   May 29, 2015 at 1:40 am

      What about you upper body? If you entire body is not effected then you don’t have Fibro. There is no main nerve which is responsible for Fibro. You were misdiagnosed.

      Reply
  215. annie   May 27, 2015 at 4:36 pm

    im not buying this article at all. fibro means tissue, myalgia means pain. it is a hyper sensitivity of the connective tissues in our muscles and joints. so this hand story doesnt even match up. im saying this is a false hope story.

    Reply
  216. Diane Dykstra   May 27, 2015 at 6:27 am

    Why haven’t we heard about this before? And when should we expect a cure?

    Reply
  217. MaryLynn   May 26, 2015 at 8:34 pm

    This sounds pretty dumb to me. I work in the medical field and have never heard of this. Non of my doctors have heard of this either.

    Reply
  218. kathleencharles   May 26, 2015 at 6:04 am

    This article is two years old. ???

    Reply
    • Les   June 18, 2015 at 10:07 pm

      Yes, it is AT LEAST two years old and sadly, it is a rewrite.

      Reply
  219. Rene   May 25, 2015 at 5:51 pm

    I have had many many surgeries on my hands because my major pain was arms and hands. I have had 30+ surgeries total on my body because doctors just did not know anything. I hope it is truly in the hand, I have some skin left that has not been stitched on. Ha ha. I decided not to take all the pain meds because I had a doctor say as he walked in the exam room…”I am not giving you pain meds”. I never asked a doctor for pain meds. I have gotten them but never asked. The stigma with fibro needs to stop.

    Reply
  220. Jean Curry   May 25, 2015 at 4:51 pm

    I have severe pain in my hands and had lots of treatment to try cure what the pain I suffer in my hands. The skin splits on my hands like knife wounds from doing little tasks. I spend days using steroid creams to try and heal the wounds and sometimes end up having antibiotics as well as the wounds can become infected. I have had sore hands ever since the fibromyalgia started. I want to get tested now for this condition as docs in Dublin say they can do no more for my hands

    Reply
  221. jacky williamson   May 25, 2015 at 3:08 pm

    All these years I’ve been suffering and not only have I had family and friends question wether I’m a hypochondriac but also doctors looking at me like I’m a loony now they can see I am in pain and its flipping real ………

    Reply
    • jan   June 10, 2015 at 3:54 pm

      Yes the pain is real!!!! For an effective treatment go to.
      wwwfibromyalgiatreatment.com jan

      Reply
  222. Rosemary E.Gault   May 25, 2015 at 2:56 pm

    I soooo wish !!!

    Reply
  223. Flora Boyd.   May 25, 2015 at 8:23 am

    Could there also be a connection for Polimyalagia.???. Please do some research on this

    Reply
  224. Hallie Thomas   May 24, 2015 at 10:58 pm

    Interesting reading. I suppose different treatments works differently on Fibro sufferers. For them the pain is REAL

    Reply
  225. Janet Purvis   May 24, 2015 at 1:59 pm

    Upper Cervical Specific Chiropractic may be the answer for some people and the Specific adjustments sometimes have to be experienced to understand.

    Reply
  226. Karie   May 24, 2015 at 11:18 am

    I was diagnosed with fibromyalgia and chronic fatigue in 1995. I began the guaifenesin protocol developed by Dr. St Armand and now do not have chronic fatigue and rarely have fibro symptoms. I don’t see any mention of his protocol listed. It has worked for thousands of patients.

    Reply
    • deb   May 24, 2015 at 6:54 pm

      Its just my humble opinion but from the solid research, not anecdotal reports, this is a placebo cure. Hey, if it benefits someone, great, but the double blind studies show it does nothing. In fact, they did not even want to do the studies as they felt the claim by St. Armand were not to even be been taken serious that this cough syrup would cure CFS and fibro.

      Reply
      • Janet Purvis   May 24, 2015 at 8:26 pm

        If you can find an “upper cervical SPECIFIC” chiropractor, you will find out the difference. No meds will cure fibro….another “humble opinion” from personal experience. Placebo cure is not what you want, you want to get to the cause.

        Reply
  227. Ann   May 23, 2015 at 9:29 pm

    50 000 units of Vit D once a week seems to keep my pain away. Still have some sleep issues, but it’s less than before.

    Reply
  228. Tom Wheeler   May 23, 2015 at 9:17 pm

    I am not to sure about this. I have had fibro since 1987, from an accident troma is what I was told. I don’t think that gave me extra vains in my hands.

    Reply
  229. deb   May 23, 2015 at 1:09 pm

    Well I will be reserving my judgement until there is a lot more research done on this. There is so much out there that just isn’t true, so much that is down right blalant ploys to buy this cure and that vitamin and I will not be spending one more penny till I see some legitimate research. I have seen people spend thousands of dollars on snake oil and it makes me shake my head. Even if had a placebo effect I wouldn’t be so upset but so much of it is harmful, not helpful so this gal will wait and watch!!!

    Reply
  230. Sean   May 23, 2015 at 2:07 am

    there are certainly ways to alleviate the soreness – eat foods that don’t cause inflammation – no wheat, grains and cut the carbs and seed oils. Worked a treat for my partner 🙂

    Reply
  231. Jayne Millington   May 22, 2015 at 11:50 pm

    Oh my. So many responses!!!! I could rant a full reem about this but all I really desire is a cure. This paper was doing the rounds 2 years ago but where is the miracle cure?
    If anyone of any scientific standing bothers to read what sufferers really feel contact me and I will whole heartedly most willingly participate in clinical trials (so long as it doesn’t involve yet another cocktail of useless drugs)

    Reply
  232. Bill   May 22, 2015 at 5:34 am

    Sorry!
    According to the article it will only benefit 5m Americans. So, if you’re not a Yank, just give up on any hope you may have harboured!

    By the way: an AWFUL lot of you should really learn how to spell!

    Reply
  233. Lucinda Bredell   May 22, 2015 at 5:31 am

    I would like to know how many patients were tested to confirm this theory? I agree that FM is not “all in the mind” as many Dr’s say. It seems that this debilitating disease is taking over the world. Almost daily I hear of new people being diagnosed with FM. If this theory of the excess blood vessels and nerve fibers are true, is there anything that can be done or spesific meds that can be taken to bring satisfactory relieve? I am tired of Dr’s prescribing many different drugs and many different combinations of drugs that makes you feel worse and like a zombie most of the times and it is costly. I had to throw away many costly drugs because it caused side effects. I also had many procedures done to try and alleviate pain but that only worsened the pain. The problem with FM is that there are so many different symptoms. I struggle with chronic pain, migraines and headaches, IBS, chronic fatigue, depression and the worst of it all is the severe spasmic muscles. I had many physio sessions with no relieve. I don’t even want to touch the topic of exercise as many sufferers know that it only aggrevates the symptoms. To conclude I think that many sufferers would love to know the exact cause of this disease and have some hope of a cure.

    Reply
    • Katherine Patrice   May 22, 2015 at 5:53 am

      Read excitotoxyns, by Russell Blaylock and The Hundred Year Lie by Randall Fitzgerald.

      Reply
  234. Chris   May 22, 2015 at 3:13 am

    The article is written very much like it’s a definite answer. It does seem to me to be the results of one small round of research. I for one hope it is indeed the answer, as I would love to live a “normal” life, but I can’t help but feel apprehensive that the article may just get people’s hopes up on the chance that further studies show it is only in certain cases of FM.

    Reply
  235. Jen alsford   May 22, 2015 at 1:22 am

    Wonderful news to us sufferers. Hope we get the rite help needed soon.

    Reply
  236. ilze   May 22, 2015 at 12:23 am

    I am so glad!!!! I wish and hope that there wil soon be a treatment or something for us. I am going bad of painful muscles and headaches. I feel like i can not go on like this anymore!!!! I hope the cure can help us all!!!!!

    Reply
  237. Linda   May 21, 2015 at 5:18 pm

    I’m convinced that my fibro was from mono – a mega virus that compromised my immune system. My hands are fine. I’m a dental hygienist & still able to work @ 67. But the fact that someone is doing research on the cause is a definite positive.

    Reply
  238. Chris Shepherd   May 21, 2015 at 2:51 pm

    There doesn’t seem to be much in the way of clinical trials? I would hope that more in depth studies would be undertaken. It was always believed that the condition was related to the immune system.

    Reply
  239. Valerie Scofield   May 21, 2015 at 10:03 am

    Mel, looking at the Internet, they naltrexone is for getting off Alcohol? Didn’t see anything about Fibromyalgia.

    Reply
  240. Wanda White   May 21, 2015 at 9:34 am

    I am skeptical still. Doubt this is actually the cause. It may contribute. Will probably never really know the case or have a cure. That would be too good to be true! What is arnica?y

    Reply
  241. sherrie   May 19, 2015 at 5:51 pm

    The cold weather make since….. During cold blood vessels constrict. So logically the AV shunts are sensitive even to the constricted blood flow or friction against the blood vessels walls….

    Reply
  242. Pam McNally   May 19, 2015 at 6:45 am

    I have been diagnosed with fibromyalgia for many years on top of other physical problems do to 5 car accidents. I will share a couple things with you guys that helped me personally, Epsom salt bath, supplements such as celery seed extract, tumeric, ginger, magnesium, b-12 w/ folic acid and cherry. I also make arnica muscle sticks which helps with the inflamation and muscle spasms. I hope this helps all of you find some type of temporary relief. People who don’t suffer from fibromyalgia have no idea of the pain we go through. God bless

    Reply
    • Jodi Householter   May 19, 2015 at 8:59 am

      I have arnica patched I have ordered. Need a place to get them they help

      Reply
      • Pam McNally   May 19, 2015 at 1:23 pm

        I haven’t found arnica patches, but arnica muscle sticks can be ordered at nanasnaturals.net.

        Reply
    • Sabrina Gallo   May 19, 2015 at 11:51 am

      What is arnica patches

      Reply
      • Pam McNally   May 19, 2015 at 1:24 pm

        Arnica Muscle sticks can be ordered at nanasnaturals.net.

        Reply
    • mel   May 21, 2015 at 1:01 am

      Ask your doc re low dose naltrexone (LDN) .
      It’s changed my life for the better !
      Good luck n god bless 🙂

      Reply
      • judy hinz   May 21, 2015 at 7:23 am

        Do you take that by injection or pills? My holistic doc wants to give me this for Lymn diease.They are so many people that have Lymn are diagnosed as fibomyalgia. I was also but knew it was more than that .I also suffer from Toxic Mold.

        Reply
  243. Poppy   May 19, 2015 at 5:58 am

    I was ‘diagnosed’ with FM some 18 years ago. It’s a word that basically has become an easy diagnosis in that it is cheap for the NHS in the UK to throw this at you with their limited budget. I have since found out I have an underactive thyroid, severe B12 deficiency, and adrenal insufficiency. All this caused by antibodies attacking my body. Took some pushing for this diagnosis and lots of tests but last year, I wasn’t going to accept this ridiculous fibromyalgia word. I showed borderline on most tests after asking for print outs of results, and insisted further tests were carried out.
    My question to all those who have been diagnosed: IF your doctor told you your child had cancer WITHOUT doing full blood work/scans etc, would you accept this diagnosis and allow chemo and radiation to go ahead? No?! You would want PROOF that your child had cancer. Same with this. ‘We can’t prove or disprove.’ Why?….because it DOESN’T EXIST. You ARE ILL for goodness sake. You need the right diagnosis AND medication to make you well again. 16 years I’ve put up with this and all along, it’s been actual ailments, EASILY rectified with medication, WITHOUT being drugged up on amitriptylene.
    Please go back to your doctor and insist on further testing. You deserve to be well.

    Reply
  244. Karen   May 12, 2015 at 6:58 am

    I think this cause is just another bunch of wind. Probably some pharmacy company out there with a new pill.

    Reply
  245. maria   May 11, 2015 at 8:14 am

    i have fibromyalga i have had it 7 years im 32 years old i can not play with my children i cant get in or out of the bath on my own i cant cut my own food i cant walk for more then a few min because of the server pain i can sleep a whole night as i have to turn some days i wish i was dead and if my kids wasnt here i would be . i cant have sex any more because of the pain and people think this is in the brain really you think i want to be like this 32 years old and cant do any think for myself and all the comments it cant be that bad i beg to differ i had 6 children with no pain releaf and im telling you i would rather be dead then live like this every day

    Reply
    • Elaine   May 11, 2015 at 11:07 am

      As a Fellow sufferer I sympathise wholeheartedly with you. Although my symptoms are not nearly as severe as yours I know exactly what you mean and each day seems to be worse than the day before. I have had this for some years without the official diagnosis and being told it was pretty much all in the mind. I feel glad somebody knows how I feel and understands the pain involved with this complaint. Hopefully a cure will be found soon.

      Reply
      • Annette   May 12, 2015 at 5:57 am

        Hi have had this now for 12 or more years , the pain is something that you can’t put in to words don’t let anyone tell you it’s in your head this pain is very real as we are the ones that live with it some days I can’t get up or even walk or sit, but I make my self get up & just try it’s up to you to try to live or let it rule you its one of the hardest thing I have to some day ,but we need to live I whish that it would be nice just to get up with no pain but I live in hope .I live up north they have something up here that is called the p m u pani management unit @ the hospital it is one of the best place to be seen they doc that get what I say about pain which has helped me lots just remember to live your life as much as you can don’t let the pain rule you be strong with it

        Reply
    • Liz   May 19, 2015 at 1:17 am

      Couldn’t of put it better. If we was believed we wouldn’t be so I’ll either. Let medical profession feel our pain. They wouldn’t wait 7 months for the next app for the pain clinic. To be given 1 poxy injection. When you need 4 or 5 waiste of effort. Not worth more than 100 every 7 months

      Reply
    • Mary young   May 19, 2015 at 6:02 am

      Hi Maria,my heart goes out to you I have had this for 15 years I am 63 now it stole the life I loved my Husband betrayed me because he missed our old life too it is really hard for everyone,your children love very much just do a little with them and tell them you love them very much, My youngest son is my rock he helps and motivate me when I feel down. Take Care

      Reply
  246. Sue   May 11, 2015 at 8:03 am

    This article is from 2013!

    Reply
  247. Gez   May 10, 2015 at 12:48 pm

    Good grief even as physical differences are found in Fibromyalgia sufferers people are queueing up to reiterate to them that their pain is virtually psychosymatic.

    Reply
  248. lisa   May 10, 2015 at 11:01 am

    My partner suffers with fibromyalga and our doctors made him feel like it was all in his mind until my partner finally spoke out and said there’s no way anybody is going to get up and say I want to be in pain like Iam in all the time . He carnt even hold his granddaughter for more than 5 mins he is 38 years old carnt play with his children his life is a total mess he’s on 6 different types of pain killers and still no release from pain so please don’t make anyone make you think it’s all in your minds because it’s not .

    Reply
  249. Elizabeth   May 9, 2015 at 11:55 am

    Fingers crossed that a cure can be found. The pain I have now is changing me from a fun happy person to an introvert as socialising is out of the question. I have become increasingly immobile and spend time on my own as I don’t want to burden family with my problems x

    Reply
    • Christine Black   May 9, 2015 at 4:49 pm

      Me too Elizabeth…people exhaust me

      Reply
    • Jackie   May 10, 2015 at 12:24 am

      it’s good news, I have fibro too, it’s not nice you up one minute then down, People don’t understand, take care of yourself regards hackie

      Reply
  250. Terence Frantz   May 7, 2015 at 6:37 am

    I HAVE TRYED TO SEND A MESSAGE ABOUT THE HORRIBLE PAIN I HAVE DELT WITH GOING ON THIRTY YEARS ULNAR NERVE RIPPED FROM MY SPINAL CORD TO MY RIGHT ARM THIS WINTER HAS BEEN THE MOST HORRIBLE I EVER HAD FOR PAIN MY WHOLE LIVE HAS BEEN DISTROYED BECAUSE OF THE PAIN WOULD THIS HELP ME.

    Reply
  251. Avi   May 4, 2015 at 1:35 am

    Fibromyalgia is one of many symptoms of Mind Body Syndrome or TMS, as described by Dr. John Sarno. All of these “discoveries” about the physical source for the pain do not negate the fact that the brain controls the physical. We can not feel without the brain. This does not mean that the pain is “all in the mind”! They are real physical sensations. However, the cause is not due to some physical deficiency but due to the brain choosing to send pain signals, usually for psychological reasons.

    Reply
    • Yolandè Bernice Solomons   May 5, 2015 at 1:01 pm

      You are absolutely right. Just finished a year in Pain Neuroscience. There is no singular cause to chronic pain syndromes like Fibromyalgia.

      Reply
    • Jamie   May 6, 2015 at 9:54 am

      This could be said for any pain, the brain controls it all. If I cut my hand, the nerves tell the brain and the brain makes you “feel” the pain.

      Reply
  252. Raymond G. Whitham   May 3, 2015 at 11:23 pm

    “They then took skin samples from the hands of Fibromyalgia patients and were surprised to find an extremely excessive amount of a particular type of nerve fiber called arteriole-venule (AV) shunt.
    “…we had evidences that the blood vessel endings could also contribute to our conscious sense of touch”

    What? An arteriole-venule shunt is an abnormal connection between a vein and an artery which has absolutely nothing to do with nerves. There are no “blood vessel endings”. Blood vessels are in a continuous circuit to distribute blood – no “endings”.

    Reply
  253. L.R   May 3, 2015 at 11:46 am

    I am really happy they did progress in fibromyalgia research. As soon as we understand the biological underpinning of a disease we are happy it is not a psychological mistery anymore and call it a “real disorder”. This is stigmatising towards psychiatric disorders. We should take everyone serious if he has pain no matter if we allready undersood the biological underpinnings or not. I am a psychologist and would never tell my patients they are crazy if they suffer pain which is not (yet) explainable by biological causes, but trying to find ways to cope with the pain. I am shure in some years we will have more understanding of biological underpinnings of manys psychiatric disorders. And then we wont consider these disorders as psychiatric disorders anymore but will still keep stigmatizing those people suffering of disoreders where we have not found thebiological underpinnings yet.

    Reply
  254. jackie   May 3, 2015 at 9:04 am

    Jackie Waite 48 iv been diagnosed with Fibromyalgia my Arthirities Dr has put me on Lyrica and now taking 300 ml of Lyrca twice a day. Find it does help with pain. I take Cymboltan. too 60 mg as well as mobic, I take Calcium and Magnesium to as wel as Mobic. Last week hit a bad week. I hate the doggie brain the most I am so excited that be a cure.

    Reply
  255. Roberta Morrison   May 3, 2015 at 12:30 am

    Glad to know they are making progress. Sure hope they’ll come up with a treatment that Medicaid will pay for, unlike so many of the treatments that used to work for me, that are now disallowed… Thanks a lot Obama.

    Reply
  256. Nicole D.   May 1, 2015 at 6:46 am

    I’m 68 y.o. and I can’t remember any days without pain. So I think I’ve developed a way of life and coped with pain.Now I have better days then others. I still teach full time and love my profession. But lately I had acute pain in my face and head due to a problem in my
    cerebral vertebrae and my doctor prescribed some neurontin (pregabalin 50mg in the morning and 75mg at night). We had to work at the dosage and with the side effects. It took time but finally we solved that part of the pain. I missed one or two pills and believe me I’ve been fast aware that this little one was in control of the pain. That problem was solved but I still struggle with the rest of my body’s pain. I still have overwork muscles syndrome. I sleep with pain killers because I’m a workaholic and do not want to bother people around with my state. Voltaren became my best friend. But I know the side effects of it. When you are in pain you do not ask yourself any question about it.Life goes on and it is still beautiful. I keep myself informed of the new discovery in that field…. maybe something will come out before my end of my venture on this earth.

    Reply
    • Jan   May 3, 2015 at 8:38 pm

      For real help go to wwwfibromyalgiatreatment.com I am now 4yrs into the protocol and its working really well. Jan

      Reply
  257. sonya stevens   May 1, 2015 at 5:16 am

    lyrica is a nerve med. It does work for fybro to a point. The weight gain and foggy days stink though. I have tried it it helps with the pain but gave me thrush everytime! With the side effects were not worth it for me. but it is def. worth a try as many people dont have those kinds of side effects!

    Reply
  258. Andrew Albrecht   April 30, 2015 at 10:03 am

    Not sure you have the right title for this work.

    Fibromyalgia Has been solved !

    with comments like
    Could contribute
    Thought to be due to
    could be a source
    the discovery may lead to

    To solve the mystery the researchers zeroed in the skin from the hand of one patient ,it did not say how many other patients were tested.

    With what I have read and how long these things take to come to fruition,I feel this is a little too early to be accepted .

    Reply
  259. Andy MacCallum   April 30, 2015 at 1:30 am

    This original post was made on June 20th 2013……so i think this “latest cure” is a dead duck or we wouldn’t all still be suffering today as we are.

    Reply
  260. Shelia Ann Smallwood   April 29, 2015 at 7:48 pm

    My dr prescribed a medicine that is given to fibromyalgia patients for the severe migraines that I have been having. He wanted me to try it to see if it would help the nerves and muscles in my neck, I also have spinal stenosis in my neck. I just wondered if anyone had ever heard of or taken “Lyrica” as a migraine medicine.

    Reply
  261. Josee Meunier   April 29, 2015 at 8:53 am

    I have suffered with this illness for over 30 years now. I have gone through so many doctors and most of them would prescribe Valium for my instability, they said over and over it was all in my head.It , took me years to learn how to cope with this disease. I have learned to pace myself so I can do for myself at every level. I finally have a good doctor who has given me a life with a cocktail of medications that allowed me to go back to work after 19 years. I worked to mornings a week and it has brought me a quality of life to a certain degree. It has been a long battle and I am so happy that it is finally understood and there is now hope for a cure. To all the people whom are suffering from this I say hang in there!!!

    Reply
    • Ruth   April 29, 2015 at 11:29 am

      Hello. Would u be willing to share what meds R in the “cocktail” that has helped you? Maybe it could help others.

      Reply
    • Rosario Rivera   April 29, 2015 at 5:25 pm

      Tell me what medicine u taken I will talk to my Dr to see if I can take ….god bless

      Reply
      • Ruth   April 30, 2015 at 11:54 am

        I am on day 3 of Savella. Nothing positive to report yet. Bit of nausea and GI upset. Also more weepy than usual..

        Reply
  262. Mavis   April 29, 2015 at 12:09 am

    I completely understand why people feel put down by doctors. Over the past three months I have been diagnosed with vulvular cancer and have had two surgeries since that time. The docs couldn’t diagnose it because they were thinking it was all in my head! I started visiting doctors in 1997 – ended up firing my family doctor because he would actually argue with me and tell me that there was nothing wrong with me. I told him at one point that I had lived inside a my body for over 50 years and I k ow when there is something out of the ordinary going on. He still would not listen to me! For those of us who have diseases that cannot be seen from the outside life is very hard – we have the anxiety of the pain itself and the stress of people who are doubting what we are saying! I feel that I am very lucky to be alive – the doctors sure didn’t help until now! Now I have the best surgeon God has put on this earth!!

    Reply
  263. Linda Albright   April 28, 2015 at 9:52 pm

    Lord….Please tell me that help is on the way!!

    Reply
    • Jan   May 3, 2015 at 8:53 pm

      Linda I have found that the treatment on web site: wwwfibromyalgiatreatment.com has worked for me God willing it will work for you too, and anyone else who wants to try it. Jan. LITL

      Reply
  264. janet alexander April 28,2015 7:53PM   April 28, 2015 at 7:55 pm

    I hope this is true. I have had this since 1957 but my muscles in arms and legs the worst.

    Reply
  265. Gail Wright   April 28, 2015 at 7:53 pm

    My hands always bother me– this is great news- my heels have always bothered me also… wonder if there will be a simple easy to treatment without drugs to harm other parts of the body. Lots of time, I warm up my hands and feet and feel better.

    Reply
  266. Margaret Dodgson   April 28, 2015 at 6:37 pm

    I have had ( Fibromyalgia ) now for over 18 years, and I wish they would come up with a cure ! It has been so painful and continues to get worse as time goes on. Nothing seems to help and more in did not start in my hands. Are these for sure facts?

    Reply
  267. jamiefew74   April 28, 2015 at 1:32 pm

    I would like to see more on this. Where are they at with a cure? My pain didn’t start in my hands, it was in my lower spine. My hands are fine.

    Reply
    • debra   May 11, 2015 at 4:22 pm

      Mine started in my spine too when i hear it starts in the hands i think my hands are fine its getting harder to have a doctor each month to give you your meds alot of doctors now willnt take my ins and i had my last pain med doctor appt the first of may and i took morphine and oxys and if i want to see a doctor its going to cost me 300 a month so i have to go cold turkey on my meds now

      Reply
  268. jackie   April 28, 2015 at 10:36 am

    This is most interesting. Really hope they find a cure..

    Reply
  269. peter roche   April 28, 2015 at 10:23 am

    Hi after suffering Fibromyalgia for just over a year now I am delighted to know that this could be a cure for the future. I was in so much pain at the beginning of my illness that I was sure I had a stroke at first due to not having the ability and strength to move my upper body and some pain in the legs with my hands closing in on themselves also not able to open a shower or turn on the tap. When I first visited my Doctor I was surprised to be told that I was 1 the wrong age (57yrs) and wrong sex(male) and if I had been a women it would possible have been detected???? I was put on medication of Steroids along with tablets for my bones and also a tablet to take each day for my stomach and another tablet once a week for the stomach to counteract. I have had so many blood test in the last year and visits to hospitals it was very scary. I am now reducing the tablets 6 weekly and I hope to be free in the coming months of the medication if not I am happy to continue to take the table medication for life but hoping this news will stop al that in the future
    Look to the future guys .

    Reply
  270. Gerard Wolf   April 28, 2015 at 8:10 am

    Nothing in this article provides a protocol for treatment. It only indicates causes, not remedies

    Reply
    • Andy MacCallum   April 30, 2015 at 1:36 am

      plus its 2 years since posted…looks like nothing came of this or we would have known by now

      Reply
  271. Judy Johnson   April 27, 2015 at 9:28 pm

    I am s happy they are finally finding out what fibro is and how o treat it……

    Reply
  272. Ruth   April 27, 2015 at 9:00 pm

    Any luck, good or bad, with Savella ? Afraid of new meds.

    Reply
  273. Eva van Loon   April 27, 2015 at 2:59 pm

    The best we can say thus far about Rice’s findings is that these vascular anomalies are a physical feature of FM that may be common among patients.
    While we’re happy to see proof of any physical sign of FM, it’s a two-edged sword. Imagine you have a car accident, a rear-ender, and you develop FM (This is common, as I know from my law practice.).
    Now imagine you are tested for the presence of these venules in the hand.
    If you don’t have them, you’ll have a worse time proving you have FM than patients do today (and that’s bad enough, believe me).
    If you do have them, what will the judge think about your claim that a bump in the rear created these unusual vessels in your hands? Your lawyer will pull out a lot of hair, trying to find an expert who will vouch for this!
    Proving an accident triggered FM has always been a nightmare. Misunderstanding Rice’s findings could make that a lot worse.

    Reply
  274. L mahaney   April 27, 2015 at 11:43 am

    Fibromyalgia is a condition of the central nervous system.Period.

    Reply
  275. Eva van Loon   April 26, 2015 at 6:43 pm

    What’s the cure? Surgery? Yet more poisonous drugs?
    How does this explain why 4 out of 5 FMS patients are female?
    Why don’t people with these weird hands develop FMS earlier in life?
    How does excess blood flow in the hands translate into “hyperactivity in the brain” (first time I’ve heard of that FMS “symptom”!)?
    Does this mean that if your hands aren’t sore, you aren’t a fibromyalgic?
    What about the zillion other symptoms that fibromyalgics reliably complain of–how does “mismanaged blood flow” cause those?
    I’ve been dagnosed with FM since 1992 and completed a study of 100 women with FM that was postered at the world FM convention but I need to know a lot more before this makes any sense. This has to be one of the worst-written quasi-medical articles ever.

    Reply
    • angelsong   April 26, 2015 at 8:20 pm

      Well said Eva. There are many unanswered questions in this article. I hope someone reads your informative and intelligent questions and is able to give some of the details you outlined. I hadn’t thought to ask any of the things you asked and am glad on behalf of myself and others like me that you did.

      Reply
      • Eva van Loon   April 27, 2015 at 12:27 am

        Thanks for your comments and the Albany article, which is far more informative. It’s great that FM patients can finally feel vindicated; it’s amazing that it took 25 years to prove the disorder is real.

        (I am not calling FM a disease because I am skeptical that it is. My experience tells me it’s a set of symptoms that is becoming more and more common and is linked to endocrine disruption. That avenue can explain a lot of the observations of the past about FM, such as gender skew, variability of symptoms, and so on.)

        The next question is, how will this observation about the shunts in FM hands help heal the patient?

        Reply
    • halcyon   April 27, 2015 at 10:19 am

      ‘hyperactivity of the brain” I read as neurological overstimulation… which can happen with ANY chronic pain, whatever the cause. Whether the root cause of fibromyagia is in the brain or elsewhere, it is the brain that processes the sensation, and so the constant stimulation registers in and affects the brain. (whether that’s what the writer meant, I can’t say, but it’s what I got out of it.)

      Problems that have to do with circulation are OFTEN more prevalent among women, because our circulation is very different from men’s…. we are more prone to cold hands, likely for the same reason…. our circulation is core-centered, for the biological purpose of keeping babies alive. (I wonder if there is a link between fibromyalgia and blood pressure…. are people with HIGH BP less prone to it?)

      I was hoping that the article actually had some solutions, though understanding is at least a start. frustrating that it’s not MORE….

      Reply
  276. ida   April 26, 2015 at 4:47 pm

    So relieved to there maybe a cure,i have suffered with this for at least 20 yrs or more my friend and family thought it was in my head,the goverment would not do anything for me .I fell asleep driving my car to work glad no cars were coming in my direction as the car swirl i woke up.I was relieve nothing happen,I quit my job.Takeing many pills nothing to help me. Ida Close -Robb

    Reply
  277. Cindy Henry   April 26, 2015 at 8:50 am

    I too have tried everything my doctor has suggested, and we have found Lyrica has made it tolerable, what is there to do?

    Reply
  278. Fred Rose   April 25, 2015 at 4:22 pm

    THE MOST SENSIBLE ANSWER I HAVE EVER HEARD. FITS AND MEETS ALL THAT AILS ME. OVER 20 YEARS OF ON AGAIN OFF AGAIN SUFFERING. HAVE NEVER FALLEN FOR DRUG TREATMENT AS MY DOCTOR AND MYSELF THOUGHT IT WAS NOT WORTH IT. AFTER ALL THIS TIME AM NOT CONVINCED THAT IT IS JUST WEAR ,TARE, ARTHRITIS, OR MENTAL. DEFINITELY TAKES A TOLL ON YOUR MENTAL STATE. NOW? HOW DO WE SOLVE THIS?

    Reply
    • Hilda Montero   April 26, 2015 at 8:38 am

      I am so glad to know that we now can prove that this pain is not in our head, it is very real. I have suffered more than 20 years with this terrible and debilitating pain. I will speak to my doctor at the pain control clinic to see what they think. Thank God for this breakthrough. Keep up the good work

      Reply
  279. Tracey Whittingham   April 25, 2015 at 3:05 pm

    My pain is real.. HELP!!

    Reply
  280. Penny   April 25, 2015 at 12:44 pm

    Yes, who can sleep? Who can exercise? I try but some days, I can’t even put my socks on. I know for a fact it’s not in my head, I can feel the pain, so it must be real. I don’t like being in bed a lot, but I don’t have much choice.
    Yes please, I’ll take a cure.
    Sleepless in Ottawa.

    Reply
  281. Maz   April 25, 2015 at 8:48 am

    Is this a flipping joke!! Get more Sleep, Get more exercise!! Wish I could sleep more, exercise as much as my body will allow until fatigue sets in and the pain stops me being active. At least one good thing has come about by this research “it’s Not in Our Heads” lol I could have told you that along with all fibro sufferers!

    Reply
    • kelly   April 25, 2015 at 1:16 pm

      TotAlly agree wi u its all good to say what we should do but the fail to understand we can’t because of fibro I keep getting offered depression tablets how bout trying to fix the problem instead of trying to find the quickest solution to get me out the surgery cause they have no answers

      Reply
  282. heidiann1006   April 25, 2015 at 7:35 am

    Just one pain free day is what I pray for

    Reply
  283. yvette   April 25, 2015 at 4:26 am

    Please take the time to read this.This may help you.I was diagnose with Fibromyalgia and Chronicle Fatique .I suffered for so many years .My life was called no life.There are days i just wanted to die,if it would not have been for my love one i am telling you i would not be living on this hearth today. I started taking this ,it is not a drug ,they say it’s just like food. It is call Marine Phytoplankton. They do sell it at the Pharmacist .Talk to your pharmacist about it or google it.You will be amaze of how many others got cured on it. It is the talk off all Natural Doctors and Pharmacist. My DR Peter Ford made me and my husband laught ,he said take this little green stuff that taste like seaweed and i will call you in 4 weeks to see how you are feeling.( just letting you know that i take mine in half a cup of pure orange juice so it is not bad to taste.) Then he look at me and said i may never need to see you again in my office. I looked at him and laugh and said in your dreams . I started the medication the 26 of Mach 2015 and this is what i have to say to all my Fibromyalgia and Chronicle Fatique friends. I noticed in the first week my hair getting a bit greasy for maybe a week now my hair looks more healthy then ever, then the color of my face was just went i was a kid nice rosy colors. I stated feeling more alive waking up in the morning singing and thinking of what could i do today ,making plan to get up and do something, the past 5 years of my life where the worst in bed, day and night with pain i can not describe .All my friends ask me what happened to me , they say wow your skin is so nice and you look so happy smiling all the time,one friend said did you win the jackpot ,i said yes it is not call money but i got my life back. I was on a lot of medication and vitamines as you know thats what they prescribe you, i stop taking all my vitamins and medication except 1. I am talking to you this morning at 7 30 in the morning and it not a beautiful day outside but it is a dam good morning for me, being happy with no pain.I can not wait to get out of the house to do something . Believe it i am crying this morning reading what i am posting for you ,Happy crying because of all the pain i suffered for so many years and with this little green stuff i have a life. I always read the post but i never replied but i really need to share this to tell my story. i remember all the doctors saying to me there is no cure, you just have to accept and live with the decease .It is my 8 th days being alive again,it does take time ,we are all different ,it took me 3 weeks some of you it can take longer on the Marine Phytoplankton but please do not give up on this ,i am telling you if it work for me it could work for you just be patient.The reason i stop a lot of my medication are that went i woke up in the morning i felt so good that i forgot to take my med for a couple a days went i started them again i felt like crap so sense then i stop taking them and i feel great on just taking this new Marine Phytoplankton. And do not fool yourself it is not because i stop my medication that i am feeling better i try stopping them before and i was crashing ,more pain and more sleep so yes it if for sure this new Marine Phytoplankton. If you read on the Marine Phytoplankton it is for a lot of illness not just for Fibromyalgia and Chronique fatique,what do you have to lose it is not a drug just a food that come from the ocean. Have a great day i know i am finally getting one,i am calling my very good friend Monique and i am going to enjoy my day out of my cage name the bed. Thanks for taking the time to read this ,i hope this can help someone in need .Get your life back. (:

    Reply
    • Don   April 25, 2015 at 8:14 am

      Does the capsule for work? Can you tell us what brand and quantity you take please.

      Reply
  284. MRS Hazel.o.Millington   April 24, 2015 at 4:55 pm

    This is very exciting news for me, I hope a cure is found soon. I was diagnosed in 1998,and have continued to be my quadriplegic husband’s main carer. At times it has been a real struggle for me to continue. Hopefully,although I’m 64yrs, Icould have a few pain free years before I kick the bucket, it would be bliss to be pain-free

    Reply
  285. Kathy Tollefson   April 24, 2015 at 3:16 pm

    I think we with disease should be updated frequently. Is that possible?

    Reply
  286. norma bronson   April 24, 2015 at 2:21 pm

    this is wonderful news ,my questions are ,is this going to be available in canada ,iam very interested in the out come and any new meds to combat this painful life, i was diag in 2004, iam 52 not one single day goes by that i dont feel pain ,iam tired all day all night ,i work five days a week as a home care house keeper ,very phi work , and iam ok doing that 8 hr aday ,its when i stop moving thats when the pain starts right away, my meds are lyrica , tylenel , iam ready for some thing stronger , iam ready to quiet my job ,

    Reply
  287. Meegan   April 24, 2015 at 4:37 am

    Can we follow the outcome of this new discovery online somewhere….and hopeful treatments?

    Reply
  288. Tracie McCleskey   April 23, 2015 at 5:01 pm

    Now I am wondering if the chronic pain that I have been in for years and years is actually Fibromyalgia.

    Reply
  289. elaine   April 22, 2015 at 1:42 pm

    Oh yes, I’ve heard all the “in your head” stories and had every imaginable and painful test they could think of for about 50 years. One doctor even told me I had “the suburban wife syndrome,” which meant I was bored – yeah, right with home, trying to keep up with and organize activities/lives of two kids (3 if you count hubby), 3 dogs (two canine pregnancies), dance troupe member, etc., etc., etc. Bored, right. And all these years, I’ve wondered why my hands hurt so much. And still, I’m eagerly waiting for the cure – what’s the ETA?

    Reply
  290. Juanita   April 22, 2015 at 11:37 am

    Oh please tell me about a cure ,,I have suffered so much ,and yes Drs tell ya it’s all in your head .leaving me wishing they got it ten times worst than me lol

    Reply
  291. Irene smith   April 22, 2015 at 10:46 am

    I coNor acted this disease via a viral infection in the brain. It left me severly disabled ( there are different levels) and on a DVLA life award. I was healed and came out of my wheelchair, gave all my benefits back and my life has completely changed. Nothing is impossible with God. Any new developments are welcome to those still suffering.

    Reply
  292. Rita Griffiths   April 21, 2015 at 2:06 pm

    Oh please I would love something for fibromyalgia please tell me what to get
    Thank you Rita x

    Reply
  293. Lizza   April 20, 2015 at 10:09 pm

    I’m trying Magnesium Dimalato and I’m having excellent results. No pain in the ENTIRE BODY.
    No fog… no muscle spasms…. no hip pain…. no joint pains…. nothing!!! And I’m sleeping lots better…. There is NONE side effect or contra indication.
    Only people on hemodialises can’t use it. Magnesium is the salt of life! Do your own research on internet, please….

    Reply
  294. Lizza   April 20, 2015 at 10:06 pm

    People try Magnesium Dimalato… Takes akll the pain out.

    Reply
  295. Kat   April 20, 2015 at 3:51 pm

    What about Fibromyalgia people who also have Carpal Tunnel Syndrome?

    Reply
  296. diane   April 19, 2015 at 12:41 pm

    and so what is the cure, ? it doesnt tell you anything as usual

    Reply
    • Olivia   April 19, 2015 at 1:36 pm

      They don’t have a cure, Diane. They just said they finally determined what causes the pain, which is a big step in figuring out how to fix it.

      Reply
      • Lella PrincesPants   April 27, 2015 at 5:09 am

        They have found parts of what has caused this. This information has been around for a couple of years now. I wish I could remember or had saved where I saw that they had found something they thought was the genetic marker that caused fibro, that one is pretty new. Keep up with the research as much as you can. But also look at general Chronic Pain management, Its a b*tch to do but you can make things somewhat easier.

        Reply
    • jan   April 19, 2015 at 5:07 pm

      Diane their is treatment. Go to;- fibromyalgiatreatment.com and read the protocol if you can follow this strictly you can be much better as I have proved for the last 4 yrs. In good health JB

      Reply
  297. liz dolly   April 19, 2015 at 6:19 am

    thank god finally someone is doing something

    Reply
  298. Suzy   April 14, 2015 at 1:46 am

    I suffer with my C56 & C57 vertebrae and at times can be so painful that I cannot move. Prescription painkillers will not even take the edge away. I find taking1000 mg of Paracetamol and 400 mg of Ibuprofen relieves the pain more so than Codeine, Tramadol, Solpadol and many other pain killing medication.

    Reply
    • Kat   April 20, 2015 at 3:52 pm

      That amount of tylenol is probably killing your liver. Agreed with other commenters–our paranoia about “drug abuse” really only hurts chronic pain patients.

      Reply
      • Lella PrincesPants   April 27, 2015 at 5:10 am

        If you are worried about your liver and the amount of drug use (a valid concern) talk to your Dr, ask them to run some tests.

        Reply
  299. sam   April 11, 2015 at 10:46 pm

    The DEA has gotten so strict about allowing doctors to treat patients with pills due to the pain pill epidemic that has gotten out of control. I live in a small town and since these new regulations from the DEA heroin has finally showed its presence. An a lot of doctors won’t treat patients from fear of getting in trouble. Some people that do need pain medication can’t get it and that is just wrong. Tylenol and Ibuprofren don’t treat chronic pain.

    Reply
  300. Ruth   April 11, 2015 at 8:01 pm

    MaryAnn, not sure what u meant re: having pain meds but not narcotics. I am in similar situation as u, my sympathies! My GP is kind and prescribes pain meds/narcotics …I try to get by on the # he writes for. I am thankful for him. Totally agree wth if we were dogs they’d. put us to sleep. Take care .

    Reply
  301. MaryAnn   April 11, 2015 at 5:43 pm

    Narcotics??? Had this disease for nearly 30 years. I lived normal life with pain meds. Thanks to the medical community that does the bidding of the DEA, I have found no doc that will prescribe narcotics for pain. I also have arthritis and numerous painful conditions. We have a PAIN disease. Why not treat it with things that work for the individual. If I were a dog they would be kind and put me down.

    Reply
  302. Me   April 9, 2015 at 8:58 am

    The Author has misunderstood the scientific report. Just because the hand was tested, doesnt mean its just from the hand. They believe, but have yet to run a larger trial to verify, that a subset of FM sufferers can have as many as 10 times the normal amount of capillaries all over their body. This could be the overload of sensation that leads to the neurological changes now seen.

    Reply
    • Gaynor   April 15, 2015 at 1:34 am

      “Me” That seems to make much more sense.

      Reply
  303. Lee burke   March 30, 2015 at 12:40 am

    I had to give up ALL fruit except bananas for another problem I have and the poly myalgia went away?.????? Certainly worth a try.

    Reply
    • anita oats   April 2, 2015 at 5:12 am

      polymyalgia is a different thing to fibromyalgia

      Reply
  304. Kitty Overcast   March 28, 2015 at 4:52 pm

    Anita arnell, You are so right, they are so off track on this one i think.I have fibro and other disorders for 16 years, suffer horribly, if you get this message and want to know somwething that truley will help you(it’s a miricle-a God send for me) go to a group on facebook called Kratom(new and current users) read all the posts there, and consider kratom for fibro pain, help with sleep, deprpression and all the other nasty crap that goes with it…i hope you get this messagem cause this will help you

    Reply
  305. anita arnell   March 28, 2015 at 8:40 am

    Thats absurd,im not dr at all but a blood vessel in ones hand? Ok come on thats like sayin pms is from my pinky toe on my foot!!! Iv suffered with this crap for 17 yrs been on every med,had every test,percedure,done every excercise thats been invented. Im only 47yo,iv had onsomnia for yrs&iv slept full nights waking up whet i cnt move.iv got several bulging disc,arthiritis thru out my spine,in my hips,shoulders&hands.I hurt so bad that i dnt ent anyone to touch me,my skin hurts,joints,bones,everything. So this comin frm a blood vessel in my hand is so “IN THEIR HANDS! and another TRIAL&ERROR case for us patience that wil fall to be ther guinea pigs!! Just my opinion. Have a nice day. THANKS BUT NO THANKS,DOC! GODBLESS!

    Reply
  306. Ann Safford   March 28, 2015 at 6:23 am

    It makes some sense to me. When I wake up in the morning I can hardly move my hands and as the day goes on when my hands feel better my body pain is not as bad. We will see what else come up with.

    Reply
  307. Leslie   March 27, 2015 at 9:53 pm

    Honestly this sounds like a bunch of scrap. They can’t come up with a real reason so they throw a bunch of stuff together and expect US to believe it because they have no other explanation for it. It’s just like saying “it’s all in your head.” Thank God that I have a doctor that listens and is helpful.

    Reply
  308. Burgie Ireland   March 27, 2015 at 9:15 pm

    I am also sceptical about this article but appreciate that fibromyalgia is ‘not in the head’ as somebody said to me just last week. This made me angry. She has no idea what it’s like to have fibromyalgia. A book I read recently on chronic fatigue syndrome which I also have as a result of Lupus was very helpful in that it promoted routine and exercise which Joan Ross also found helpful. I am trying to swim in naturally hot springs more often and walking more often which I think is helping me.

    Reply
  309. Tammy   March 27, 2015 at 6:44 pm

    I have fibro and have had it for many years. And this sounds like a bunch of hooky to me. There is a huge list of things fibro fighters live with every day, and i don’t for one minute think that it can be summed up so easily. For me I believe these experts don’t actually have fibro.

    Reply
  310. [email protected] com   March 27, 2015 at 12:58 pm

    Well this is weird as I also suffer from fybromyalgia & I have what looks like burst blood vessels on the palms of my hands that no doctors av seen can explain 5hay dnt know why I have them or what as caused it I would love to find out more information about this & would like to send u a photo of my hands but don’t know how to on this link

    Reply
  311. Joan Ross   March 26, 2015 at 7:56 am

    I found this article very interesting as I am a fibromyalgia sufferer whom the Dr’s prescribed anti depressent etc. Meantime I heard from someone that if I took Magnesium and Zinc it would help . I have done this taking Ulitmag which has Zinc in it and Calmag which has Calcium in it and since then slowly the pain disappeared and I weaned myself off all the medication. I do walk as often as possible and can now climb stairs whereas before I could hardly step onto the curb. I also have been doing Pilates and Stretch excercises. Hope this is of help to someone.

    Reply
  312. sarah oakton   March 25, 2015 at 4:45 pm

    I read this last year same article doing the rounds but still no closer to finding relief

    Reply
  313. karen   March 24, 2015 at 12:13 pm

    IT IS JUST A MAGAZINE OR WHATEVER. NEVER MENTION WHO THE RESEARCHERS ARE! BUT THIS IS A WASTE OF TIME. GOOGLE WEBMD OR MAYO CLINIC OR ANOTHER UNIVERSITY MEDICAL SITE. NO ONE KNOWS NUTTIN 🙁

    Reply
  314. Norman Awards   March 24, 2015 at 11:50 am

    There’s a reason doctors thought it was all in your head. Because most patients with fibromyalgia are women and the medical profession has never been good at believing women.

    Reply
    • Kat   April 20, 2015 at 3:55 pm

      Bingo! ‘Women’s’ diseases are at the bottom of the list because we live in a sexist society. Men don’t get diagnosed with ‘fibromyalgia’–they get diagnosed for pain, and treated for pain.

      Reply
  315. karen hubberstey   March 22, 2015 at 2:17 pm

    I suffer this it happened to me after my mum died my doc has me on medication it doesn’t help the pain an tiredness is real bad wat else can I do

    Reply
    • Edna Epperson   March 23, 2015 at 8:28 am

      I take Cymbalta and it is wonderful for my pain and depression.

      Reply
  316. Bobby Riffle   March 15, 2015 at 9:20 pm

    Hey Cindy maybe your wording should be “A Cure”……NOT THE CURE. OR PERHAPS, ONE VERY EFFECTIVE TREATMENT HAS BEEN……. OBVIOUSLY YOU DON’T HAVE FIBRO…OR YOU WOULDN’T BE SO CALLOUS !

    Reply
  317. Cindy   March 14, 2015 at 6:58 pm

    What about all the people that get relief by floating and ignoring the pain? (Same premise as anxiety disease.) Not in your head at all; but the cure is actually in your head and your attitude.

    Reply
  318. tv   March 14, 2015 at 1:19 pm

    how about ldn? many has told they have got help from it..

    Reply
  319. Lois Budden   March 12, 2015 at 5:11 pm

    My fibro started from an injury that affected my shoulder and In turn affected my hand and arm then spread all over. Also by co Incidence I also had a personal crisis happen so all thoughts. Lent towards brainFor the cause. I think this could have some merit

    Reply
  320. Pascale   March 8, 2015 at 5:42 am

    Source?
    Who publishes something that is health related without providing their sources???
    Besides it is wrong to announce that a mystery has been solved based on only one “unlocked” source.
    This is not journalism.

    Reply
    • karen   March 9, 2015 at 3:29 am

      AMEN. SO DISAPPPPOINTING REALLLEEE AND THIS PLACE IS OVER 2 YEARS OLD. I JUST LIKE READING WHAT OTHERS THINK. MOST DON’T KNOW THAT IT HAS BEEN ON THE NET FOR A LONG WHILE WITH NO REAL RESULTS.

      Reply
  321. Zora Magdell   March 7, 2015 at 9:03 pm

    Google the relationship between chronic lyme disease symptoms and fibromyalgia

    Reply
  322. Diane   February 28, 2015 at 10:23 am

    I had a lot of fillings removed as well to rid the mercury. Because my immune system is so shot, most of my teeth abscessed and I had them all pulled and now wear dentures. Hard telling if removing the mercury helped or not.

    Reply
  323. Claudia   February 27, 2015 at 7:39 am

    Since going gluten free and not eating foods containing high levels of mercury, such as certain fish and other sea foods, some of my FM symptoms decreased by 70%. Also some allergies has disappeared or lessened. I also had tooth containing mercury fillings extracted (12) as I could not afford to have the fillings removed. I can now use my hands like I have not done in years.

    Reply
    • Valerie Scofield   February 28, 2015 at 8:38 am

      I have just had ten fillings removed, some of which had been in place for sixty years. I am not feeling better yet, as It can take forty to fifty years for the body to get rid of it. Haven’t got that long, I am sure, so am chelating. First you take a challenge test of two tablets, and then three hours later, you take your urine. Then, it gets tested in various parts of the country. Then you go on chelation therapy. It is very hard to chelate the brain. The Mercury gets stuck in various organs of the body, so you must chelate.

      Reply
  324. Helena   February 27, 2015 at 6:54 am

    I just wish some would find an end to this debilitating problem, sleep would be great if you could get pain relief but it’s a vicious circle. Your dead tired but the pain keeps you awake as for exercise well who can exercise when your in that much pain and your limbs are so swollen that you can hardly move.3

    Reply
  325. Siupatie Harding   February 26, 2015 at 11:26 am

    I have been diagnosed with fibromyalgia many years ago. I do not have pain in my hands; The only medication that works for me is Lyrica. I do not know what I would do without this medication
    ..

    Reply
  326. karen   February 24, 2015 at 10:26 pm

    WELL THIS IS NOT NEW AS U MIGHT THINK. BEEN ON THE NET FOR A FEW YEARS AND THERE HAVE BEEN NO, NONE, NADA UPDATES SO WHO KNOWS.? ;(

    Reply
  327. DrDLS   February 24, 2015 at 7:33 am

    where is the peer reviewed science article that supports these conclusioins?

    Reply
  328. Barbara Anne Maguire   February 23, 2015 at 11:09 am

    How long before we see real help? My daughter suffers so badly with Fibromyalgia

    Reply
  329. Cyndee   February 23, 2015 at 10:45 am

    I pray that this opens the door wide open to wisdom understanding and ultimately a cure for Fibromyalgia. Lord let it be so. Bring up medical teams to investigate this and produce life giving cures to all fibro suffers. May it not be put on the back burner nor something that the government fda or unbelieving doctors or pharmeceuticals would try to squelch before it is even considered a real possibility of an answer resulting into the cure. Yes & Amen.

    Reply
  330. Vanessa Brooks   February 22, 2015 at 2:10 pm

    I had Stevens Johnson Sydrome 2 years ago and it is believed that this trauma to my immune system brought on fibromyalgia. I would like to know if this could be true?

    Reply
  331. russel   February 22, 2015 at 11:41 am

    My mother suffered from fibro all throughout her adult life. She was never able to fulfill her dreams. Sometimes she says she’s lucky to be alive. It saddens me that there was no cure for this.

    Reply
  332. karen   February 21, 2015 at 3:58 pm

    WOW I JUST STARTED READING VERY INTERESTING. SOOOOOOOOO WHY DON’T DOCTORS KNOW MORE ABOUT THIS? SO UPSETTING. THANKS 4 SHARING 🙂

    Reply
    • Jan Barker   February 22, 2015 at 2:04 am

      Karen if we all share with our own Doctor we may just get an acceptance of this treatment.
      Wish you all success.

      Reply
  333. Jan Barker   February 14, 2015 at 5:03 pm

    Folks try reading “What Your Doctor may not tell you about Fibromyalgia” by Dr R Paul St. Amand, MD., & Claudia Craig Marek. On the web at. http://www.fibromyalgiatreatment.com
    I have been following this “protocol for 4 years now and I find it works, so don’t wait get reading. Wishing you better health.

    Reply
    • Tina Boyce   February 21, 2015 at 11:19 am

      Jan Barker, I agree with you, I’ve been a patient of Dr. St. Amand for a year now.

      Reply
      • Jan Barker   February 22, 2015 at 2:06 am

        Well I hope we can get the word round about this treatment.

        Reply
  334. barbra lee   February 14, 2015 at 8:01 am

    Ithink this is amazing,i have exreme pain in my hands as well as other parts of my body.Sometimes it feels like my thumbs are fractured,I was prescribed epilepsy drugs although i am not epileptic .I refused to take them,it is shocking really. But this is good news.

    Reply
  335. linda   February 14, 2015 at 5:53 am

    I will be askin about this treatments wen I next go to c n my doc at the hospital I hope that here in the north east they know about this as it sounds great linda in Middlesbrough xx,

    Reply
  336. Ann   February 14, 2015 at 5:49 am

    Please read the book “The Brain’s Way of Healing”. I’m only on the third chapter and it is blowing me away about removing pain from your life.

    Reply
  337. Adonna Gosson   February 13, 2015 at 10:58 pm

    Chronic back pain for years that is made it difficult to do much of anything. I hope they find the answers for pain. Have already had several facet ablations done but they don’t last more than 9 mos to a year. It helps but doesn’t stop all the pain.

    Reply
  338. kaka   February 11, 2015 at 8:24 pm

    queue facebook people who mention age old “remedies” that have been there all along!…. and …. GO!

    Reply
  339. Ruby   February 11, 2015 at 2:17 pm

    I think the feet as well as the hands should be tested for this too. I get swelling and pain on the soles of my feet just the same as I get on the palms of my hands.

    Reply
  340. Robert Wallace Finlay   February 10, 2015 at 3:56 pm

    At last, an answer to the question “Is it REAL”, now we need a treatment

    Reply
  341. Alexandra   February 10, 2015 at 5:02 am

    I wonder if this also will help with Multiple Sclerosis patients.

    Reply
  342. Deanna L. White   February 9, 2015 at 3:03 pm

    Does this apply to Lupus with accompanying fibromyalgia??

    Reply
  343. Eleanor Courtney   February 9, 2015 at 3:13 am

    My Dr has made me feel like I was going mad they have even stopped my tablet for the second time in. Living with this pain every day and am finding it very difficult to stay working as I’m in so much pain may be they will give me them back and stop making me feel this way

    Reply
  344. Marie Fry   February 8, 2015 at 10:06 am

    I am skeptical until a treatment is successfully formed from this knowledge. I have had excess pain since I was a child. Being tickled was fun but hurt at the same time and if I said something about it I was told I was too sensitive or being a brat. The first pain I remember was in my feet. So this break through needs to be something more before I will be excited.

    Reply
  345. Tracey   February 8, 2015 at 9:37 am

    They need to understand WHY the patients have too many blood vessels. What did they eat/drink (diet pop, sugar, GMO’s), vaccines, etc., that could have caused too many blood vessels. You don’t just wake up one morning and have too many blood vessels.

    Reply
  346. Jenny Fuller   February 8, 2015 at 5:01 am

    I get pain in my neck, shoulders, head, wrists, arms and legs

    Reply
  347. marion holbrough   February 8, 2015 at 12:38 am

    The only place I don’t get pan is in my hands

    Reply
  348. Larissa Hernandez   February 7, 2015 at 11:30 am

    I’ve been diagnosed with Fibromyalgia since I was 15 nothing has worked and not holding my breathe for a cure

    Reply
  349. John Shoemaker (@shoewee)   February 6, 2015 at 7:53 am

    Sadly there isn’t really a link to an official peer-reviewed study, so its doubtful this is true.

    Reply
  350. חיים פרידמן   February 4, 2015 at 12:51 pm

    Dont rush to believe every newly announced cure of Fibromyalgia.

    Reply
  351. Angie   February 4, 2015 at 11:41 am

    Well it thats true Why does it come on in later life with most people and not there when you are younger?

    Reply
  352. cheri   February 2, 2015 at 6:39 pm

    I hope all this is true. I’M tired!!

    Reply
  353. saltt   February 2, 2015 at 12:46 pm

    I have a theory that works. I have been able to help hundreds of people defeat fibromyalgia. Read my theory on Page 19 on my Free E Book. You will find it at http://www.saltt.com.au Click on the information tab, then Free E Book. Happy reading!
    Sharyn Cook

    Reply
  354. Helen Mc Bride Danache   February 2, 2015 at 11:22 am

    I have watch my daughter suffer greatly, for 30 years. I knew it wasn’t in her head. So sad.

    Reply
  355. Shirley Van de Vliert   February 1, 2015 at 11:16 pm

    I experienced the same indifference from Drs. But..what are we really to believe – this new study or the last one I read describing a large clinic in Phoenix, devoted entirely to Fibromyalgia. They are sure that it is caused by an infection somewhere else in your body, so how can it now be solved when they each think that they have the answer.
    I am puzzled.
    Shirley

    Reply
  356. margaret   February 1, 2015 at 5:51 am

    i was one of these people who got told it was all in my head and told to take the antidepression tablets and go away i am glad there have been a break through and now people who are not depressed wont be given tablets they dont need

    Reply
  357. Debb Jarvis   February 1, 2015 at 3:23 am

    I’ve got the condition and suffer so badly with every day living, it’s a nightmare and no one underStands

    Reply
  358. robert   February 1, 2015 at 12:55 am

    hi i was told in 1902 that i had fibrostic that’s what they called it back then & the doctor put me on pill’s & i had 3 young’s kid’s & workin & i couldn’t handle the pain & my husband could handle me so i gave up the pill’s & he rubbed all of my boby every day & night sometime’s he had to pull me up in the bednow i think i have it in my chest i’m shagged

    Reply
  359. Charzie   January 31, 2015 at 6:53 pm

    Phil, I am with you 100%! I am now 62 and had FMS for at least 25 years, along with other health issues. Over 5 years ago I was diagnosed with diabetes, and being obese and unhealthy I can’t say I was surprised, but unhappy all the same. After starting on the meds (taking my total to 12!) and quickly gaining about 25 more pounds and feeling worse than ever, I had a total melt down. I had seen “Forks Over Knives” in the past, and I knew it was time for me to act or face the consequences. I jumped in with both feet and totally turned my life around. Lo and behold, in less than a month my blood sugars were normal, and over the next year I not only lost over 150 lbs and got off all the meds, but my FMS symptoms reduced to nearly zero! Through my research and experience I’ve come to learn that we are meant to live close to nature, and when we do we will be healthier! I only eat what comes from the earth, no processed food, no animals or their products, nothing man-made at all, including free (taken from the food they belong in) oils, fats, sugars and flours, (unless I grind them myself from the whole grain, which I do rarely). Five years later, I feel better than I ever have, and never even have a cold! It wasn’t easy at first, but I can’t even begin to tell you how worth it it was, and how much I love it now! People stress over all these weird diets and eliminate this and that on the say so of some author or controlling lobby with an agenda and end goal of making $$$ and manipulating our ideas! Fads come and go, but nature has and always will be the basis for what we are all about! Man can never hope to top that! People want to hear fat is good and meat is healthy so they don’t want to believe the truth, but they need to wake up to the reality…they are sick and getting sicker!!! I challenge anyone to improve their health, and possibly their fibro, in just three weeks (though that usually takes longer) by taking the 21 day vegan kickstart! I have no affiliation, and they aren’t selling anything! http://pcrm.org/kickstartHome/
    Please stop believing the silly pseudo-science BS that sells books and products, and THINK! Do your own research from the REAL facts! I just want everyone to give it a fair try, you have nothing to lose and everything to gain!

    Reply
  360. Anita Matei   January 31, 2015 at 4:27 pm

    this article is too ‘far out there’ for me to believe it is valid. The only reference to specifics was Danish scientists without the name of the trial/lab institution, university or names of any scientists heading up the study. In 2012? the big discovery was a link to a type of virus also found with prostate cancer. That article had back-up sources to cross reference & covered by reliable well-known media sources. Causal links I’m aware of include trauma, food & chemical sensitivities and possible chronic Lyme Disease. Immune system over reactivity explains episodes of flu symptoms. Mood swings with black holes of depression for me are critical. I’ve been ill for 20 yrs. Treatments are a crap shoot from day to day and many not affordable.

    Reply
  361. karen   January 31, 2015 at 8:13 am

    i find it weird there in absolutely no email address for anyone who can answer the questions we have. this site has been up waaaaaaaaay to long for someone IN THE KNOW NOT TO COMMENT. DESPERATE 🙁

    Reply
  362. talkingtom2day   January 31, 2015 at 2:55 am

    I would caution that, while this is a positive sign, there are too many ‘could’s and ‘may’s in the above paragraph for my liking yet. I’ll be watching hopefully for my wife, but in the meantime I do caution against running too far with this news – the research is ongoing, and science is a process of theory-test. Once this has been tested a lot more, I’ll be more excited.

    Reply
    • karen   January 31, 2015 at 8:05 am

      ACTUALLY I WOULD LIKE TO KNOW HOW MANY YEARS HAVE STUDIES BEEN GOING ON FOR FIBROMYALGIA? SEEMS NOT TTTOOO LONG. WHAT DOCTORS, CLINICS ETC ARE INVOLVED ANY IN NORTHER CALIFORNIA. MY EMAIL ADDRESS IS:

      Reply
  363. Denise Jones   January 30, 2015 at 11:52 am

    I have had Fibromyalgia for over 20 years and am on Nsaids, Morphine, Anti-depressants and anti-seizure drugs. I would love to be cured but somehow believe this will never happen. Please prove me wrong. Currently living in Spain where I moved because I was house-bound in cold wet England. Heat certainly helps with mobility. If there is ever a trial started for cures, I would be very willing to take part and get off all these drugs.

    Reply
  364. kim   January 30, 2015 at 12:56 am

    Ive got fibromyalgia and ivr found nearly all the women i know who have it hold the same blood type as myself which id A neg rhsD factor. Whys this and is it connected?

    Reply
    • Anne   January 30, 2015 at 3:19 pm

      Kim, I’m A neg. also, but I never thought fibro would be connected to blood types. I thought I got mine when I was around 14 and fell from a second story porch. The railing gave way. I always had my arms out of the covers at night and above my head. Weird, I know. After the fall I had to have my arms under covers.

      Reply
      • Paula J Countryman   January 30, 2015 at 4:25 pm

        I’m O pos. I do think this condition has a lot to do with our spines and a flaw in the signals to our bodies. I have an old whiplash injury, endured a traumatic childhood and a rape at 18. I also find that smells are more intense to me. There are so many variables, but most of us have experienced a trauma..we tend to be animal lovers too.

        Reply
  365. Dani   January 29, 2015 at 10:06 pm

    Both my hand pain was due to Carpal Tunnel in both hands… so I had surgery and they are all fixed! No more pain! I do, however, have Fibro pain all over but mainly down my spine and lower back.. and a bad case of Cognitive issues! I’m having a hard time understanding the connection between the hands and Fibro pain and cognitive issues.. ?

    Reply
  366. Denise   January 29, 2015 at 9:01 am

    I suffer with this disease but i dont have painful hands perse’. I have carpel tunnel tho. when I stopped eating sugar and gluten last year my pain stopped!

    Reply
  367. Dawn   January 29, 2015 at 5:12 am

    I eliminated all sources of wheat from my diet and now months later, all symptoms of rheumatoid arthritis and nerve pain is gone.

    Reply
  368. Daniel Young   January 28, 2015 at 9:00 pm

    I was told by a highly-regarded rheumatologist in 1982 that fibromyalgia was the result of inadequate stage 4 sleep (deep sleep after REM). He was right. In my experience, when I get enough sleep, I do not have fibro, and when I can’t finish my sleep cycle, fibromyalgia hits me really hard. It’s one-to-one, cause and effect. I don’t know how that could be related to this blood-flow-regulating nerve ending thing, but maybe it is…

    Reply
  369. Jackie Kresin   January 28, 2015 at 5:36 pm

    OK WELL THEN NEXT YOUR GONNA SAY THAT CARPELL TUNNEL STARTS IN THE ANUS. WELL LET ME TELL YOU I HAVE BOTH WAS DIAGNOSED 18 YEARS AGO I DO NOT TAKE THE PAIN MEDS AS THEY WILL RENDER ME UNABLE TO WORK… I CHOOSE TO WORK AND NOT GIVE IN THERE TRUELY ARE
    DAYS THAT I WANT TO GIVE IN THEN I REMEMBER MY SONS AND KEEP GOING!!!!!!!

    Reply
  370. Troy   January 28, 2015 at 12:56 pm

    Big Pharma will develope a drug that may ask the problem, sell it at a rediculous price and the problem will still not be solved. Proof in point is cancer treatment, how many billions have gone into the drug developement with still no cure….I think this still needs to be looked at further, as Fibro affects so many people each in different ways, it’s really become an umbrella term of sorts.

    Reply
  371. Paul Morton   January 28, 2015 at 6:31 am

    I had ME/Chronic Fatigue Syndrome for 3 years. Couldn’t work or do anything; was in searing pain. Went back to training as a Clinical Hypnotherapist/ Psychotherapist; where I responded immediately to treatment. I’ve helped patients since (also with Fibromyalgia) to get back to full time work and are pain-free! if you want to know more please contact me at [email protected]

    Reply
  372. Ellen Kitchin   January 28, 2015 at 5:25 am

    I’ve had Fibro & Chronic Fatigue for17 years. This research is interesting but I’m not convinced at all. I do believe that blood vessels are involved which effect every part of your body,but my legs are worse than my hands . Maybe because my hands are smaller ? From the beginning though my hands have been very sensitive to touch ,cold mostly . My feet are also sensitive . Is this the same blood vessel problem ? I’d like to know to can a lack of something like magmesium effect your blood vessels ? Still not a one size fits all problem! I’ll keep searching thanks.

    Reply
    • Facebook page - Magnesium Oil   January 28, 2015 at 9:25 am

      Ellen, for sure the lack of magnesium would effect blood vessels and all cells! Not that this may be your only problem, but I can tell you for sure that the lack of circulation causing my tremendous stove pipe legs, frozen feet and lack of mobility in all extremities has been triggered by the lack of magnesium–and has greatly improved since the continued use of magnesium oil! Research blood vessels and magnesium for more answers!

      Reply
  373. Janice Jones   January 28, 2015 at 3:57 am

    Congratulations on your continued health Phil you are very lucky,however, it does not always work.Having been meat free since 1982 you would think if your theory was correct regarding diet I would be well. Not so. I have arthritis as well as fibromyalgia and nothing seems to help me be pain free. I am interested in the hand theory as I have had problems with trigger fingers, pulled muscles, joint inflammation and carpel tunnel in both hands with no explanation as to why it has happened. I also have a friend with MS that was a gymnast and nutritionist and hers has advanced at an alarming rate and she now is in a wheel chair and in hospital permanently.

    Reply
  374. Facebook page - Magnesium Oil   January 28, 2015 at 1:06 am

    I’m fibro free now!!! Seriously, and my arthritis is no longer confining me to my home!! MAGNESIUM OIL– honest to God– this is and has been my new lease on life! Check it out on Facebook under Magnesium Oil .. or any site that you can— just get on the oil and don’t look back!!!

    Reply
  375. briana   January 27, 2015 at 7:55 am

    I have had lupus which is an autoimmune disease. Never had to take any medication except a muscle relaxer here and there over a 4 year period. I had my second son in July, 3 weeks later I became ill. It wasn’t my lupus they said it was fibromyalgia. I have lost 45 lbs after having my son and I’m still a walling pills left and right. So the ones who say lose weight and exercise are wrong. I’m battling two chronic illnesses. Losing weight is not helping.

    Reply
  376. Shona Robson-Glyde   January 27, 2015 at 1:25 am

    To Phil See – as a vegetarian of 30 years how do you therefore explain my fibromyalgia. I understand that diet can and does help but I also know it is not a cure.
    Regarding this article, I will wait and see what happens but I am not necessarily optimistic.

    Reply
  377. Katherine Floritto   January 26, 2015 at 8:35 pm

    I’m right beside Georgette. Let’s wait and see. I’ve read of this ‘cure’ before – it’s not brand-new, but I’ve seen no large-scale test results that would convince me the hands problem is the source of Fibro for all of us. I think Phil’s dietary approach is a good one, whether we’ve got Fibro or not, but is it the cure? Again, no test results of any significance have been reported.

    I’ve been very fortunate not to have encountered any doctor who has not taken Fibromyalgia seriously…and I’ve learned that there is a very fine line between this disease and Rheumatoid Arthritis, making it somewhat difficult to diagnose immediately. Perhaps there’s some connection between the two..don’t know, but if the hand problem is truly the basic cause, let us please see some useful data gleaned from large tests. It would be wonderful if a cure were found!!

    Reply
  378. Phil See   January 26, 2015 at 1:25 pm

    Fibromyalgia is one of many conditions that come from improper diet, e.g., too much animal protein (meat and dairy) ingested and processed foods in general. There is absolutely no conclusive, let alone renowned, evidence to support the “theory” of extra blood vessels “solving the mystery”. Having fought my disease, multiple sclerosis, very successfully with 0 meds (ever) and only my lowering my animal protein intake down to 5% or less per serving, has given me amazing results. If everyone did that, changed their diet to a mostly whole-foods and plant-based diet, there would be no Fibromyalgia, diverticulitis, diabetes, gross obesity, or heart disease, etc. The bottom line is “we are what we eat” so, people need to stop living to eat and instead eat to live. Eating smart. I was a musician when I was diagnosed MS and I played multiple instruments. That was in 2002. It’s now 2015, I am still a musician and I still play all the same instruments. The answer is a healthy diet and exercise. Period!

    Reply
  379. Matthew Boddy   January 26, 2015 at 12:22 pm

    mmmm excess blood vessels in the hands cause me my pain in my back and legs and a few other joints too nope not convinced sounds like to me another false mystery solved case to be able to sell new treatments and medications to the public just like they did when they put everybody on the autistic spectrum in one bracket regardless of how sever they where

    Reply
  380. Georgette   January 26, 2015 at 10:11 am

    I’m cautiously optimistic….. but I’ve tried too many things already that cost me a fortune and didn’t end up working in the long run. I will take a wait and see approach with this before jumping in. The best thing I have found to manage my symptoms over the past 20 years is to be very careful with my diet (no sugar or starches definitely helps reduce the pain) and try to maintain moderate exercise such as walking on the treadmill. It can be difficult to stick to a strict diet but when the pain and fatigue is bad enough, I run back to restricting my diet and keep moving…… those have worked the best for me. I agree that having the doctors treat us the way they do has greatly added to the stress and depression that so often accompanies this condition. I hope they are really onto something with this discovery.

    Reply
  381. Jeff Lerner   January 25, 2015 at 4:13 pm

    Lactic acid doesn’t cause the feeling of fatigue and pain; that is caused by the degradation of myofibrils (fibers in muscle cells) by an enzyme that is activated when calcium is released and not reabsorbed in overused muscles.

    Reply
  382. Kate   January 24, 2015 at 6:25 pm

    Don’t know where to start With this. So pleased there Might be some relief. Over 30 years since I told Consultant about severe pain in hands, arms, etc and he told me to go home and forget it. So glad people persisted in researching this. Still remindeD by excruciating pain daily.

    Reply
  383. Stephen S. Rodrigues   January 23, 2015 at 9:49 am

    Myofascial Pain and Dysfunction is within muscles which collects damages over time that do not heal correctly. The muscles subsequently begins to act erratic and contract onto itself starting a kinda “auto-destruct sequence.” These sick muscles will continuously exert a tremendous amount of force into itself and surrounding structures which alters cellular and DNA structures. These forces lead to damages and will affect all metabolic function too.
    1. In the future, many more of these secondary distortions will be found in all tissues.
    2. Important! Secondary findings are not primary causes.
    3. Treating the resulting secondary problems will not yield a cure.
    4. The treatments for the primary cause of MFP&D is still the same as it was 60 years ago; using the entire spectrum of myofascial tissue release techniques with hands-on and needling options in a wellness recipe.

    Reply
  384. kathleen nicol   January 23, 2015 at 6:29 am

    Well, I’ve always known that its not all in my head. I know Me! Why would anyone make it up? Its very debilitating and no-one would chose to have this. It will be interesting to see if the new findings help.

    Reply
  385. Vanessa   January 23, 2015 at 5:54 am

    My doctor still won’t diagnose me and I’ve been suffering for the last three years and getting frustrated… As I have kids to be raising and want to be there with and for them and to turn down things like swimming or skating or going to the park because of the pain that I would be in…

    Reply
  386. Tammy   January 23, 2015 at 5:48 am

    I can’t wait for a cure either. I was told fibro was what doctors said you had when they can’t figure out what’s wrong with you. Well I also suffer from RA. Which adds to the pain sensitivity.I just hope this helps with fibro.

    Reply
  387. Amy   January 23, 2015 at 1:44 am

    I am recently diagnosed with Fibro, though i have been suffering with extreme pain and other symptoms for about 3 years. i have been told many possibilities of the cause of my pain, including the fact that that its all in my head which was degrading. Some medical professionals believe there is no such thing as fibro of which i find unbelievable. I have been doing a lot of research since being given the news and still feel at a total loss at what i or my doctor should be doing. Reading this has given me some hope of a more effective treatment for the future and do hope that support and funding is given to research program’s. Its a wide spread illness that needs to be addressed and adapted to individual needs as from what i have read is very different for each Fibro sufferer.

    Reply
  388. Evelyn Drake   January 22, 2015 at 8:51 pm

    I can’t wait to get a cure!!!!i

    Reply
  389. Kath Fisher   January 21, 2015 at 8:30 pm

    I have had FM for over 30 years ..everything said here by Evi Blueth is exactly my response, and would also like a link to the study….I do not believe in panaceas ,as Evi said it manifests differently in everyone. Yes the article surely lacks details….
    Would be nice though…… ……

    Reply
  390. Evi Blueth   January 21, 2015 at 6:43 pm

    I have had FM for 30 years. Why should I believe that this is conclusively the cause of the disease. It manifests so differently in each person. I hope more exploration is done. It seems a bit too soon to announce and arrogant to make this a FACT. More exploration has to be done, and if the blood vessels in the hand are the cause, then what can be done? I find this article lacking a whole lot of details.

    Reply
    • Jim Donahue   January 22, 2015 at 7:06 am

      Evi, do you have any specific additions to this article you would like to see?

      We appreciate your feedback, and if you can get me some specifics, I will do my best to address your concerns.

      Reply
  391. Rosalie   January 21, 2015 at 5:30 pm

    Now hurry and find a way to rescue each person that suffers from this most aggravating pain!

    Reply
  392. angalla   January 21, 2015 at 5:33 am

    I have so many little blood vessels that have popped that started around same time I got this… I have gotten this weird blood vessel problem where they pop and swell during my fibro flairs and I always tried to ask if their was a connection… Hmmm….

    Reply
  393. Cory   January 19, 2015 at 9:17 am

    Link to the study?

    Reply
  394. Mark S.   January 19, 2015 at 8:00 am

    Those intrusively insistent pop ups make me wonder about the information I was there to read. Mark S.

    Reply
    • purrrrson   January 19, 2015 at 7:28 pm

      No pop-ups for me. All you need is an adblocker that also blocks pop-ups. The only thing they are there for is advertising. Just do a search and you’ll be able to find one that works with your particular browser. I love it. No ads, not even on youtube. Even those inconspicuous ones that say nothing but ‘click here’.

      Reply
  395. Artagene Skipper   January 18, 2015 at 4:42 pm

    Very good information when you are able to read it in spite of those Spammy Popups that popup regardless. Now if I clicked on one or hovered over them that would be different.
    to bad.

    Reply
    • purrrrson   January 19, 2015 at 7:29 pm

      No pop-ups for me. All you need is an adblocker that also blocks pop-ups. The only thing they are there for is advertising. Just do a search and you’ll be able to find one that works with your particular browser. I love it. No ads, not even on youtube. Even those inconspicuous ones that say nothing but ‘click here’.

      Reply
  396. Grumpy   January 16, 2015 at 6:22 am

    In November 2008, the California Board of Chiropractic Examiners accused Whitcomb of incompetence, gross negligence, and unprofessional conduct, based on his management of seven patients. The accusation states that he (a) administered excessive treatments, (b) failed to provide adequate structural examinations, (c) failed to develop treatment plans that were medically necessary, (d) failed to perform sufficiently detailed follow-up examinations to gauge patient progress, and (e) advertised with sensational statements that were intended to deceive the public. The number of neck manipulations ranged from 60 to 143 [6]. ….. http://www.chirobase.org/06DD/whitcomb.html

    Reply
  397. Sylvia   January 15, 2015 at 8:14 pm

    Fibromyalgia stems from the axis and the skull becoming mis-aligned. My daughter HAD fibromyalgia and Dr Paul Whitcomb cured her.

    Reply
  398. Richard   January 13, 2015 at 10:54 am

    Jonathon………“This mismanaged blood flow could be the source of muscular pain and achiness, and the sense of fatigue which are thought to be due to a build-up of lactic acid and low levels of inflammation fibromyalgia patients. This, in turn, could contribute to the hyperactivity in the brain.”
    Read more at http://guardianlv.com/2013/06/fibromyalgia-mystery-finally-solved/#MaOxmCvlYvcUtiiB.99

    Reply
  399. Jonathon   January 12, 2015 at 10:49 pm

    I do not understand the biochemical relationship between blood vessels and Fibro. Would you be able to elaborate. Thanks

    Reply
  400. Mariel J Time   January 12, 2015 at 10:11 pm

    About time I hope and pray this it…my previous doctor refer me to see a psychologist because he believed it was all in my head..I also hope we find a cure for sjogren’s, and why one suffers from migraines everyday.

    Reply
  401. Kyle Rider   January 12, 2015 at 12:49 pm

    Do some research on Lyme Disease if you have be diagnosed with Fibro. I think what they have found here is just one of the results of damage but at least they are doing something and it wont always be out fault.

    Reply
  402. Sally Peacock   January 12, 2015 at 2:49 am

    I have had fibromyalgia for over 10 years now and doctors made me feel like a malingering fraud I have thyroid problems as well and chronic arthritis. I hope that they find a cure because this illness has absolutely ruined my life with constant fatigue etc maybe the world is actually listening to us for a change a bit late for me at 65 but will help others in the future

    Reply
    • cheryl coombs   January 12, 2015 at 3:20 am

      Sally
      Its never too late! Me too had life totally rearranged by this condition and same treatment by others, dont give up try everything thats out there and keep going. Ive decided to go totally unorthodox with my remedies and against gp advice, but sometimes what they dont offer is the best help. I researched a guy called Rick Simpson and his work. He doesnt sell anything but what he teaches folk to make for themselves has certainly helped me.
      Currently on iodine, accupuncture, spirulina and a bucketfull…..
      Go well and keep looking at each day as a gift!
      C

      Reply
  403. laura   January 11, 2015 at 9:38 pm

    Fibromyalgia also goes along with CFS I also found that Lyme causes Fibromyalgia. Along with thyroid issues, CFS, IBS, adrenal fatigue, sensitivity to heat and /or cold and the list goes on. There is no cure for fibromyalgia and in order to get well from Lyme we need doctors who will treat and the CDC to change guidelines otherwise people will forever live in this pain and not get well.

    Reply
  404. Nic   January 11, 2015 at 6:24 am

    I would be looking up about adrenal fatigue…this is a factor in chronic fatigue, fibromyalgia,etc….the adreals sit above the kidneys, if they become stressed, bang everything becomes out of whack and causes severe fatigue along with thryoid issues…lugols Iodine protocol is amazing for helping and eliminating these symptoms and bringing relief, eventually cure…read up on Dr. Brownsteins lugols iodine protocol

    Reply
  405. cl   January 4, 2015 at 7:47 pm

    There are no medical research references here and the “source” page on Womenshealth has been taken down. I am very skeptical!

    Reply
  406. georgie   January 2, 2015 at 1:38 pm

    I suffer with fibromyalgia and have lost of pain, I was reading your email Paula and there you mentioned Lyrica.
    my son also told me to ask the doctor as he says it is very effective, i love to go for a walk but can only do 15 minutes at the most.

    Reply
    • Kippereast   January 26, 2015 at 4:37 pm

      My GP with a recommendation from our local Pain Clinic, put me on Lyrica some years ago, and it helped me manage my pain. Doesn’t remove, but it does help manage it more than anything else I have tried.

      Reply
  407. Paula Dow   December 22, 2014 at 1:56 pm

    I was diagnosed in 1979. I Was lucky enough to find a Doctor in 1981 who believed it was real. The Rheumatologist who diagnosed me said it, “was typical of the Type A personality woman, overachiever” Thank Goddess for Lyrica. It has taken the pain down so much. This makes so much sense. I am printing this and taking it to my current Primary Care MD. If you haven’t tried Lyrica it might work for you.

    Reply
  408. tara landry   December 21, 2014 at 3:58 pm

    I have been dealing with this for more than 20 yrs. I have fibromyalgia, chronic fatique, colitis, IBS, interstitial cystitis, restless leg syndrome, poor circulation, lots of nerve pain, had neck surgery, have more blushing disk, scoliosis, osteoporosis. And probably leaving something’s out. Oh always freezing. I wish I could get some relief b

    Reply
  409. Robin Edwards   December 20, 2014 at 9:28 am

    was diagnosed in 1989 w chronic fatigue and fibro. It was really terrible back then because many Drs thought, it was something to give a patient so they could kick back and relax and know they werent crazy…I went to a rheumatoid specialist and he was so nice and understood it better than anyone Ive ever been to. Its not just in your head! Its real. Live it and you will understand. i would love to see something that would help this.

    Reply
  410. Donna   December 15, 2014 at 4:16 pm

    God help us all this IS truly the most painful REAL thing about 8 yrs ago I was diagnosed I had to be carried to the doc I was out of control pain so intense I could not walk craziest thing this doc knew what it was and had actually just started intensive research on fibro so many many diff drugs later and then stopping them all I still suffer so so so bad doc,s think I’m faking it can not get pain meds crying hysterically barely walk they won’t give me anything for relief then I start feeling like they think I’m a druggy or just want pain drugs and I’m just acting sometimes I do feel like I’m a druggy going in desperately asking for drugs or a big fat shot of pain killers right then and there!! Please let it be true they have found a cause and we can finally get some relief and have some kind of life finally
    Every night I stress out knowing I will be up most the night trying to rub the pain from my body so I can maybe get some sleep but all night I find the pressure points and rub hoping like crazy will help or relieve the pain just a little then I’m just exhausted in morning then the cycle starts all over again it’s pure he’ll please let it be true they found the cause and hope docs will be able to help us!!!!!! God bless u all and hang in there

    Reply
  411. Hilda Scott   December 14, 2014 at 7:47 pm

    OMG it would be wonderful to find a cure for fibromyalgia and chronic fatique!

    Reply
  412. Tom Speed   December 14, 2014 at 4:14 am

    Fibro, along with Migraines and I.B.S, have now been “CONFIRMED” to be caused by Endo-Cannabinoid Deficiencies: http://www.ncbi.nlm.nih.gov/pubmed/24977967

    Clinical endocannabinoid deficiency (CECD) revisited: can this concept explain the therapeutic benefits of cannabis in migraine, fibromyalgia, irritable bowel syndrome and other treatment-resistant conditions?

    Smith SC, Wagner MS.

    Abstract

    OBJECTIVES: Ethan B. Russo’s paper of December 1, 2003 explored the concept of a clinical endocannabinoid deficiency (CECD) underlying the pathophysiology of migraine, fibromyalgia, irritable bowel syndrome and other functional conditions alleviated by clinical cannabis.

    METHODS: Available literature was reviewed, including searches via the National Library of medicine database and other sources.

    RESULTS: A review of the literature indicates that significant progress has been made since Dr. Ethan B. Russo’s landmark paper, just ten years ago (February 2, 2004). Investigation at that time suggested that cannabinoids can block spinal, peripheral and gastrointestional mechanisms that promote pain in headache, fibromyalgia, irritable bowel syndrome and muscle spasm.

    CONCLUSION: Subsequent research has ***confirmed*** that underlying endocannabinoid deficiencies indeed play a role in migraine, fibromyalgia, irritable bowel syndrome and a growing list of other medical conditions. Clinical experience is bearing this out. Further research and especially, clinical trials will further demonstrate the usefulness of medical cannabis. As legal barriers fall and scientific bias fades this will become more apparent.”

    Reply
    • Arden Sleadd   December 21, 2014 at 7:53 am

      I tend to think one can get the same benefits from other natural sources without the negative “side effects” that cannabis can cause. A more potent source of the chemical constituent that gives pain relief (beta-caryophellene) is a So. American balsa tree, and the product is called copaiba, or copal. It is potent, safe, legal, and reasonably priced. Just 2-5 drops of a therapeutic-grade oil makes for a powerful dose. Apply on the site of pain and rub in, or take in a capsule. I have had fibro for 25 years. This product has helped me greatly. https://www.youngliving.com/en_US/products/essential-oils/singles/copaiba-essential-oil

      Reply
  413. Jan   December 12, 2014 at 5:20 am

    I have been struggling with fibro for years and getting people to understand is very difficult as you look normal on the outside they think it is not as bad as it really is. Pain clinic have me on a cocktail of drugs everything from morphine to Gabapentin I some times wonder which is worse coping with the pain or being out of it with medication. I hope and pray that a real solution comes along soon then we may all get a quality of life

    Reply
    • Arden Sleadd   December 21, 2014 at 8:01 am

      Jan, I was on a similar cocktail and am completely off the drugs, and using natural sources now. Cedarwood essential oil in a diffuser by my bed gives me seven hours of sleep; copaiba, frankincense, wintergreen, and many other oils give me instant pain relief and energy that lasts for hours. You can re-apply every couple hours whenever you need for pain without overdose. It’s wonderful. Not trying to lurk here for personal profit, just sharing what has helped me. There are facebook support groups for fibros learning to use the oils. Go to facebook.com/ardengarden or purchase at https://beta.youngliving.com/vo/#/signup/start?site=US&sponsorid=1579733&enrollerid=1579733

      Reply
  414. Marie Gainford   December 11, 2014 at 1:43 am

    I have had Fibromyalia 4 many years. My dr told me that it was my muscles. Dr gave me medication which helped a.lot. Dr than re refer me to the pain clinic.where they gave me anaesthetic. It has been getting worse as the days go by ,but I manage for my family sake

    Reply
  415. mags   November 26, 2014 at 9:30 am

    Sheila do you mean you take cough medicine?n

    Reply
  416. Bosko Milersen   November 23, 2014 at 2:12 pm

    I just got pa!d $5689 w0rking off my lapt○p this week, d○ing easy and incredibly fun tasks from this ○ne cool site. It’s dead simple! Ideal for making a decent extra in-c○me; A must see site… http://bizreport300.tk

    Reply
  417. Sheila Reid   November 23, 2014 at 1:39 pm

    Pain meds are a waste of time and money. Slow release Guaifenesin has worked wonders for me. I am more like I used to be, although of the pastI still have some very tired days and nights when I dont sleep so well. Pain is almost a thing.of the past.
    I stopped taking the medication for 5 weeks and was back to square one and couldnt move without pain, My brain was foggy I couldnt think straight. Walking, sleeping, standing and moving were crippling. I could’nt relax and felt exhausted and low, but within a week of restarting I restarted again. (would also add that through out the time I continued to take the medication from the GP, as I have to order Guai in from the USA and pay for it myself..Seratonin makes no difference at all or at lest very little.
    It will be great to if this finding leads to a cure or better medications, I suppose like most things it will take a few years of research and trials, but fingers crossed the end of the foggy tunnel is in sight. Sheila

    Reply
  418. debra kleinsorge   November 23, 2014 at 11:07 am

    I have been treating fibro for the last 14 years. I know it is inherited. Trauma and stress play a big part in setting it off. I just try to keep moving because the sitting still is what hurts. Low doses of anti depressants helps a little, but is not a cure. I spent many dollars trying to get well before being diagnose.

    Reply
  419. Donna   November 22, 2014 at 8:09 pm

    Donna,62
    I have had fibromyalgia for 5 years but all the Dr.’s made me feel like it was in my head. Now I have a Dr. that understands but won’t give me pain med. I have to go see a pain management Dr. first. I am hanging in there.

    Reply
    • Ruth   November 23, 2014 at 9:30 am

      Best of luck Donna. One person a few days ago wrote they take two capfuls of whiskey for their pain her md will not prescribe pain meds. Thankfully my GP is willing to prescribe. I had terrible time with md@ pain clinic. I hope u get some relief soon! Ruth

      Reply
  420. Natalie Malone   November 22, 2014 at 6:19 pm

    FINALLY IT NOT IN MY HEAD X 🙂

    Reply
  421. moomaw   November 20, 2014 at 11:30 pm

    hello in there—ive had fibromylgia for years.the only thing keeping me out of pain is whiskey. i take two caps full at a time till out of pain. never had a pain medicine as docters dont believe in it. i

    Reply
  422. tracy sapp   November 17, 2014 at 10:54 pm

    Reduced reaction to pain?!!!! I don’t understand that at all! If I stub a toe or bump a knee the pain is immediate & more painful than it should be & the pain lasts longer than it should. The pain is excruciating. I’ve had symptoms of Fibro since I was a child & it became “full blown” in 2003. I am 48 now. My mother had it, my sister has it & so do both of my brothers. My neighbor has it, 2 women I worked with in the late 90’s had it, a former neighbor had it. I have met many people who have it or know someone who has it. My sister is now going through the horrible raw stabbing pain in the lower back/sacral area that leaves you breathless & puking & unable to move. The pain moves into the hip joint like a hot dagger stabbing you & down the buttock & leg all the way to the little toe. I experienced this same type of pain for years, so I know what she is feeling. Except, here’s a real kicker- her husband has chronic progressive MS & he is a quadriplegic in a wheelchair. She has to do EVERYTHING for him. The pulling of this 250 pound man up from a laying down position to sitting position & getting the lift harness around him & pumping the lift up & moving him onto the toilet & off the toilet & into the shower chair & back into lift & then back onto his back on the bed to dress him & rolling him around during the dressing process & pulling him back up to sitting position to get the harness back around him so she can lift him into the wheelchair is killing her. Then she has to do this again at night. To top that off – he is a real ahole! He always has been but he is losing his mental faculties & is driving her nuts. They cannot afford to get help or put him in a nursing home. She can’t work outside the home. She has been his fulltime caregiver for the last 11 years. He doesn’t understand or believe that Fibro is real, so that makes her feel terrible. I too have had doctors, my husband & others tell me that it is all in my head. I’m telling them all now, no it is not all in my head! This is real & it is horrible. It is not just pain either. There is the debilitating weakness & fatigue, bladder problems, intestinal problems, headaches, a strange feeling of having swollen toes, feet, hands & teeth. Teeth, you say? Yep, that’s a really weird sensation. There are many other symptoms I have not listed. Please, someone in science take this debilitating disorder seriously & help the millions of suffers of fibromyalgia.

    Reply
  423. Jamie Allen   November 16, 2014 at 6:21 pm

    Excuse my typos.

    Reply
  424. Jamie Allen   November 16, 2014 at 6:20 pm

    I feel for both of you. I’m 43 and have suffered for years from Fibro/depression/fatigue. Just tonight I was mourning not being more involved with my children, who are now 17 and 20. I was to busy trying to find an excuse to go lie down. I promised we’d “play that game” or “watch that movie,” etv, tomorrow. My guilt is monumental.

    My boyfriend, of 2 years, knows very little of the disease. Because of the negative connotation I’ve been ashamed to talk about it. I always thought women with Fibro were hypocondriacs or weak, so I’ve tried to hide it. Jj

    Reply
  425. Carole Patterson   November 14, 2014 at 11:01 am

    I have suffered with fibromyalgia for yrs. I was a ball room dancer. very active , ate properly and looked after myself..Now I am on pain meds ,anti depressants(wrong kind as I do NOT feel less depressed ) My life has changed I do not feel like going anywhere .The pain has taken my life over..and the feeling of I do not give a damn anymore comes to mind more every day. I take injections,am dopey from the pain meds and because I do not have any broken bones my family cannot understand WHY???? am I always complaining about being in pain.

    Reply
    • Ruth   November 14, 2014 at 11:45 am

      Hey Carole, I HEAR you, different story( 67 yrs old, diag by rheumatologist 20+ yrs ago!TMJ for longer and daily bad, on a scale, headaches. 20 yrs ago diag. With MS and also cerebral aneurysms . Today I am gearin up to go find out about tooth implant. Every time I do anything my body pain is extra bad for 5 days or so. Reading what I wrote sounds unbelievable but sadly is true. It must be extra hard for u having had such a truly physical life filled with people.
      My husband thank god is a real trooper. He’s had to do so much. My friends have withered away except for a few cause I was always cancelling lunch or movie date…so depressed.
      You r not alone, there’s a bunch of us out here. Hang on. Ruth

      Reply
  426. Jerry Ann   November 12, 2014 at 12:19 am

    When I was first diagnosed, I was told it would never get worse but it would also never go away. Clearly by now, they know it CAN get worse. Somedays I hurt so bad, I just want to stay in bed. But I hurt just as much there as just getting up. People think you are making it up. The pain. Doctors have tried the low dosages of anti depressants, but I have bad reactions to those. Also a diabetic with arthritis. Hips and upper spine are getting thinner. After over 30 years if pain, it can get to you. Especially when you were active from the time your feet hit the floor to the time you laid your head down. Would truly love to wake with no pain again.

    Reply
    • Ruth   November 12, 2014 at 6:18 am

      Hi Jerry Ann, sorry to hear(read) about your experience living with chronic pain. I have a very similar situation and it is pretty lonely living this life. I had the poor luck of watching dr Phil give a lady with chronic illness (granted she was a kind of crazy gal) the ” you r being self indulgent and making a bad situation worse”. She was a nut job, but it made me feel so bad about not being able to do much and if I do something social or even have teeth cleaned , I am in extra body and head pain…
      Hope u have some good parts of today.
      Ruth

      Reply
  427. Jan Newhouse   November 10, 2014 at 1:08 pm

    I have Dupetryns’s contracture. would that have anything to do with it. It does not hurt but I have had two surgeries on one hand and the other is getting worse all the time. It runs in my amily. My father had it and so did my brother. I have had more problems than either of them.

    Reply
  428. annette andre   November 10, 2014 at 7:06 am

    i suffer with fibromyalgia doctors told me it was all in my mind too,even before i was diagnoised in 2002 when i had visited i drew pictures to pin point the pain areas where it was painful,i was even admitted numreous of times to hospital, for blood test nothing was found even thought i had throat cancer cause i couldn’t swallow anything. When eventually i WAS thinking it all in my head i got really depressed, panicky, paronoid etc…the consultant examined me with exercise which were so painful it made me cry, i was given a leaflet which showed all where i pinpointed my pain all those years of not knowing,sometimes i don’t go to my gp incase am told its my fibromyalgia unless its a pain i don’t recognise as i’v learnt to detect different pains, i do try and eat a healthy diet as certain foods triggers somethinsg i eat. Its now 2014

    Reply
  429. Concetta Mercurio   November 8, 2014 at 5:26 pm

    I am suffering from this fibromyalgia at list for 30 years, I hope they will come out with a cure. I have been told from doctors and even people close to me that the pain was in my head. I am 63 now and I have been suffering at list since I was 30 years at old. I am a walking burmeter I know excacly when the weather is going to change. At time in the morning I felt like someone has beat me up. I sincere hope that they find a cure and special for young people.

    Reply
    • Judita pop   November 9, 2014 at 6:44 am

      I bein suffering for 3 years.Now for 2 months I am taking It works greens and vitamins and getting Kinetic trea
      tments.Completely changed my life.Look up http://www.tapaswrapper.ca
      Do not ever loos hope!

      Reply
  430. Carol   November 8, 2014 at 4:48 am

    Also, fibro is generally used by doctors as an umbrella term for aches they don’t understand. A fibro diagnosis is rarely a legit fibro diagnosis. I’ve seen patients with “fibromyalgia” as a diagnosis… but only trigger points were present. So be careful about what your doc tells you, a second opinion is always good. And maybe now the umbrella diagnosis of fibro for body aches will cease.

    Reply
  431. Sam   November 7, 2014 at 8:52 pm

    My Cousin was living with Fibro for years and we found a natural health product that has made her symptom free. If you want to check out the website http://www.vibrantliving.justaddvisi.com

    Reply
  432. angela   November 7, 2014 at 9:20 am

    I have been diagnosed in 2006 after my car accident , i was 3 and a half months pregnant at the time. i tied medications for this but i have gotten every system ut said on the package. so my specialist recommended meditation which i have been doing and i still do and it works awesome because it relaxes all the muscles ect. but the fatigue is what the big thing that bothers me no matter how much of it i get i need more. i have 5 kids and its hard at times to get sleep. i believe it is fibro that affects my moods also soooo i am so hoping this is a cure as i need my life back .

    Reply
  433. joanne   November 6, 2014 at 6:41 pm

    Im new and also have fibromyalgia and rheumatoid arthritis I also was In a Car accident in 2011 Wich I also told my lawyer about I had nk ne of these issues before that car accident after about a year of being sick and not living I started taking sevalla and malozicam and tradable in the last two years I have quit taking all these medicines due to I feel much better now I try hard everyday to egnore the pains and aches and I get plenty of rest and that’s what keeps me going I think

    Reply
  434. Tiffany Riffle   November 6, 2014 at 12:28 pm

    There is help. i’m proof

    Reply
    • Kathy   November 7, 2014 at 8:38 am

      I’m so happy to hear somebody was able to make their way out of this nightmare. What helped you?

      Reply
  435. Tiffany Riffle   November 6, 2014 at 12:25 pm

    I too suffered greatly with fibro. Pain fatigue brain fog ADD insomnia bad depression. So hope everyone gets the help they need. It’s hard to believe that things could be better

    Reply
  436. Jeanine Thiede   November 6, 2014 at 6:55 am

    Hi and God bless to you all. First time posting. Please allow me to share a short story, wondering if anyone else can relate. I was in a car accident in 2009. Was rear ended and at a stop, driver going 40mph. I hurt all over, for about a week. Afterwards I noticed other pains and did not go away, along with fatigue, diarrhea that started a few weeks after the car accident. Weak legs, brain fog, vision impairment, and the list goes on. I have told my attorney the accident brought this on. They keep telling me that it is something that you are born with and lies dorement. I think this is untrue but whom am I to say. I sent them a clip from the National Fibromyalgia website where it STATES, I could be caused by trauma to the body!
    Anyhoo, I also wanted to share, I have been diagnosed with arthritis a few years back and get it so bad in the knees that I cant walk. They gave me steroid pills that I took for two weeks. I felt so great, no pain from Fibro and arthritis for months! I took it in the spring and hope I can get a dose this winter to see if it works again.. as winter is so bad on both!

    Reply
    • Sandi   November 6, 2014 at 12:15 pm

      What I have been told is that it develops in your body, generally due to some kind of abuse, but lays dormant until there is some kind of trauma. Mine was also triggered by a car accident. I was hit head-on by a woman who lost control on wet roads and crossed over into my lane. After a while, my hands started hurting and going numb. First, they tested me for Carpal Tunnel. That came back that I had it mildly in one hand, but not the other. Then they referred me to a Rheumatologist and he diagnosed my Fibro. He is the one who explained it to me and gave me some paperwork that also had the same information, plus more about some of the side effects which I was having, but didn’t realize it was related. Of course, now I suddenly get treated like I’m some kind of drug seeking pain pill addict, even though I hardly ever take my pain meds. I hope this story is right, and that they figure out a cure soon, because I would like nothing more than to have my life back!

      Reply
  437. Sue Hamilton   November 5, 2014 at 2:04 pm

    I was diagnosed with F M about 30 years ago. Finally had to stop working 5 years ago.
    No matter what I did the good days were fewer. They,ve tried everything medically possible.I could not take ati immflamatories. So I really hope that what they think is the answer is an the come up with some cure or better help. Atleast someone cares. Our government doesn’t seem to.It been along tough road an no income.

    Reply
  438. hazel ruth   November 5, 2014 at 11:51 am

    I remember way back to when I was 3 or 4 and thinking, “I wonder why God made it so that it hurts when you have to pick up something from the floor.” I hurt always to bend over and pick something up. I also believed that everyone had pain and that was how the world turned. My family didn’t go to doctors often – very rare and you had to be half dead to go. My parents would never have considered my pain as real or even worth talking about. But I imagine I’ve had this fibro crap for all my life. It got dx when I begged for pain medicine – so humiliating that I couldn’t show them the pain. 🙁 I got sent to a pain center and they did some kind of spinal infusion – which did nothing. They gave me oxycontin. I took one dose and felt so bizarre and sick that I never took another. I kept telling them to just give me darvocet. It worked and the chances of addiction were lower. I don’t know. They gave it to me until they said it kills people. Isn’t it crazy that with all this so called drug research NO ONE can find something safe, non addictive and works to make you feel better? I guess there’s no profit in it. Now they have decided they know best about pain killers out now and insist on triplicate so you have to go in to your doctors office and be humiliated to stand at the counter in line for your rx. I’ve taken the stuff for over 15 years. That’s a long time. and my dignity is out the window because I need pain medicine. I hate hate hate this disease and would do most anything to get rid of it for everyone!!

    Reply
    • cathymccarty   November 5, 2014 at 5:22 pm

      I sure hope you get the help you need, both physically and mentally! MD’s can be so ridiculously self-riotous! I think DO’s a better physicians (In case you don’t know, a DO is a Doctor of Osteopathy. They are permitted to do everything an MD can do, but their training is more of the muscular-skeletal systems than internal organs. I have always found them to be more understanding in areas of physical pain.. Good luck!

      Reply
  439. Anne Lindstrom   November 5, 2014 at 3:01 am

    Wow! Now I can relate to them saying it stems from your hand’s. Because every time I clean the house ,or do gardening etc etc. I’m down & out for a day @ least. I usually take antinflamatory drug’s & over the counter pain meds. I get very fatigued. & depressed afterwards. Please find a cure. I’m so tired of suffering. As well !

    Reply
  440. Renee   November 4, 2014 at 6:30 am

    I’m 54 years old. I was officially diagnosed by a Rheumatologist abt 20 years ago. But a few years back I was thinking about my childhood and my illnesses. I remembered I was sick a lot with low fevers, chronic stomach problems, joints hurt and more. Drs thought at first it was rheumatic fever, but they ruled that out. Finally frustrated, when I was about 10 they said all they could say was that I just had growing pains. Now I realize I was suffering with fibromyalgia at that age. So I’ve been suffering for at least 45 years with this “all in my head” disorder. I pray they find a cure soon.

    Reply
  441. Rehna Burge   November 4, 2014 at 3:48 am

    I have had it for 10 years. If this is a cause, it is only one. My Fibro flairs up badly if I intake artificial sweeteners, MSG and some additives and preservatives in foods. I tested my body with foods which took about 8 months total when first diagnosed. I can tell you with NO doubt that these items make my pain much worse. I have documented my journey and what makes my pain level higher or lower and will be glad to share my story.

    Reply
    • Robin Zordan   November 4, 2014 at 4:34 am

      I, too, cannot eat anything the is not natural or organic. I have flare ups from foods with additives. It is expensive to eat healthy but I have to do it.

      Reply
      • Tracy Sapp   November 17, 2014 at 11:13 pm

        Yep, me too. I take a supplement called Takesumi Supreme. It filters out the toxins from your blood & organs. It is a high grade bamboo charcoal. Just like charcoal is given when a poison is ingested. Now, don’t freak out at charcoal. It’s not like the charcoal that you use in a BBQ grill. It is all natural, no toxins of any sort. This gets rid of the “fibro fog”, food headaches & other allergic reactions from eating foods at restaurants or at other peoples homes that contain msg, dyes, preservatives etc… It cannot be taken within 2 hours of taking any prescription or OTC meds as it will filter them out as well. This stuff is great! If I indulge in takeout pizza & I get a headache & fibro fog, I take the Takesumi & within an hour the headache is gone. I eat as clean as I can though but sometimes I indulge in a treat. The organic & natural is more expensive but worth it. I definitely can tell when I have eaten “unclean” food. I feel like crap.

        Reply
  442. Charlotte Corbett   November 3, 2014 at 2:58 pm

    I was diagnosed with F M in 1992 had tried to work with pain and fatigue till I could not do it anymore ,from then on it was Doctors Specialists Hospitals Shock Treatment Pills that made me worse and its all in your head ,I hope they can find a cure for everyone who has it but more for younger people so that they dont spend there life suffering this awful illness.

    Reply
  443. Charlotte Corbett   November 3, 2014 at 2:42 pm

    I was diagnosed with FM 1992 had to quit work right away because I could not drag myself there anymore.Went threw hell after that doctors specailists hospital shock treatment I have learned to live with it and pillsI am in Canada.

    Reply
  444. Fern   November 3, 2014 at 1:54 pm

    If you have not gone a gluten free diet you must, immediately. My health is 500 times better than it used to be. My fibromyalgia symptoms are not gone but have subsided dramatically. I’m not in pain everyday, I was able to get off of my anti-depressant, I clot now after a cut, I have more energy. It took 3 months for me to see the results but I have now been gluten free for 9 years and feel much better. Don’t tell me you can’t give up bread and then complain. DO IT!

    Reply
  445. Andrea Davies   November 3, 2014 at 8:59 am

    I have always felt like I’m being beaten with a baseball bat…continually! The pain and fatigue have become relentless the older I get. The weather changes have become more debilitating. I’m so tired of doctors telling me that it’s all in my head and I need to get through the pain by more exercise or go to support groups. How can you exercise if you have no energy? And how many support groups can you attend while listening to others complaining when I’m trying not to complain! I’m tired of being frustrated all the time because I can’t do what I know my body should be able to do. If this article is real and the treatment is true, then I’m all for it!

    Reply
  446. Jan Weir   November 3, 2014 at 7:39 am

    I have often explained to people that the pain is like severe arthritis is to the joints FM is to the muscles. Pain is one thing but the fatigue is crippling as well. Even when I sleep I don’t get to REM. I get the best results from a mild muscle relaxer, something for pain, something to help me sleep and lots of vitamins. The article is encouraging.

    Reply
  447. Angela Martin   November 3, 2014 at 1:19 am

    Me too I would try anything this disease blights my life.

    Reply
  448. Debra Watters   November 2, 2014 at 9:25 pm

    I was diagnosed with FM about 18 years ago and I have since had to stop working because of the pain and the unpredictability of my general health. I’ll be happy if they can find the cure or at least better treatment in time for me to be able to return to the workforce. I live in Canada and I am a very willing guinea pig.

    Reply
  449. Mrs elizabeth edwards   November 2, 2014 at 1:30 pm

    Hi my name is elizabeth i have had fibro for a long time i take gabapentin it and it does help slightly if there is a some one out there how needs a giney pig please let me know

    Reply
  450. vira mcfadyen   November 2, 2014 at 1:15 pm

    Aye get told av got a thirties in my hands neck back sides even my feet am pretty sure it’s fm take tramadol but it’s getting worse wish there was a cure xx

    Reply
  451. cathypogo   November 2, 2014 at 12:37 pm

    anyone with a Fibromyalgia diagnosis may want to seek help from vascular surgeons, they can do a blood pressure cuff test that will reveal if the issue is actually a DIFFERENT FIBRO-“FMD-Fibromuscular Dysplasia,” mine showed I have only 40% blood flow in my arteries, they usually come up looking like a string of beads or rosary beads. I also have Reynauds, fingers turn red and white so far no Blue! another issue may be Ankylosing spondylitis, caused from Klebsiella infection then it get sin to bones causing all sorts of pains from neck to back and hoops, even knees and feet, literally ALL OVER! Lyme is another issue many with Fibromyalgia have that docs wont test for when they do and find some bands they DENY the patient proper care then give them a lot of imaging making them sicker…this happened to me for years

    word of caution is to watch what you allow to be put into your body by virtue of imaging studies. I have found FIBROSIS occurred within my exposures to Gadolinium contrast MRI’s for my 22+ years of undiagnosed Lyme. Check out the site http://www.gadoliniumtoxicity.com a very well researched site it is NTO just happening to those with kidney disease (Nephrogenic Systemic Fibrosis is the name of the disease process-the ONLY man-made disease there is!)

    Reply
  452. Faye   November 1, 2014 at 7:58 pm

    I just recently found out I have FM, and is hoping that a cure is found. Enough is enough

    Reply
  453. addwyn   November 1, 2014 at 7:05 pm

    JoanneJoanne was his name something like Brandwin?

    Reply
  454. Nicola   November 1, 2014 at 12:45 pm

    I read this a year ago and yet im still suffering so I’m guessing it’s not important enough to do it within our lifetime

    Reply
  455. JoanneJoanne   November 1, 2014 at 12:13 am

    At 66 yrs old I’ve had Fibro since before they gave it a name (back in my mid-20’s). After years of physicians telling me ‘nothing was wrong’ or ‘see a psychiatrist’ etc. a Rheumatologist sent me to a Dr. in St. Louis, MO (near my home) so he could examine me. Come to find out he was the physician who named the condition and he verified that I had it. I remember crying because FINALLY I wasn’t being told yet again that it was my imagination. He died many years ago and I can’t remember his name anymore. But he was such a kind man.

    The best explanation I’ve heard about the condition is that it resides in the soft liquid area between tendons and muscles. That made sense to me especially since any change in barometric pressure REALLY effects the condition! I admit I’m quite skeptical about this apparent ‘new discovery’. I guess time will tell if it’s correct or not. Until then I’ll continue on taking 600 mg Ibuprofen every morning to get me moving and a pain pill at night to help me sleep. Basically I just live with it. Don’t get me wrong though. I hope this IS the cause and that a cure will finally be found… Hope DOES ‘spring eternal’!

    Reply
  456. Fa Ken Masters   October 31, 2014 at 1:02 pm

    so where’s the cure?

    Reply
  457. crybabbee   October 31, 2014 at 11:31 am

    More dumb idiots trying to say they got a cure. This crap will go nowhere just like all the other “We’ve figured it out finally’s”. Please…..

    Reply
  458. Tony   October 31, 2014 at 4:28 am

    More idiot quacks giving false hope 🙁

    Reply
  459. STAFF   October 30, 2014 at 12:27 pm

    Kipler- Go trip on an electrical wire. No seriously.

    Reply
  460. Kipler   October 29, 2014 at 5:34 pm

    Since I started with my ○nline business, I bring in $12O per h○ur! I sit at h0me, music playing while I w○rk in fr○nt of my new iMac that I got now that I’m making it ○nline. All I do are easy tasks from this one c○○l site http://j.gs/4ek0

    Reply
  461. David Brock   October 29, 2014 at 3:30 pm

    I was diagnosed 4 years ago, fibromyalgia, osteoarthritis, nerve damage in my arms and carpal tunnel.
    I exercise lightly but very regularly, I hardly touch beer. The biggest help has been a refusal to give in. I was medically retired from royal mail but have recently taken a part time job. It’s hard going but I won’t give in.
    If a cure is found, I’ll be ecstatic. Until then it’s melodically and trampoline for me. Sleep is hard, but I take it when I can get it!
    My joints ache, my muscles ache, my stomach hurts and my extremities tingle, but I’m fighting back, so can you!!

    Reply
  462. Rebecca montague   October 29, 2014 at 2:04 pm

    Im having bad simpoms in my left hand point with my accupuncture treatments. It brused two months ago and i’ m having pain in my finger and thumb. Also, when she tune forked my damaged T11/12, a pain shot right up to that left hand point. Accupuncture has been helping my energy and sleep. Takes some time to peal the layers of fibro damage in this practice

    Reply
  463. Linda Howard   October 29, 2014 at 11:52 am

    I have been diagnosed with fibromyalgia; arthritis; fused vertebrae and sclerosis of the pelvis, hip and lower back.

    When I first was having MRI scans etc. and wondering if I had fibromyalgia, as all the symptoms suggested, my line manager asked if I had had an unhappy childhood.

    I worked in education which is supposedly a caring vocation, however I felt as others seem to have done, that it was viewed as ‘all in my head’. It took a year to diagnose and because of the evidence of MRI scans and x-rays I received early retirement on ill health.

    I also have had a partial thyroidectomy, because of an overactive thyroid,(Graves Disease). As well as a bleeding condition called Von Willebrand’s Disease. I think the thyroid is definitely linked and wonder how many other sufferers of fibromyalgia have this?

    It is unfortunate that chronic pain is sometimes not visible. At the moment I take Gabapentin and Co-codamol for the pain and wonder if there is other treatment or suggestions which help.

    I used to walk long distances and loved gardening, however I now feel 78 instead of 58
    and just want to feel more in control of the pain.

    Reply
    • Paula J Countryman   October 29, 2014 at 11:58 am

      Me too Linda. I have a fused spine in my lower back. And I did have an awfully traumatic childhood. I have an appt with a chiropractor who understands injuries as I have an old whiplash injury, so I will put it on here if this helps me walk better. I want to give you all hope and less pain. By the way, I’m 63, look 45 but feel at least 80.

      Reply
    • Jeniece   October 29, 2014 at 4:18 pm

      I also had graves disease several years ago and had the radioactive iodine treatment. I have fibromyalgia too. I was told by the endocrinologist that once you get one disease that has a positive ANA factor its easy to get another. I am always borderline for rheumatoid arthritis. Found out i have scoliosis in my back. Just everyday in pain as you know is not fun but we keep on with hope. Take care and blessings.

      Reply
  464. Phil   October 29, 2014 at 11:35 am

    Yeah, doctors do seem to say things like, it’s all in your head, or I never heard of that (as if to dismiss you). The problem is that Doctors have huge egos and put themselves on a pedestal (right next to God). They are afraid to simply say, “I don’t know what is wrong with you”. They also receive huge pressure from the pharmaceuticals to sell pills. Else they miss out on their convention trips to Pago Pago. Advice to the patient: Don’t be afraid to tell your doctor his if full of you know what! Seriously!

    Reply
  465. Dorothy DeWitt   October 29, 2014 at 4:50 am

    Before I finally got my diagnosis, and sometimes after, the doctors either didn’t know what was wrong, or when I mentioned I had depression………boom, we had a diagnosis. I was just depressed and all the pain and fatigue was a part of the depression. I knew better, but I couldn’t tell the doctors that or they got mad for questioning their diagnosis. It was a battle I fought for many years, until one doctor finally referred me to a Rheumatologist and within a few minutes with him, he diagnosed fibromyalgia, along with osteoarthritis. No wonder I was in pain. But, now it is still very bad, and I have nothing to take but Tylenol and that is a joke. It does nothing for me.
    .

    Reply
  466. :)   October 29, 2014 at 1:59 am

    Each person is different… each need is different…my fibromyalgia is ruled in combination to degenerative disk’ and RA, osteoporosis… over coming cancer’ and this pain starts at the base of my skull & neck , where muscles pinch nerves, causing severe pain & headache.. muscle spasm’s that control everything simetrickly’ trigger point shot’s sometimes knock out pain instantly’ to certain nerves…I know we all have pressure points, and who ever said it is all in the hands , needs to live in a few different types of pain’ from Fibromyalgia… it is in the head’ and neck muscles, shoulder muscles …feels like your head is too heavy for your shoulder’s some days, and sleep is a joke, when you’re tossing every 20 minutes to another position because your bones & joints hurt from the position your in..ask some one who is not a pill pusher’ believes that God can still heal…

    Reply
    • Paula J Countryman   October 29, 2014 at 4:04 am

      Sooo true! In addition to mild scoliosis, arthritis and other disorders, My whiplash injury from 1979 has caused my body the most pain, My head has to to be supported by my shoulder muscles. I’m in constant pain, and my chiropractor says it’s akin to trying to balance a bowling ball on the tip of a pencil. This really does a work out on the shoulders, and the spine. No wonder I’m in pain 24/7.

      Reply
    • marge vandolah   October 29, 2014 at 1:27 pm

      I have all of the exact same symptons as you…..have been bedfast for 2yyears…..i quit going to doctors…..some days i can barely move….i use a walker to go to bathroom….but struggle to get back into bed….i can only sleep one hour at a time and nap all day…my neck and shoulders are the most painfull….guess we are doomed to this life

      Reply
      • Paula J Countryman   October 29, 2014 at 2:50 pm

        Noooo you need to see an osteopath or chiropractor. You are not doomed unless you do nothing.

        Reply
      • Peggy   November 2, 2014 at 8:39 am

        I have had fibromyalgia for many years and I find that the longer I stay in bed the worse my pain is. Your muscles atrophy the longer you don’t use them. Marge please get up and push yourself to move. A little at a time but keep going. Do stretching exercises with your muscles or yoga! Go back to see a doctor they have new ways of handling this. Pain meds as needed but activity is a must. Where do you live? Don’t give in to this you can change things.

        Reply
    • Ruth   October 29, 2014 at 1:48 pm

      I am curious if you guys and gals would share what meds u take and also what meds help.
      I wondered if we are not “allowed” to mention names of meds.
      I recently added Flexeril to my meds and find it helps.

      Reply
      • You know who.   October 30, 2014 at 7:53 am

        Potential side effects of Flexeril:

        Common:

        Blurred vision
        dizziness or lightheadedness
        drowsiness
        dryness of mouth

        Less common:

        Bloated feeling or gas, indigestion, nausea or vomiting, or stomach cramps or pain
        constipation
        diarrhea
        excitement or nervousness
        frequent urination
        general feeling of discomfort or illness
        headache
        muscle twitching
        numbness, tingling, pain, or weakness in hands or feet
        pounding heartbeat
        problems in speaking
        trembling
        trouble in sleeping
        unpleasant taste or other taste changes
        unusual muscle weakness
        unusual tiredness

        Be sure to check the ‘interactions’ also. They can be profound.

        and click my name for the most likely cause of your Fibromybadback, err, I mean Fibromyalgia.

        Reply
      • peggy   November 2, 2014 at 8:46 am

        Ruth I too take Flexeril and it does help when my pain gets worse. I don’t take it daily but as needed. Also Tramadol helps.

        Reply
  467. Heather   October 28, 2014 at 11:02 pm

    If this is in the hands then what is the therapy for it? I get such pain in my hands and test done said i had carpal tunnel but the brace doesn’t relieve the pain and the pain goes up to my shoulders so how can that be carpal tunnel. I see the posts on qigong and cranialsacral but what else can i start with? I have a very understanding wonderful Muslim woman doctor who is working with me but my insurance doesn’t cover lyrica which was beginning to give me relief. I take herbal & vitamin supplements and even blended my own herbal tea which i have had some relief with. Now this news changes everything.

    Reply
  468. Kipler   October 28, 2014 at 4:43 pm

    L0ve my j0b, since I’ve been bringing in $120/h… I sit at h0me, music playing while I wσrk in fr0nt of my new iMac that I g0t now that I’m making it 0nline. All I do are super fun tasks from this one c00l site. Check this out! ░░▒ http://j.gs/4ek0

    Reply
  469. TAMR   October 28, 2014 at 4:01 pm

    I have HOPE!!

    Reply
  470. Chaplain Mark   October 28, 2014 at 7:16 am

    then why does it affect women more then men? The diagnoses makes not sense.

    Reply
    • J   October 28, 2014 at 10:26 am

      It doesn’t affect women more than men. Men simply don’t report it to there doctor because they’re too “manly” to have something they think only women get.

      Reply
  471. Gin Fougere   October 28, 2014 at 6:41 am

    Qigong and reflexology has given me my life back. So much better than any medication I had to take for fibromyalgia, although I still have to rely on them when going thru a rough patch.

    Reply
    • phinewine   October 28, 2014 at 7:28 am

      Yep, I have seen a combination of Qigong and CranioSacral therapy completely remove all symptoms of Fibromyalgia. The problem is that most people want a magic pill and will not try exercise or alternatives to allopathic medicine.

      Reply
      • JB   October 28, 2014 at 8:32 am

        CranioSacral therapy is AMAZING! I can’t say that loud enough! You have to be open to it, but it definately helps!

        Reply
        • Monica   October 28, 2014 at 2:10 pm

          What is cranial therapy?? And where do u get it??

          Reply
  472. Botolf Campbell   October 28, 2014 at 4:44 am

    Exercise really makes me worse, I can’t move very well due to a crumbling spine and the resulting surgery. I can’t bend and definitely can’t get back on a bike. Sleep medication makes me drowsy for 12 hours but I still only get a few hours sleep, morphine doesn’t help with the pain just makes me a space cadet. I get temporary paralysis from the waist down, some days only for a few minutes, the longest time was over 3 hours, exercise makes this worse as it creates more wear and tear and further damage to the nerve endings.

    Reply
    • phinewine   October 28, 2014 at 7:30 am

      Like I mentioned above on Gin’s post: I have seen a combination of Qigong and CranioSacral therapy completely remove all symptoms of Fibromyalgia.

      Reply
  473. Elly Ferguson   October 27, 2014 at 11:35 pm

    I have had fibromyalgia since my late twenties, I am now in my seventies. I was diagnosed at about 43 years of age and have struggled since. Bring on a cure I say.

    Reply
  474. Bosko   October 27, 2014 at 7:58 pm

    my Aunty Nora just got gold Mitsubishi Outlander Hybrid by work part-time using a laptop. find out this here . http://j.gs/4ek0

    Reply
  475. Nancy Hawke   October 27, 2014 at 6:54 pm

    I know all about that pain,cure Bring It On.

    Reply
  476. Sharon Boone   October 27, 2014 at 1:33 pm

    I was diagnosed w/FB at least 10 yrs. back…but once I got on a C-Pap machine after being diagnosed w/Sleep Apnea, and after a lot of prayer for me I don’t claim it anymore. I experience some stiffness but not the debilitating inability to move w/o pain or when someone would touch my body. Receiving quality sleep and being able to enter into my deepest sleep levels, I am healed of Fibromyalgia…and I don’t want it back.

    Reply
  477. Anon   October 27, 2014 at 8:33 am

    My FB is a side effect of Cushing’s Disease. It actually causes your body to create more blood vessels throughout the body, as it enlarges the body more blood vessels are needed. This causes more wide spread pain. I’m curious if they examined if these patients have excess blood vessels throughout their bodies, or if the hands are the sole cause?

    Exercise makes Cushing’s worse and aggravates symptoms. It’s the only disease I know of that you should avoid exercise. Those who recommend it for Cushing’s patients make things worse for them without knowing what they’re doing.

    Without narcotics I am bedridden and wheelchair bound. I wish that FB was my only source of pain so that if a cure is found I could benefit too. Unfortunately, in my case, it won’t make much of a difference. Cushing’s disease brought with it too many problems to solve. They say I’m permanently disabled and probably suffering from MSA too. How does Cushing’s Disease cause all this! ?

    Reply
  478. Jacqui Raymond   October 27, 2014 at 4:00 am

    I have been diagnosed with FB and RA about 5 years ago, being on numerous medication and chemo tablets I cope from day to day. At one stage I could hardly walk with pains in my hips and muscles, I started cycling and it was wow with the change in my body, it made me feel better about myself and my pain got less although sleepless nights are getting me down. I refuse to take anti depressants. I would love to know if ever there will be a cure for FB. My sympathy with all my fellow FB friends out there….don’t stop exercising, hydro therapy is wonderful. Stay positive and don’t give up.

    Reply
  479. barbara   October 26, 2014 at 10:13 pm

    I have fibromyalga and the pain and fatigue are getting to be unbearable

    Reply
  480. christine hossfeld   October 26, 2014 at 4:23 pm

    in 30 years since I was diagnosed with it they still are no step further……all kinds of fundraising for research for all kinds of illnesses and or dideases I never saw one for fibromyalgia…in the Netherlands you are still treated as being stupid and its all in your head…..it sux

    Reply
    • Rosy Doherty   October 27, 2014 at 12:11 am

      They talked some months ago about a blood test is becoming available this e=will cost alot of money people cant afford a= something like 700 or 800$. this in the states and god only knows when we would have
      it available here in Ireland.

      Reply
  481. Julie   October 26, 2014 at 3:26 pm

    What are the tests needed to diagnose Fibromyalgia ? . I had blood tests a few years ago and my Dr said I don’t have it !!

    Reply
    • Kim   October 26, 2014 at 4:39 pm

      There really isn’t one said test. It’s actually a battery of tests to rule out other things such as RA and Lupus. They do include blood tests though. My doc actually even tested me for Celiac’s and did an exclusion diet to see if I was allergic to foods as well as sent me to specialists for their own battery of tests. Super exhausting and then they say, “We have rules out this, that and the other thing so we believe we can safely diagnose you with Fibromyalgia.”. I was told to eat better, exercise more and to get more sleep. I was out on anti-depressants for over a decade. They did nothing but put me in a fog.

      Reply
      • johnieuno   October 26, 2014 at 5:01 pm

        Blood tests do not determine whether or not you have fibro, it is determined by your symptoms.

        Reply
    • Carol   October 27, 2014 at 12:14 am

      I have had fibromyalgia for 51years my diagnosis was done on the 21 pressure points all over the body

      Reply
  482. judy   October 26, 2014 at 1:05 pm

    What Is the cure?

    Reply
    • Paula J Countryman   October 26, 2014 at 4:33 pm

      Cure the symptoms, you’ve cured the condition. Here is a video you may be interested in. “You know who” may have a horrible bedside manner, but he’s correct on all other counts. Raise your hand if you enjoy living in pain every moment of every day..If not, then watch this wonderful doctor offer us the hope and cure we’ve been searching for.

      Reply
      • Marie Stoltz   October 27, 2014 at 2:32 am

        I was diagnosed with fibromyalgia 3 months ago. I suffered from the symptoms for about 2 years. I am 52 years old. I am currently in Namibia. Where can I find out more and maybe get the help I need! Please!!!

        Reply
  483. You know who.   October 26, 2014 at 4:35 am

    With three new comments posted within four minutes by two new users, both seeking medical advice and after considering the seething hatred for and failed attempts to discredit me so far, it occurred to me that it may be illegal to advise others even with a disclaimer no matter how noble your intentions are, how damn good your advice is, or how desperately some people need to read the truth instead of the latest line of commercially motivated propaganda.

    It occurred to be that I could be set up by those who desperately want me off this website. Possibly by those who stand to lose ad revenue, clients, or drug sale profits.

    From now on, I will simply suggest a click on my name. Soon, I will create a new page explaining how I transformed my life drastically ultimately becoming the most healthy and resilient person I have ever known. I will also explain how I saved one life and significantly improved three more. Finally, I will explain my ‘suspicions’ regarding Fibro, RLS, and a number of ‘conditions’ which doctors have failed miserably to make any real progress on.

    What a pathetic state of affairs when the most bloated pig industry in the world can get away with drugging everyone while curing nothing and reaping multi-billion dollar profits.

    Reply
  484. Krista   October 26, 2014 at 4:32 am

    The symptoms hit me in my early. 3os. I found a book called what your doctors may not tell you about fibromyalgia. Dr st. Armand is the author. Get it. It explains how this condition operates at the cellular level. I take guaifenesin every day per the book. I am symptom free. My pressure points are gone. I sleep at night. No more fibrofog. This article misses the point.

    Reply
    • You know who.   October 26, 2014 at 4:37 am

      If that were true, then a definitive test would have been perfected by now.

      Next.

      Reply
    • Rosy Doherty   October 27, 2014 at 1:25 am

      What exactly is guaifenesin? U see i,ve been put so many anti inflammatories and anti depressants but had absolutely no relief from pain whatsoever, only seem to cause all sorts of other problems. I WAS EVEN PUT ON THE GREAT SO CALLED BREAKTHROUGH DRUG FOR FB SUFFERERS FIRST ON IT’S ON AND THEN ALONGSIDE CYMBALTA AND NOCTAMID FOR SLEEP. AT THAT STAGE I WAS ON AT LEAST 12 TABS A DAY IF NEEDED HE SAID MAX TOP IT UP WITH PARACETAMOL. THERE WAS STILL NO PAIN RELIEF, THE NERVE PAIN SEEM TO GO CRAZY RIGHT AFTER INITIAL DOSAGE AND I WAS TOLD TO BE PATIENT BY MY DOC, WAS VERY TO DEAL WITH THE PAINS AT TIMES NEARLY DROVES ME UP THE WALLS NIGHT AND DAy. ONLY FOR BEING A SINGLE MOTHER TO A YOUNG SON, THERE WERE TIMES I JUST WOULD HAVE GLADLY WELCOMED DEATH SO I HAD TO WAS DESPERATE FOR RELIEF IN ORDER TO SAFEGUARD MY SON. IT WAS HE WHO SAVED ME. STILL NO CHANGES AFTER 2 YRS, I SAID TO MY DOC THIS BUT HE STILL INSISTED, I SAID I HAD ENOUGH,HE DIDN’T BELIEVE HE HAD ME ON THIS LONG, UNTIL HE WENT INTO MY FILES. THE END RESULT WITH TERRIBLE MUSH IN MY MUSCLES ‘FLACCIDITY’ FROM OVERUSE OF ANTI INFLAMES. AND BECAUSE MY UNDERLYING PROBLEM IS HYPERJOINT SYNDROME MY CONNECTIVE TISSUE WAS ALREADY WEAK,AND FAR WORSE NERVE, KIDNEYS AND STOMACH PROBLEMS TOO I ALSO NOTICE READING PROBLEMS AND TRY TO USE CAPS MOST OF THE TIME! SUFFERING ALL THE PAIN WAS BAD ENOUGH BUT WHEN YOU HAVE TO GO DOWN THIS ROAD IN THE HOPE OF RELIEF AND ONLY END UP WITH MORE PROBS. IT JUST KNOCKS THE STUFFING OUT OF YOU. CAN ONLY DESCRIBE IT LIKE BEN LOCKED IN A TORTURE CHAMBER AND THEN THEM THROWING AWAY THE KEY,… ALLOT OF PEOPLE I KNOW WITH HJS AND FB HAVE SIMILAR INTOLERANCES TO THE CHEMICALS IN DRUGS.THEREFORE I WONDER HOW YOU GOT THIS EASY CURE AND DID THEY MAYBE EVEN MISDIAGNOSE YOU

      Would be very interested in your answer please ssssssssssssssss! thanking u ,,,.

      Reply
    • Rosy Doherty   October 27, 2014 at 3:53 am

      WELL CAN’T COMMENT ON BOOK, BUT I HAVE SEEN THIS VIDEO SOME WEEKS AGO AND CAN RELATE TO EVERYTHING IN IT. MY SPINE AND NECK HAS SIMILAR DAMAGE AND MISALIGNMENT WHO HAD PULLED UP MY LEG SHORTER THAN THE OTHER DUE TO DISC DEGENERATION AND A SCOLIOSIS CURVATURE OF SPINE,ONE NECK DISC COLLAPSE AND AN EMPINCHMENTIN THE THE NERVE. THE REACTION TO PROCESSED FOOD AND ANYTHING THAT IS NOT NATURAL IN FOOD PRODUCTS, THE SAME.THE VIDEO DRAWS A VERY UNCANNY DESCRIPTION TO ALL THE SYMPTOMS I HAVE AND I FEEL WE ARE BEEN SLOWLY POISONED BETWEEN PROCESSED AND SPAYED FOODS AND ALSO USING DRUGS WITH CHEMICALS ADDED, AS ANYTHING UNNATURAL CAN’T REALLY CAN’T BE GOOD FOR US. I THINK MAYBE WE ALL HAVE TO OPEN OUR EYES MORE TO A MORE NATURAL ROUTE TO TRYING TO IN THE FIGHT AGAINST THIS FM AND OTHER CONDITIONS. MOTHER EARTH HAS GIVEN US SO MANY NATURAL GROWN HERBS AND EVEN WHAT WE REGARDS AS WEEDS, LIKE NETTLES. SO MORE MONEY SHOULD BE INVESTED IN THIS TYPE OF RESEARCH INSTEAD OF THE UNNATURAL CHEMICAL COMPOUNDS WE ARE STARTING HAVE BAD REACTION TOO. SOME PEOPLE ARE OK WITHOUT ANY IMMEDIATE REACTION BUT WHAT HARM COULD THEY BE DOING IN THE LONG TERM. IS MORE WORRYING, LYRICA PRODUCTION HAD BEEN WITHDRAWN AFTER THE DISCOVERY OF TUMORS ON THE MICES HEADS THAT THEY WERE BEEN RESEARCHED ON. I HAD FOUND OUT AT THE TIME I WAS BEEN PRESCRIBED IT IN SPAIN AND THAT WAS SCARY WOULD NEVER HAVE KNOWN A THING UNTIL I RESEARCHED FOR MY SELF. TO ME IF WE START TO DAMAGE THE VERY HUMAN CELLS WE, SHOULD BE TRYING TO PROTECT FROM FREE RADICALS AND THEN POISONOUS CHEMICALS, WE REALLY ARE ASKING FOR TROUBLE. I THINK A LOT OF DOCTORS HAVE COME ALONG WAY ON THIS AND MORE NO TO A HOLISTIC NATURAL APPROACH AS A COMPLIMENTARY MEDICINE AS I WAS NICELY SURPRISED TO KNOW I COULD AVAIL OF ACUPUNCTURE. THERE IS STILL MUCH WORK TO BE DONE! BEST OF LUCK TO ALL WHO SUFFER OUT THERE AND TO THE DOCTORS ALSO AND THE HOLISTIC WORLD, IN WORKING HAND IN HAND I BELIEVE ONE DAY A SOLUTION WILL BE FOUND, SORRY IF THIS VERY LONG BUT WE THE SUFFERERS KNOW ALL TO WELL THAT HARDLY ANY PART OF US THAT IT DOESN’T INCLUDING THE BRAIN WITH= ALL SORTS IF PAIN IN PLAY,ONE TRYING TO OUTDO THE OTHER,WE SO DESPERATELY NEED A LOT MORE RESEARCH { I’D GLADLY VOLUNTEER FOR THIS} ANY SUGGESTIONS OUT THERE ANYONE? AND MONEY TO GIVE PEOPLE SOME HOPE. PLEASE HELP,

      Reply
  485. Jennifer Bentley   October 26, 2014 at 1:32 am

    How do you get more sleep and do more exercise if you’re in so much pain that either of those options are impossible to achieve. ???

    Reply
  486. Kristina   October 26, 2014 at 1:30 am

    I am 18 now, and have been struggling with Fibromyalgia for about just over 4 years now.. It has been a very rough road, and have gone through numerous so called ‘solution’ to my illness. I have found that everything I have been prescribed and tried only reduces the symptoms and makes life a bit more bearable.
    My mom is always on the look for new possibilities, so this was very helpful. I am currently on 120mg of Cymgem, which appears to be working so far. If anyone else has any suggestions that you have tried I would really appreciate it. I am in my Matrix year at the moment and am really trying to cope with this illness and my finals.. Any suggestions would be much appreciated! Thank you xx
    Kristina

    Reply
    • Kristina   October 26, 2014 at 1:34 am

      *matric, sorry

      Reply
      • You know who.   October 26, 2014 at 4:01 am

        Watch your weight, improve the health of your back, and never take any pharmaceutical until you’re familiar with the potential side-effects.

        And of course, find a doctor you can trust within that miserable and corrupt industry and consult with him or her before taking my damn good advice.

        Reply
  487. margaret lacey   October 25, 2014 at 5:32 pm

    a chance some body will find a cure restless leg syndrum there is so many sufferes now thtre should be a cure

    Reply
    • paula bradley   October 26, 2014 at 3:14 am

      Gabapentin are good for restless legs i just take 1 100mg and it works for me

      Reply
    • You know who.   October 26, 2014 at 3:57 am

      RLS is caused by tickled spinal nerves. I know this because I’ve already cured two cases of it. If you’ve had the symptoms, consider your recent activities and try to avoid highly repetitive twisting motions of the lower back.

      The two cases I cured involved a woman doing too much laundry and a man doing too much shoveling.

      And never take any pharmaceutical until you are familiar with the side-effects.

      Of course, you must find a doctor you can trust within the miserable and corrupt healthcare industry and consult with him or her before taking my damn good advice.

      Reply
  488. Connie Gonzalez-Carus   October 25, 2014 at 9:28 am

    Thank you for this article!!! I was just diagnosed with Fibromyalgia; very helpful!!!

    Reply
  489. You know who.   October 24, 2014 at 7:30 pm

    The video is called Fibromyalgia One Solution.

    Fibromyalgia One Solution

    You should watch the video.

    Fibromyalgia One Solution

    Reply
    • Paula J Countryman   October 24, 2014 at 7:48 pm

      You bet I will as soon as I get home from work in the morning.

      Reply
    • Paula J Countryman   October 25, 2014 at 5:53 am

      I just watched and subscribed to the video. The Dr. could have been showing my spine and neck, that’s how similar mine was to the woman’s in the photo. It sure would be wonderful not to have to suffer anymore. He called it subluxation. Hit it right on.

      Reply
  490. You know who.   October 24, 2014 at 7:23 pm

    I just found a video produced by a chiropractor who is absolutely convinced that Fibromyalgia is essentially a back problem.

    Before you people accuse me, no I am not a chiropractor. I don’t need one because I have back health down to a science. Just watch the video and call your local chiropractor. A physical therapist may be able to help as well.

    The key to recovery is to improve the condition of your back.

    I can’t get the link to copy. Just go to Youtube and search the word Fibromyalgia. Look for the video with the diagram of a back shown. Or search Fibromyalgia chiropractor. You will probably find the same video or one like it.

    I am not a chiropractor. I’m just a blogger with strong opinions regarding health and anti-aging.

    Find the video and call your local chiropractor.

    Reply
    • Paula J Countryman   October 25, 2014 at 1:51 pm

      He’s right. Yes, our bodies hurt like hell, that’s a real thing. But, this is the first time I have ever heard that Fibromyalgia is a symptom, not a medical condition. If it was, there would be a blood test for it, Others and myself have been spending years searching for validation when what we needed was the truth.

      Reply
  491. You know who.   October 24, 2014 at 5:28 pm

    I am being censored yet again. This makes 5 or 6 times. I will post my detailed reply to Valerie Scofield on my webpage. Click my name.

    Reply
  492. Lucille Weiss   October 24, 2014 at 1:15 pm

    I had Poly Myalgia for 9 years the only thing that helped was cortisone and my knees were never the same

    Reply
  493. Lin Kendrick   October 24, 2014 at 11:42 am

    But surely this is just a repeat of a report circulating ages ago, which at that time was said to be a couple of years old. I don’t think there’s anything new here (sadly)

    Reply
  494. Rose Kerr-Gilbert   October 24, 2014 at 10:20 am

    Where can I actually get help? I’m so sick of being a guinea-pig.

    Reply
  495. Judith Cilliers   October 24, 2014 at 4:38 am

    What is the cure???

    Reply
  496. You know who.   October 24, 2014 at 12:35 am

    But your theory is entirely compatible with mine. After all, the impulses to those muscles are sent via the spinal cord. It seems to me that if those impulses are disturbed, especially on a regular basis, they could result in the ‘taut’ condition you refer to. They could effect the rate at which your body produces those chemicals or it’s need for them. So the way you sit or stand could be a huge factor regardless. Regular use of pain killers and/or other pharmaceuticals may interfere as well. Possibly in the same way.

    Whomever published that theory you refer to doesn’t want the underlying cause discovered. They want their particular layer considered for additional research. A layer subject to ‘treatment’ not prevention. My guess is that a drug maker is involved. They almost always are.

    By the way, it’s one hell of an interesting coincidence that you have scoliosis. That’s two admitted back problems on the same page.

    Reply
  497. You know who.   October 23, 2014 at 6:39 pm

    Stormfighter, I challenge you to explain, keeping in mind that there is no definitive ‘test’ for Fibromyalgia, how in the name of all that is logical it can be determined that babies are now being born with it. What? Do the doctors ask (in baby talk, of course) for newborns to describe their symptoms?

    If babies are now being born with something resembling Fibromyalgia, which I seriously doubt, it’s almost certainly because their idiot parents were on pharmaceuticals when they conceived or during pregnancy, which they ended up pumping right into the bloodstreams of their innocent babies during the critical stages of development.

    By the way, I do appreciate the fact that you rose above your contempt for me by admitting the possibility that I’m trying to help.

    Keep searching your lifestyle for possible contributory factors. I’m telling you this condition is avoidable like virtually all that Americans, IN PARTICULAR, suffer from.

    Reply
    • Paula J Countryman   October 23, 2014 at 7:30 pm

      Surely you are jesting in your reply to ‘ Stormfighter’ http://www.ncbi.nlm.nih.gov/pubmed/2581184

      Reply
      • You know who.   October 23, 2014 at 8:09 pm

        I stand by my theory regarding pinched or tickled spinal nerves. They are most likely, the primary contributory factor. I’ve already proven that they are the cause of Restless Leg Syndrome. However, the data you linked to lies in a ball park far too wide to be relevant here. After all, the word ‘Fibromyalgia’ doesn’t appear anywhere on that page. No implication whatsoever is made.

        Reply
        • Paula J Countryman   October 23, 2014 at 8:55 pm

          You do understand that fibromyalgia can be compared to running a 5K marathon, but instead of relaxing, our muscles remain taut? This is the reality of just some of the pain and inflexibility endured. Some then turn to muscle relaxants for sleep, and pain medication to perform normally during the day.It is thought we have “lower levels of the muscle-cell chemicals phosphocreatine and adenosine triphosphate (ATP). Such chemicals regulate the level of calcium in muscle cells. Calcium is an important component in the muscles’ ability to contract and relax. If ATP levels are low, calcium is not “pushed back” into the cells, and the muscle remains contracted.” This makes more sense to me than how we sit or stand. I have scoliosis, so I don’t find sitting up straight to be comfortable in the least.

          Reply
          • You know who.   October 24, 2014 at 12:53 am

            My reply is posted on the next page.

        • Colin   October 24, 2014 at 8:12 am

          Having a spinal Injury at neck level and lower back plus thoracic all from a mva. I have the symptoms for fibro. Is there any method you know of to help alleviate symptoms

          Reply
          • You know who.   October 24, 2014 at 9:13 am

            I’m not a doctor or a chiropractor. But I would recommend seeing a chiropractor or a physical therapist. Some of their techniques are shared.

            By the way, it was proven a few years back, after years of disbelief, that even severe disc injuries can be healed in many cases. But it takes months at the very least and its a bit tricky.

            Good luck.

          • Paula J Countryman   October 24, 2014 at 10:16 am

            I was in a car accident which damaged my neck. My chiropractor calls it a military neck, because it has no curve. He described it as my head being a bowling ball trying to balance on the head of a pencil. He also said the condition could be repaired almost 100% He manipulated my neck, gave me exercises and they help tremendously. Of course, my insurance only pays for two visits a year and I need more than that. As for the pain of my arthritis and my fibromyalgia, I can live with that, what I find difficult to live with is the pain of inflexibility. Thankfully, opioids convince my muscles they’re not inflexible, as to be flexible we need to use our muscles. The opioids allow me to do that, especially at my job which is quite physical.

  498. Fibro police   October 23, 2014 at 5:02 pm

    I have been living with this for 20 years and any info i can get is awesome as long as it comes from a positive source .You know who … you are a dick .You presume that the gentleman was blaming his probs on fibro probs when IN FACT WHEN YOU SUFFER SEVERE PAIN ALL OVER YOUR BODY REGULARLY THE REST OF YOUR BODY SUFFERS AS WELL YOU IGNORANT PERSON.Have you ever heard of when one goes it all goes and itès just not a physical prob but it;s also a mental one when you live a life with no controll,where you can really plan nothing ahead of time because you hate to cancell yet again .And if you dont think that this man has sought propper help then by all means help but until then stay off the site.

    Reply
    • kimberley horning   October 23, 2014 at 7:28 pm

      Hi there, I too was diagnosed with fibromyalgia about 25 yeats ago and it was very difficult to get supportive treatment. Many healthcare providers kind of blew it off as a mental issue which not only didn’t help the suffering, usually only managing to make us feel worse and irrevelent. I was fortunate, my fibro kind of outgrew itself, the pain just went away after about 3 years. Good luckt to you.

      Reply
      • You know who.   October 23, 2014 at 8:28 pm

        I’m glad you recovered. But it didn’t just happen. Something significant about your lifestyle changed within that 3 years. Whatever it was, it probably resulted in a more healthy back.

        I am curious why you would visit a page like this 22 years later. I showed up specifically to give advice.

        As expected, as usual, it has not been taken seriously.

        Reply
    • You know who.   October 24, 2014 at 1:06 am

      The ‘proper help’ will come from a chiropractor, a physical therapist, or someone else with some sort of experience getting people in some sort of decent shape.

      Find a hotel with a pool, stay for three nights, use the pool each day, get a warm shower and a good rest on a quality mattress afterwards, and re-evaluate after three days.

      Or get a low stride elliptical. If your legs function, then you can use one. Period. If you refuse, then you are a lost cause.

      Because this is the litigation capital of the world, I must let you know to find a doctor you can trust (good luck) and consult with him or her before taking my damn good advice.

      Reply
      • CET   October 24, 2014 at 4:39 am

        You Know Who… Let me explain something, which will counter your “theory” around fibro. I am a 32 Y/O male who is active and in good shape. I eat healthy, exercise and have a sound mind. I do not smoke, nor do I consume allot of alcoholic beverages. When I was in my mid 20’s I started experiencing extreme pain and a shock sensation up my back, through my neck and into my arms. I was completely drained of all energy and found it hard to get out of bed in the morning to even function for an hour.

        To make a long story short, after dozens of blood tests, MRI’s, CT Scans etc. the diagnosis came back as fibro. I had some of the best doctors reviewing my files and consulted with many professionals from Mayo clinic. I went to a chiropractor regularly for treatment but in the end nothing helped.

        At the end of all my tests I was prescribed Lyrica. I have been taking Lyrica for about 1.5 years now and my ability to function a regular lifestyle has been restored.

        You comment “Keep searching your lifestyle for possible contributory factors. I’m telling you this condition is avoidable like virtually all that Americans, IN PARTICULAR, suffer from” is an ignorant, uneducated, selfish statement. Until you understand the TRUE facts about what someone suffering from Fibro is going through then I suggest you mind your own business. Nothing about my lifestyle is contributing to the pain and fatigue I suffer!!!

        Reply
        • You know who.   October 24, 2014 at 8:57 am

          The ‘extreme pain’ and ‘shock sensation’ up your back, through your neck and into your arms was almost certainly a pinched nerve (back problem). Something was suddenly altering the pain impulses your body sends to your brain. Sounds like a middle back injury. Those symptoms are dead ringers. If your doctors failed to address that damn near certainty FIRST AND FOREMOST, then like many doctors, they wanted to focus on the specific layers of your ‘condition’ more relevant to their own specific field so that they could ‘test’ and ‘treat’ you thereby making an ill-gotten profit. It’s called corruption and it’s become very common in commercial healthcare.

          ‘Dozens’ of tests including blood tests? For a man in his mid twenties who had “started experiencing” ‘extreme pain’ with ‘shock sensations’? Blood tests for symptoms most likely indicating a middle back injury?

          Your doctors were either crooks or morons. Another possibility is that you’re a liar so offended by me, because of my position on fibro and my ‘attitude’, which you people have become obsessed with, that you will resort to whipping up stories riddled with conflicting details in a desperate attempt to discredit me.

          Tell me. Which ‘test’ finally led to your diagnosis of ‘Fibromyalgia’. It’s a specific question. Be specific with your answer.

          By the way, an ‘MD’ would not have referred you to a chiropractor. They would have referred you to a physical therapist. It’s another fishy element of your story.

          Finally, Lyrica, a pharmaceutical with known side-effects including weight gain (thats right, it makes people fatter) and difficult concentrating, is prescribed on a ‘thought’. Not a clinically proven cause and effect. That sort of reckless medicine should be illegal.

          It’s funny how, in yet another conflicting detail, you seem to have avoided the most common side-effects.

          Reply
          • Valerie Scofield   October 24, 2014 at 11:08 am

            I have been watching your comments with interest and dismay. I don’t think you have Fibromyalgia, and don’t think you are a Doctor. I don’t even think you have been studying it for fifteen years as my husband and I have! Yet in quite a strident way, you pooh pooh everything anybody says. What absolute right have you to do this may I ask? You think you know everything, but you don’t. Nobody does, there is no cure, not yet, and not for certain, and I have been to many Doctors and Specialists, and they have all said the same.
            Fibromyalgia is a blanket term meaning pain in the muscles and stiffness. Mind you, if you had it, you would be looking at everything you could find on the Internet and in books and having many tests as I have, and trying many many things. I was diagnosed, after eight years, (which is pretty much the time it takes to get there), by a Rheumatologist who presses trigger points on the body, and if they are more painful than they should be, for pressure applied, along with other things such as allergies to many medications, little or no sleep, sensitivity to light and dark, loud noises, uncoordination, dizziness and lack of balance, digestive problems, IBS, the list goes on. A pretty good way of knowing whether one has Fibro, which is recognized now in so many countries by professionals.

            Before I was diagnosed, I went to a Neurologist, a Psychologist, a Psychiatrist, a Bio-energist, a Hypnotherapist. I had a brain scan as well as two spinal scans. According to them, I was healthy, but the Neurologist thought in time I would show more problems of Parkinson’s. All wrong! The Rheumatologist hit it on the head, but couldn’t give me anything much. Pur blokas to slow the mind/body connection down, as he said that the messages from my brain were getting confused as they went down to my limbs, therefore causing stress and shakiness and the uncoordination. A small dose of Trepiline for sleep, as anybody who doesn’t have deep Alpha sleep gets ill in one way or another. Also Anti-depressants in small doses, as if you had Fibro, and couldn’t walk like me, and had to crawl, you would sure feel bad, but then you wouldn’t know would you?
            I have been a hugely active person in my life, landscaping gardens, decorating, walking, hiking, doing stacks of admin, re-training at 48, taking stacks of exams, the lot. I have Scoliosis from when a child, and it was seen as round shoulders back then. Because of it, I take less oxygen into my body. Now at my age of 66 it is too late to do anything about. I also have had Amalgam fillings (10) from a child of six. Dentists don’t like using them now – poison in your body. I am presently having them out – a long expensive process. I think I am in a position to know more about this than you do, whatever you say.

            I think you should discontinue your posts, as people with Fibromyalgia are very sensitive, and have high anxiety levels. You will make them worse, not better. If you have any empathy at all, you will. However, I think as long as people reply, giving you oxygen, it will carry on from you. O.K. I have given you a reason to reply, but only because I know what I am talking about, I have had the scans, the examinations, all the blood tests and spent a fortune.

            I have exercised, know the complete exhaustion the following day, and lately have been to a Integrative practitioner who has given me extensive, blood, sputam and urine tests from expensive laboratories. I have eaten the right healthy foods, and have lost weight – 10 kilos, now 53 kilos, right for my height. I have critically low thryroid and also low good adrenaline. I would advise anybody who has Fibro to test for T3. It is simply not good enough to test for TSH. Also to test their Adrenals. Very, very important!

  499. Bill   October 23, 2014 at 12:11 pm

    If this is the main reason that’s great news because I’ve be dealing with this for 15 years and my life has be a living hell. I also have back,hip,neck and ankle problems and I never know when the fibromyalgia is going to flare up but when it does all hell breaks lose and my body just wont do what I want it to do.Simple things like walking gets difficult sleeping is non existent and the pain is unbearable. So if this is the beginning of treating fibromyalgia patients this is excellent news. And all these doctors that didn’t believe their patients and told them that the pain was all in their heads are quacks and I hope they get this ailment and I also hope they are not going to get treated for the amount of time that their patients had to deal with their pain.

    Reply
    • You know who.   October 23, 2014 at 1:59 pm

      Another ‘fibro’ case with a back problem. Gee what a shock. Don’t you people make even the slightest attempt to think outside of your ‘poor little me’ ‘fibromyalgia’ boxes? How can you live with pain for 15 years and STILL be unaware that back problems alone have been known to cause pain all over the body? Look at a diagram sometime. You will see that most of your nerves run up your spine. So if those nerves are disturbed anywhere along the way, they can send pain signals right to your brain just as if they were being sent from another part of the body. You wouldn’t even know the difference. But it is well known within the medical and chiropractic fields. If you people are going to let yourself go and pretend as if Mother Nature is going to excuse your weight, inactivity, bad posture, bad form, bad work habits, bad sitting, resting, and sleeping habits, then you have nothing to complain about.

      See a chiropractor, take a few weeks to get in decent shape, then re-evaluate. If your chiropractor gives you a clean bill of back health and you STILL have the same degree of pain, then maybe you do have a legitimate condition. But you need to rule these factors out first.

      Regardless of which came first, the fact is that inactivity, poor flexibility, and/or bad form are literally enough to CAUSE pain all over your body.

      SEE A CHIROPRACTOR.

      Reply
      • Mshell   October 23, 2014 at 2:29 pm

        You are obviously a chiropractor who is in desperate need of business, and with a bedside manner like that I can see why. Do not presume to think you know anything about everyone with fibro, I am not overweight, in fact under by every test, I excersise everyday, work fulltime + hours, have a family and a household to run, I have tried chiro, physo, naturopath, herbalist and from time to time conventional medication when the pain was truely unbearable. As for this “poor me” tgT again is a load of crap if you ask how many people with fibro tell people they have the condition it would be very few and a lot of the reason is due to small minded opionated pratts like yourself.
        I believed this thread was for those that wanted to he updated on any information regRding this study not to be made feel worse by trolls.

        Reply
        • You know who.   October 23, 2014 at 3:58 pm

          I’m being censored again. Unable to post reply. Click my name and read it there.

          I’m not a kyropracter (I know but I’m being censored again) and I have NOTHING to gain. So find the courage, click my name, read my detailed reply, forget about my attitude and consider the possibility that I’m trying to help you.

          Reply
          • Stormfighter   October 23, 2014 at 4:56 pm

            Giving theory upon theory isn’t really helpful. you don’t know everyone that has Fibro. You don’t know their stories, you don’t know what they’ve tried and hasn’t worked for them. and though your trying to help you don’t know everyone symptom’s. There’s even studies that babies are now being born with it. our bodies are made differently from normal people. Some people are born with Fibro and the symptom’s don’t kick in right away, it’s usually triggered and awaken at some point in their life. I was always sick as a kid and in eight grade I had one final sickness that activated my Fibro. it took three months to get an answer three days before my birthday. People who have Fibro don’t tell anyone outside their trust circle about their condition and even then they don’t even know. people are small minded and people with fibro just want to live their lives not under constant judgment from people who don’t understand. and people that have dealt with Fibro ( some) won’t be very open with accepting help outside the fibro community. But the one thing we need is some kind hope that there is a step toward a cure and we just need hope not theories that may or may not work.

  500. Erik   October 23, 2014 at 8:39 am

    I wonder if those suffering with fibro would help answer another informal survey to see if this sheds light on the mystery of fibro:

    1) Do you have silver (amalgam) tooth fillings, and if so, how many and for how many years?

    2) How many vaccinations have you received, and do you get shots regularly?

    My theory is that those with fibro will have above average exposure to one or both of the above.

    Reply
    • You know who.   October 23, 2014 at 4:22 pm

      Erik, good on you for thinking out of the box. I don’t know about your theory. But don’t expect much cooperation from these perfect little victims. Most of them just want to lay on the couch, take their meds, get fatter and tell each other how sick they are.

      I’ve known over a dozen women diagnosed with fibro. Only one of them has ever made any attempt at all to take care of herself. She is active. Unfortunately, she takes LOUSY care of her back. Always mixing cat food with one arm leaned over the counter or table slightly and always bending over to pick up cats, cat bowls, cat toys, cat blankets, cat furniture ect. Her form is TERRIBLE.

      To this day, I find it truly astonishing just how many people have no clue whatsoever about proper form, posture, or back health in general.

      Anyway, good luck researching your theory.

      Reply
      • Patricia   October 23, 2014 at 11:56 pm

        Victims??? Moaning about their illness???? How dare you…do you have fibromyalgia…you have no clue with your theories…dont be so rude..I have no fillings….no vaccinations since I was a child…yes I believe we are born with it

        Reply
    • Stormfighter   October 23, 2014 at 5:31 pm

      Erik, I may not be much help but the first question is no I don’t have silver fillings. I’ve never needed them and I’ve also heard silver fillings are actually bad for you. the second question I’ve had my acquired shots from birth to adult and I get the flu shot every year but I don’t get shots regularly. I have Fibro but not from the above reasons I was really sick from a viral infection and my symptom’s kicked in from a body that has never worked like it should for a normal person. And actually not everyone has bad posture it’s actually stiffness from fibro so we always need to be on the move we can’t always be proper or have good form actually sometimes it hurts to stand or sit in a proper form because of stiffness. I dance all the time and eat healthy for Hypoglycemia, I don’t take meds for now I take herbal vitamins. anyway I hope this helps. good luck with your theory

      Reply
  501. Cindy   October 23, 2014 at 7:39 am

    article was added June of 2013. Really? def need to research origin..thought we had something to hand our hat on, but now, not so sure

    Reply
  502. Stormfighter   October 23, 2014 at 7:30 am

    If your not seeking advice for problems from others on this comment thing. I suggest stfu everyone is entitled to their own opinion but don’t share it with others who do have Fibro cause we don’t want to hear it. it’s called got nothing nice to say keep it to yourself. I’m reading the comments to see if others can help me but all i’m actually reading is arguments that help no one. and with the comments and responds this is just uncomfortable to even seek help. everyone is crazy. and I need to worry about me. I am sorry for what each of you are going through but this shouldn’t be for making points or saying it’s not what your going through. okay yes not everyone has this problem in the article above but it’s not an article to bash on cause it’s not your one of your issues. everyone has different problems when it comes to Fibro but come on arguing doesn’t help anyone except make you angry. that’s all I wanted to say goodbye. BTW I will not be back to see responses to this. Cause and I’m sorry for anyone that goes through Fibro it sucks I know I go through it too I was thirteen it was a horrible 14th birthday gift but I don’t care for the responses. so again goodbye.

    Reply
    • You know who.   October 23, 2014 at 8:40 am

      The answer is no. It’s a free country.

      Reply
      • Stormfighter   October 23, 2014 at 12:25 pm

        I don’t care for responses so good day.

        Reply
  503. You know who.   October 23, 2014 at 12:23 am

    Both of your entries suggest the possibility of a spinal issue. By the way, the very act of remaining in bed for any reason whatsoever legitimate or otherwise is known to cause back problems, stiffness, circulation problems, and pain all over the body.

    Reply
  504. You know who.   October 22, 2014 at 5:31 pm

    My critics need to read my entries more carefully and stop taking them so damn personally. Again, I’m not denying the concept of a mistake made by Mother Nature. It happens. Some of you may be innocent victims of circumstance. But we make mistakes a hell of a lot more often than Mother Nature does.

    Unless of course, any of you can explain why Mother Nature chose suddenly to transform most of America from healthy, slim, and relatively fit to fat, lethargic, and riddled with illness over the last 40 years. Or why she chose America in particular to hit a few hundred times with her ‘fat and sick’ stick.

    Explanations? Anyone?

    and don’t feed me some crap that I’m not trying to help. My attitude doesn’t come from hate. It comes from frustration. I don’t enjoy seeing so many people miserable and I’m not trying to hurt your feelings. I want people to be healthy, live long, and feel good. That includes every one of you.

    and if any of you have even the slightest doubts about wide-spread corruption or outright fraud within the healthcare industry then do some research. It’s been reported many times, proven many times, charged many times, and CONVICTED many times.

    I type the ugly truth.

    Reply
  505. Eleanor Morgan   October 22, 2014 at 3:49 pm

    ‘My guess is that at least 9 out of 10 of those diagnosed with Fibromyalgia are to blame for their own conditions’ -really! that comment is repugnant. The pain that I am sufefering is due to cancer treatment and very real. My doctor